"We Treat Everyone Equally": Hospice Care Team Members' Language Use Regarding Sexual and Gender Minority Patients and Caregivers.

LGBTQ+ end of life framing language hospice hospice interdisciplinary care team sexual and gender minorities

Journal

The American journal of hospice & palliative care
ISSN: 1938-2715
Titre abrégé: Am J Hosp Palliat Care
Pays: United States
ID NLM: 9008229

Informations de publication

Date de publication:
Jun 2023
Historique:
medline: 5 6 2023
pubmed: 20 7 2022
entrez: 19 7 2022
Statut: ppublish

Résumé

The way Hospice Care Team (HCT) members talk about patients and caregivers reflects personal attitudes and experiences, training, and broader social and cultural discourse. This secondary analysis examined the framing language professional hospice care providers used when discussing end-of-life care for LGBTQ+ patients and caregivers. Discourse analysis and frame theory informed a secondary, qualitative analysis of focus group data collected with hospice providers (N = 48) in 3 U.S. states regarding their knowledge, experience, and opinions about end-of-life care for LGBTQ+ patients and caregivers. The following four (often overlapping) frames were identified (1) A normalizing frame which dismissed differences between LGBTQ+ patients/caregivers and non-LGBTQ+ individuals in general, and especially at end-of-life (2) A homogenizing frame which cast being LGBTQ+ as an intrinsic, universal characteristic and did not differentiate between different groups, specifically conflating orientation and gender identity (3) A pathologizing frame in which providers related being LGBTQ+ to disease conditions or illegal behaviors (4) An individualizing frame which focused on between-group differences, acknowledged variation, and emphasized the importance of historical context for personalized care. Examination of discursive frames used by providers enhances understanding of how social and cultural influences, along with training and experience, shape how HCT members approach working with LGBTQ+ patients and families, and illuminates areas where additional education and training are needed. Our findings support the need for ongoing efforts to improve HCT members' knowledge and skill regarding the needs of LGBTQ+ patients and families within the context of hospice and end-of-life care.

Identifiants

pubmed: 35852478
doi: 10.1177/10499091221116634
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

601-606

Auteurs

Miranda Reynaga (M)

Department of Psychology, University of Michigan, Ann Arbor, MI, USA.

Sara Bybee (S)

College of Nursing, University of Utah, Salt Lake City, UT, USA.

Caroline Gettens (C)

Care Dimensions, Hospice, Danvers, MA, USA.

Djin L Tay (DL)

College of Nursing, University of Utah, Salt Lake City, UT, USA.

Maija Reblin (M)

Department of Family Medicine, University of Vermont, Burlington, VT, USA.

Lee Ellington (L)

College of Nursing, University of Utah, Salt Lake City, UT, USA.

Kristin G Cloyes (KG)

College of Nursing, University of Utah, Salt Lake City, UT, USA.

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Classifications MeSH