Couples facing the "honeymoon period" of Parkinson's disease: A qualitative study of dyadic functioning.

couple dyadic functioning dyadic qualitative analysis honeymoon period interpretative phenomenological analysis

Journal

British journal of health psychology
ISSN: 2044-8287
Titre abrégé: Br J Health Psychol
Pays: England
ID NLM: 9605409

Informations de publication

Date de publication:
05 2023
Historique:
revised: 09 10 2022
received: 25 01 2022
accepted: 12 10 2022
medline: 11 4 2023
pubmed: 28 10 2022
entrez: 27 10 2022
Statut: ppublish

Résumé

The public health issue of the Parkinson's disease (PD) has led to a great deal of research that has highlighted the individual challenges faced by the person with the Parkinson's disease (PwPD) and the caregiving spouse. Few studies, however, have sought to understand the functioning of couples facing PD, by differentiating each stage, each of which has its own issues. In particular, the "honeymoon period", characterized by a symptomatic respite allowed by the effectiveness of treatments for motor symptoms, has been poorly documented, especially at the dyadic level. This qualitative study, based on Interpretative Phenomenological Analysis, aimed to understand the experience of couples and their functioning at this stage. Fifteen couples participated in separate semi-structured interviews for each partner. The analyses highlighted four dyadic dynamics, which call into question the relevance of the term "honeymoon" to describe the experience of couples. While some couples appear to adjust by means of flexible functioning and a positive reinterpretation of this experience, other dyads oscillate between rigid hyperprotection in the face of perceived distress or a vicious circle of control/avoidance and, in some cases, gradually slipping towards the erosion of the relationship. These results show that the relational difficulties suffered by partners at this stage should be taken into account as soon as possible after the diagnosis. Strengthening the communication and the togetherness between partners, as well as working on dyadic emotional regulation, are particularly relevant options for these couples.

Identifiants

pubmed: 36301684
doi: 10.1111/bjhp.12629
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

366-382

Informations de copyright

© 2022 British Psychological Society.

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Auteurs

Charlotte Manceau (C)

Univ. Lille, CNRS, UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, Villeneuve d'Ascq, France.

Emilie Constant (E)

Univ. Lille, CNRS, UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, Villeneuve d'Ascq, France.

Elodie Brugallé (E)

Neurology and Movement Disorders Department, CHU-Lille, Lille, France.

Emilie Wawrziczny (E)

Univ. Lille, CNRS, UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, Villeneuve d'Ascq, France.

Céline Sokolowski (C)

Univ. Lille, CNRS, UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, Villeneuve d'Ascq, France.

Bérengère Flinois (B)

Neurology and Movement Disorders Department, CHU-Lille, Lille, France.

Guillaume Baille (G)

Neurology and Movement Disorders Department, Univ. Lille, Inserm, Lille Neurosciences and Cognition, CHU-Lille, Lille, France.

Luc Defebvre (L)

Neurology and Movement Disorders Department, Univ. Lille, Inserm, Lille Neurosciences and Cognition, CHU-Lille, Lille, France.

Kathy Dujardin (K)

Neurology and Movement Disorders Department, Univ. Lille, Inserm, Lille Neurosciences and Cognition, CHU-Lille, Lille, France.

Pascal Antoine (P)

Univ. Lille, CNRS, UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, Villeneuve d'Ascq, France.

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