Participant experiences of intervention to detect and manage familial hypercholesterolaemia in Australian general practice: A qualitative descriptive study.

Australia Cholesterol, LDL General Practice / methods General Practitioners Humans Hyperlipoproteinemia Type II / diagnosis

Journal

Australian journal of general practice
ISSN: 2208-7958
Titre abrégé: Aust J Gen Pract
Pays: Australia
ID NLM: 101718099

Informations de publication

Date de publication:
09 2022
Historique:
entrez: 1 9 2022
pubmed: 2 9 2022
medline: 9 9 2022
Statut: ppublish

Résumé

General practitioners (GPs) are ideally placed to have a much larger role in detection and management of familial hypercholesterolaemia (FH) among their patients. The aim of this study was to seek the reflections of practice staff and newly diagnosed patients with FH on the implementation of an FH model of care in the general practice setting. Qualitative descriptive methodology was used. Interviews were conducted with 36 practice staff and 51 patients from 15 practices participating in the study. Data were analysed thematically and coded into themes - efficacy of GP training, screening for FH, model of care, patient awareness and cascade testing. Findings reflect the real-world clinical experience of Australian general practice and the acceptability of the model of care for both patients with FH and practice staff. Patient health literacy is a barrier to both management of FH and cascade testing. A systematic approach to cascade testing is required.

Sections du résumé

BACKGROUND AND OBJECTIVES
General practitioners (GPs) are ideally placed to have a much larger role in detection and management of familial hypercholesterolaemia (FH) among their patients. The aim of this study was to seek the reflections of practice staff and newly diagnosed patients with FH on the implementation of an FH model of care in the general practice setting.
METHOD
Qualitative descriptive methodology was used. Interviews were conducted with 36 practice staff and 51 patients from 15 practices participating in the study.
RESULTS
Data were analysed thematically and coded into themes - efficacy of GP training, screening for FH, model of care, patient awareness and cascade testing.
DISCUSSION
Findings reflect the real-world clinical experience of Australian general practice and the acceptability of the model of care for both patients with FH and practice staff. Patient health literacy is a barrier to both management of FH and cascade testing. A systematic approach to cascade testing is required.

Identifiants

DOI: 10.31128/AJGP-09-21-6188 PMID: 36045626
pubmed: 36045626
doi: 10.31128/AJGP-09-21-6188
doi:

Substances chimiques

Cholesterol, LDL 0

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

687-694

Auteurs

Rachel Skoss (R)

BSc, MEval, PhD, Senior Research Fellow, Institute for Health Research, University of Notre Dame Australia, Fremantle, WA; Honorary Research Associate, Telethon Kids Institute, Perth, WA; Adjunct Senior Research Fellow, School of Population and Global Health, University of Western Australia, Perth, WA.

Tom Brett (T)

MA, MD, FRACGP, MRCGP, Professor and Director, General Practice and Primary Health Care Research Unit, School of Medicine, University of Notre Dame Australia, Fremantle, WA; General Practitioner, Mosman Park Medical Centre, Mosman Park, WA.

Caroline Bulsara (C)

BA, GradEducStudies, PhD, Professor, Coordinator and Qualitative Research Academic, Institute for Health Research, University of Notre Dame Australia, Fremantle, WA; Coordinator and Qualitative Research Academic, School of Nursing and Midwifery, Health Sciences @ Physiotherapy, University of Notre Dame Australia, Fremantle, WA.

Jan Radford (J)

MBBS, MPsychMed, MEd, FRACGP, FARGP, GAID, AFANZAHPE, Associate Professor of General Practice, Launceston Clinical School, University of Tasmania, Launceston, Tas; General Practitioner, West Tamar Health, Tas; Provost, RACGP Tasmanian Faculty, Tas.

Clare Heal (C)

MBChB, DRANZCOG, DipGUMed, FRACGP, MPHTM, PhD, Promotional Chair, Discipline of General Practice and Rural Medicine, Mackay Clinical School, James Cook University College of Medicine and Dentistry, Mackay, Qld.

Gerard Gill (G)

MBBS, FRACGP, Clinical Professor, School of Medicine, Deakin University, Geelong, Vic; General Practitioner, Kardinia Health, Belmont, Vic.

Charlotte Hespe (C)

FRACGP, MBBS (Hons), DCH (Lon), Associate Professor, Head General Practice and Primary Care Research, School of Medicine Sydney, University of Notre Dame, Sydney, NSW; General Practitioner, Glebe Family Medical Practice, Glebe, NSW.

Cristian Vargas-Garcia (C)

MD, MSc, MClinRes, National Project Manager, General Practice and Primary Health Care Research Unit, School of Medicine, University of Notre Dame, Fremantle, WA.

Ian W Li (IW)

Ian W Li MBBS, PhD, Associate Professor, School of Population and Global Health, University of Western Australia, Perth, WA.

David R Sullivan (DR)

MBBS, FRACPath, Associate Professor and Chemical Pathologist, Royal Prince Alfred Hospital, Sydney, NSW; Chemical Pathologist, NSW Health Pathology, Sydney, NSW.

Alistair W Vickery (AW)

MBBS, FRACGP, Associate Professor, Division of General Practice, Medical School, University of Western Australia, Perth, WA; General Practitioner, Emerald Clinic, West Leederville, WA.

Jing Pang (J)

BSc, PhD, National Health and Medical Research Council Early Career Research Fellow, Medical School, University of Western Australia, Perth, WA.

Diane E Arnold-Reed (DE)

BSc, PhD, Associate Professor, School of Medicine, University of Notre Dame, Fremantle, WA.

Gerald F Watts (GF)

DSc, PhD, MD, FRACP, FRCP, Winthrop Professor and Consultant Physician, Medical School, University of Western Australia, Perth, WA; Head, Lipid Disorders Clinic, Cardiometabolic Service, Departments of Cardiology and Internal Medicine, Royal Perth Hospital, Perth, WA.

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Classifications MeSH

questionsmedicales.fr › Régions géographiques › Océanie › Australasie › Australie › Participant experiences of intervention to...
questionsmedicales.fr › Acides aminés, peptides et protéines › Protéines › Lipoprotéines › Lipoprotéines LDL › Cholestérol LDL › Participant experiences of intervention to...
questionsmedicales.fr › Professions de santé › Médecine › Médecine générale › Participant experiences of intervention to...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Personnel de santé › Médecins › Médecins généralistes › Participant experiences of intervention to...
questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › Participant experiences of intervention to...
questionsmedicales.fr › Maladies métaboliques et nutritionnelles › Maladies métaboliques › Erreurs innées du métabolisme › Erreurs innées du métabolisme lipidique › Hyperlipoprotéinémie de type II › Participant experiences of intervention to...