Support towards the end of life and beyond: Non-kin care commitment for older people living alone in Austria.
boundaries
burdens
end of life
home death
non-kin care
Journal
Health & social care in the community
ISSN: 1365-2524
Titre abrégé: Health Soc Care Community
Pays: England
ID NLM: 9306359
Informations de publication
Date de publication:
11 2022
11 2022
Historique:
revised:
24
05
2022
received:
21
12
2021
accepted:
08
07
2022
pubmed:
28
7
2022
medline:
20
12
2022
entrez:
27
7
2022
Statut:
ppublish
Résumé
Non-kin carers provide vital resources for older people living alone with increasing care needs, especially if they cannot rely on the support of family members. However, this kind of commitment presents numerous challenges throughout the care trajectory and beyond. To explore these aspects in more depth, a qualitative study was designed including a retrospective interpretation of interview data with non-kin carers (n = 15) and additional in-depth interviews (n = 8) with people who had cared for an older person living alone with no family nearby. Analyses of the verbatim transcriptions followed coding procedures and were supported by MaxQDA software. Our findings demonstrate that non-kin carers had to negotiate personal boundaries continuously over the end-of-life trajectory to deal with the increasing complexity of care demands and overburdening situations. Following the older person's death, non-kin carers were involved in funeral arrangements and settled practical or legal matters when no family members were available or had little inclination to contribute. The findings highlight that non-kin carers make a great effort to safeguard the interests and needs of older people living alone, ensuring their autonomy and dignity towards the end of life and beyond. However, the burdens experienced require future research to better understand the support needs of non-kin carers providing end-of-life care for an older person living alone.
Identifiants
pubmed: 35894108
doi: 10.1111/hsc.13937
pmc: PMC7614260
mid: EMS165124
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
e5196-e5203Subventions
Organisme : Austrian Science Fund FWF
ID : P 30607
Pays : Austria
Informations de copyright
© 2022 John Wiley & Sons Ltd.
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