Motivations of the participants who post a message in an online health forum: a qualitative and quantitative descriptive study in French health forum Doctissimo.
Online health forums
Patient motivations
Journal
BMC primary care
ISSN: 2731-4553
Titre abrégé: BMC Prim Care
Pays: England
ID NLM: 9918300889006676
Informations de publication
Date de publication:
29 11 2022
29 11 2022
Historique:
received:
20
11
2021
accepted:
08
11
2022
entrez:
28
11
2022
pubmed:
29
11
2022
medline:
1
12
2022
Statut:
epublish
Résumé
For more than 20 years, and despite the development of new social networks, health forums have remained a privileged place for people to discuss health issues. This study investigates the motivations of participants to post a message on a French online health forum (called 'Doctissimo') (Forum Santé - Doctissimo, 2022). Between January 1, 2017 and December 31, 2019, all the first messages recorded on the health forum doctissimo ( www.forum.doctissimo.fr ) were selected in their initial format by a crawler. The transcripts were imported into the qualitative analysis software Nvivo. Two researchers coded the data until a theoretical saturation was obtained. We identified four categories of motivation: 1) 'Questioning' allows the exchange of mainly medical information, or sharing of feedback on experiences with the disease: 1722 codes, 44.8%, 2) Worry, need for reassurance: 1066 codes, 27.7% about symptoms or anticipatory anxiety, 3) 'Expressing oneself' mainly allows a catharsis and thus an emotional release, especially negative, but also to share a personal experience: 764 codes 19.9%, 4) Community spirit is a central element to create an emotional support group for psychological support, exchange ideas, meet people in similar situations: 291 codes, 7.6%. The relationship with a health professional when mentioned is generally marked by doubts 39.5%, confusion, or lack of information and the need for additional elements 64.6% or reassurance 60%. The relationship and the obstacles to a medical consultation are described in relation to the use of the forum: immediate availability, anonymity, absence of taboo and community spirit. The use of information sources offered by the Internet is a way to ask questions, to be reassured, to express oneself or to be confirmed by the community in the hypothesis emitted by a health professional. Patients are looking for an immediate answer, they come to the community for reassurance, they feel free and legitimate.
Sections du résumé
BACKGROUND
For more than 20 years, and despite the development of new social networks, health forums have remained a privileged place for people to discuss health issues. This study investigates the motivations of participants to post a message on a French online health forum (called 'Doctissimo') (Forum Santé - Doctissimo, 2022).
METHOD
Between January 1, 2017 and December 31, 2019, all the first messages recorded on the health forum doctissimo ( www.forum.doctissimo.fr ) were selected in their initial format by a crawler. The transcripts were imported into the qualitative analysis software Nvivo. Two researchers coded the data until a theoretical saturation was obtained.
RESULTS
We identified four categories of motivation: 1) 'Questioning' allows the exchange of mainly medical information, or sharing of feedback on experiences with the disease: 1722 codes, 44.8%, 2) Worry, need for reassurance: 1066 codes, 27.7% about symptoms or anticipatory anxiety, 3) 'Expressing oneself' mainly allows a catharsis and thus an emotional release, especially negative, but also to share a personal experience: 764 codes 19.9%, 4) Community spirit is a central element to create an emotional support group for psychological support, exchange ideas, meet people in similar situations: 291 codes, 7.6%. The relationship with a health professional when mentioned is generally marked by doubts 39.5%, confusion, or lack of information and the need for additional elements 64.6% or reassurance 60%. The relationship and the obstacles to a medical consultation are described in relation to the use of the forum: immediate availability, anonymity, absence of taboo and community spirit.
CONCLUSION
The use of information sources offered by the Internet is a way to ask questions, to be reassured, to express oneself or to be confirmed by the community in the hypothesis emitted by a health professional. Patients are looking for an immediate answer, they come to the community for reassurance, they feel free and legitimate.
Identifiants
pubmed: 36443665
doi: 10.1186/s12875-022-01906-5
pii: 10.1186/s12875-022-01906-5
pmc: PMC9706851
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
304Informations de copyright
© 2022. The Author(s).
Références
Rev Epidemiol Sante Publique. 2013 Jun;61(3):193-8
pubmed: 23639686
BMJ. 2001 Oct 20;323(7318):908-11
pubmed: 11668137
Lancet. 1955 Apr 2;268(6866):683-8
pubmed: 14354967
Qual Health Res. 2010 May;20(5):595-606
pubmed: 20008955
BMC Fam Pract. 2011 Apr 16;12:20
pubmed: 21496309
Aust Fam Physician. 2014 Dec;43(12):875-7
pubmed: 25705739
J Gen Intern Med. 2007 Jan;22(1):86-91
pubmed: 17351845
Fam Pract. 2020 Sep 5;37(4):434-444
pubmed: 31967300
BMJ Open. 2016 Apr 06;6(4):e010501
pubmed: 27053271
JAMA. 2002 May 22-29;287(20):2691-700
pubmed: 12020305
Patient Educ Couns. 2011 Dec;85(3):525-8
pubmed: 21315538
Nurs Res. 2006 Jul-Aug;55(4):267-73
pubmed: 16849979
Fam Pract. 1995 Jun;12(2):193-201
pubmed: 7589944
Soc Sci Med. 1994 Sep;39(5):655-70
pubmed: 7973865