Challenges and Fears of Adolescents and Young Adults Living with HIV Facing Transition to Adult HIV Care.


Journal

AIDS and behavior
ISSN: 1573-3254
Titre abrégé: AIDS Behav
Pays: United States
ID NLM: 9712133

Informations de publication

Date de publication:
Apr 2023
Historique:
accepted: 02 09 2022
pmc-release: 01 04 2024
pubmed: 22 9 2022
medline: 28 3 2023
entrez: 21 9 2022
Statut: ppublish

Résumé

Adolescents and young adults living with perinatally-acquired HIV (AYLPHIV) have poor outcomes along each step of the HIV care continuum due to challenges in seeking care and advocating for themselves. The transition from paediatric to adult HIV care is a particularly high-risk period for AYLPHIV in rural Uganda. We conducted in-depth interviews with AYLPHIV (n = 30), caregivers (n = 10), and healthcare providers (n = 10) to understand challenges facing AYLPHIV during the transition from paediatric to adult HIV care. Themes were identified by thematic content analysis. Transition-related challenges and fears included difficulty navigating the adult HIV clinic; loss of informational support; long wait times at the adult HIV clinic; lack of privacy, and fear of HIV status disclosure and stigma; and loss of support from caregivers, and health care providers. Before transitioning to adult HIV care, AYLPHIV should be adequately prepared and given appropriate information to help them navigate adult HIV care.

Identifiants

pubmed: 36129557
doi: 10.1007/s10461-022-03856-6
pii: 10.1007/s10461-022-03856-6
pmc: PMC10027623
mid: NIHMS1840521
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

1189-1198

Subventions

Organisme : FIC NIH HHS
ID : K43 TW011929
Pays : United States
Organisme : NIAID NIH HHS
ID : P30 AI060354
Pays : United States
Organisme : NINR NIH HHS
ID : K43TW011929
Pays : United States
Organisme : Harvard University Center for AIDS Research
ID : P30AI060354
Organisme : NINR NIH HHS
ID : K43TW011929
Pays : United States

Informations de copyright

© 2022. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.

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Auteurs

Scholastic Ashaba (S)

Mbarara University of Science and Technology, Plot 8-18, P. O.BOX 1410, Mbarara, Uganda. sashaba@must.ac.ug.

Brian C Zanoni (BC)

Emory University School of Medicine, Atlanta, GA, USA.
Children's Healthcare of Atlanta, Atlanta, USA.
Emory University's Rollins School of Public Health, Atlanta, GA, USA.

Charles Baguma (C)

Mbarara University of Science and Technology, Plot 8-18, P. O.BOX 1410, Mbarara, Uganda.

Patricia Tushemereirwe (P)

Mbarara University of Science and Technology, Plot 8-18, P. O.BOX 1410, Mbarara, Uganda.

Gabriel Nuwagaba (G)

Mbarara University of Science and Technology, Plot 8-18, P. O.BOX 1410, Mbarara, Uganda.

Joseph Kirabira (J)

Busitema University, Mbale, Uganda.

Denis Nansera (D)

Mbarara University of Science and Technology, Plot 8-18, P. O.BOX 1410, Mbarara, Uganda.

Samuel Maling (S)

Mbarara University of Science and Technology, Plot 8-18, P. O.BOX 1410, Mbarara, Uganda.

Alexander C Tsai (AC)

Mbarara University of Science and Technology, Plot 8-18, P. O.BOX 1410, Mbarara, Uganda.
Center for Global Health and Mongan Institute, Massachusetts General Hospital, Boston, MA, USA.
Harvard Medical School, Boston, MA, USA.

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