Family Communication in Autism Spectrum Disorder: Applying the Family Caregiver Communication Typology to Parent Caregivers.


Journal

Health communication
ISSN: 1532-7027
Titre abrégé: Health Commun
Pays: England
ID NLM: 8908762

Informations de publication

Date de publication:
12 2023
Historique:
medline: 26 10 2023
pubmed: 4 10 2022
entrez: 3 10 2022
Statut: ppublish

Résumé

Parents of children with Autism Spectrum Disorder (ASD) experience greater stress and caregiver burden than parents of children with other disabilities. To cope with the stress of long-term caregiving, they rely on professionals for support and guidance. However, parents continue to report unmet communication and support needs. To inform tailored communication for parents of a child with ASD, this study used the existing Family Caregiver Communication Typology framework which identifies four caregiver communication types (manager, carrier, partner, and lone) and their unique communication and support needs. In-depth, structured interviews were conducted with parents (n = 22) and ASD professionals (n = 28) to explore communication characteristics of ASD parent caregivers. A thematic analysis revealed communication behaviors among four ASD parent caregiver types, further validating the typology. Future research is needed to develop targeted interventions for improving family-centered care based on ASD parent caregiver types.

Identifiants

pubmed: 36189789
doi: 10.1080/10410236.2022.2128232
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

2945-2955

Auteurs

Emily J Pfender (EJ)

Department of Communication, From University of Delaware.

Elaine Wittenberg (E)

Department of Communication Studies, From California State University Los Angeles.

Anna M Kerr (AM)

Department of Primary Care, From Ohio University.

Joy V Goldsmith (JV)

Department of Communication and Film, From University of Memphis.

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