Defining the micro and macro roles of a hemophilia treatment center social worker in the United States from an interdisciplinary team perspective.

delivery of integrated healthcare haemophilia patient care team scope of practice social work standard of care

Journal

Haemophilia : the official journal of the World Federation of Hemophilia
ISSN: 1365-2516
Titre abrégé: Haemophilia
Pays: England
ID NLM: 9442916

Informations de publication

Date de publication:
Nov 2022
Historique:
revised: 01 04 2022
received: 25 06 2021
accepted: 11 06 2022
pubmed: 8 7 2022
medline: 16 11 2022
entrez: 7 7 2022
Statut: ppublish

Résumé

The social worker (SW) role in the Hemophilia Treatment Center (HTC) is complex and broad, providing direct support, spanning across micro, mezzo and macro levels of care. Research demonstrates discrepancy between actual and ideal SW roles among the HTC SW community. Soliciting perceptions from HTC staff about the SW role can provide a deeper understanding of this discrepancy and improve collaboration amongst care team members in meeting the psychosocial needs of HTC patients. Funded by the National Hemophilia Foundation (NHF), a national online survey was conducted in 2020 to determine the views and attitudes of what the SW role is by HTC staff. Separate surveys were emailed to active HTC SWs and staff to collect anonymous data. Demographics of SWs gathered included age, education, years of practice, full time equivalent (FTE) status, and caseload. All disciplines were asked questions about perceptions, barriers, and potential ways to enhance and strengthen the SW role within HTCs. Results demonstrated that subcategory-oriented questions (40 in total) and qualitative responses highlighted diverse viewpoints and offered clarity about these differences. Findings indicated most HTC staff value the multi-faceted role of SW at their centres, and both groups identified time, limited resources, and role confusion as barriers to utilizing SW services. Outcomes will inform the development of a "standards of practice" tool that will provide education for HTC staff, patients, and families, and serve as an empowerment tool for SW to highlight their skillset and define their role.

Identifiants

pubmed: 35797008
doi: 10.1111/hae.14612
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

e164-e171

Informations de copyright

© 2022 John Wiley & Sons Ltd.

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Auteurs

Diane L Bartlett (DL)

St. Luke's Hemophilia Center, Boise, Idaho, USA.

Kathaleen M Schnur (KM)

Hemophilia Center of Western Pennsylvania, Pittsburgh, Pennsylvania, USA.

Amy K Wilson (AK)

University of Minnesota Center for Bleeding & Clotting Disorders Hemophilia Treatment Center, Minneapolis, Minnesota, USA.

Spencer S Moorman (SS)

Norton Children's Cancer Institute, University of Louisville, Louisville, Kentucky, USA.

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