Validation of the pedHAL


Journal

Haemophilia : the official journal of the World Federation of Hemophilia
ISSN: 1365-2516
Titre abrégé: Haemophilia
Pays: England
ID NLM: 9442916

Informations de publication

Date de publication:
Nov 2022
Historique:
revised: 29 06 2022
received: 06 01 2022
accepted: 01 07 2022
pubmed: 30 7 2022
medline: 16 11 2022
entrez: 29 7 2022
Statut: ppublish

Résumé

The Haemophilia Activities List (HAL) and paediatric HAL assess self-reported limitations in various daily activities. To reduce patient burden, shorter versions of the pedHAL (22 items) and HAL (18 items) have been developed. This study aimed to determine the agreement between the pedHAL/HAL A cross-sectional secondary analysis of the Hemophilia in the Netherlands-6 national survey was performed. Adult and paediatric PWH completed the original pedHAL/HAL We included 113 children (median 10y [range 4-17], 53% severe haemophilia) and 691 adults (median 51y [range 18-88], 35% severe). Scores of the pedHAL/HAL This study confirmed the agreement between the pedHAL/HAL

Identifiants

pubmed: 35905309
doi: 10.1111/hae.14628
pmc: PMC9796045
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1007-1015

Informations de copyright

© 2022 The Authors. Haemophilia published by John Wiley & Sons Ltd.

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Auteurs

Isolde A R Kuijlaars (IAR)

Center for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.

Janjaap van der Net (J)

Center for Child Development, Exercise and Physical Literacy, University Medical Center Utrecht, Utrecht University, University Children's Hospital, Utrecht, the Netherlands.

Lize F D van Vulpen (LFD)

Center for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.

Mariette H E Driessens (MHE)

Netherlands Haemophilia Society (NVHP), Nijkerk, the Netherlands.

Saskia E M Schols (SEM)

Department of Haematology, Radboud University Medical Center, Nijmegen, the Netherlands.
Haemophilia Treatment Center Nijmegen-Eindhoven-Maastricht, Radboud University Medical Center, Nijmegen, the Netherlands.

Melanie Tan (M)

Department of Vascular Medicine, Amsterdam Cardiovascular Sciences, Amsterdam University Medical Centers, University of Amsterdam, Amsterdam, the Netherlands.

Samantha C Gouw (SC)

Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Pediatric Hematology, Amsterdam, the Netherlands.
Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, the Netherlands.

Kathelijn Fischer (K)

Center for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Center Utrecht, Utrecht University, Utrecht, the Netherlands.

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Classifications MeSH