The Swedish medical birth register during five decades: documentation of the content and quality of the register.


Journal

European journal of epidemiology
ISSN: 1573-7284
Titre abrégé: Eur J Epidemiol
Pays: Netherlands
ID NLM: 8508062

Informations de publication

Date de publication:
Jan 2023
Historique:
received: 30 08 2022
accepted: 15 11 2022
pubmed: 4 1 2023
medline: 25 1 2023
entrez: 3 1 2023
Statut: ppublish

Résumé

Pregnancy-related factors are important for short- and long-term health in mothers and offspring. The nationwide population-based Swedish Medical Birth Register (MBR) was established in 1973. The present study describes the content and quality of the MBR, using original MBR data, Swedish-language and international publications based on the MBR.The MBR includes around 98% of all births in Sweden. From 1982 onwards, the MBR is based on prospectively recorded information in standardized antenatal, obstetric, and neonatal records. When the mother and infant are discharged from hospital, this information is forwarded to the MBR, which is updated annually. Maternal data include information from first antenatal visit on self-reported obstetric history, infertility, diseases, medication use, cohabitation status, smoking and snuff use, self-reported height and measured weight, allowing calculation of body mass index. Birth and neonatal data include date and time of birth, mode of delivery, singleton or multiple birth, gestational age, stillbirth, birth weight, birth length, head circumference, infant sex, Apgar scores, and maternal and infant diagnoses/procedures, including neonatal care. The overall quality of the MBR is very high, owing to the semi-automated data extraction from the standardized regional electronic health records, Sweden's universal access to antenatal care, and the possibility to compare mothers and offspring to the Total Population Register in order to identify missing records. Through the unique personal identity numbers of mothers and live-born offspring, the MBR can be linked to other health registers. The Swedish MBR contains high-quality pregnancy-related information on more than 5 million births during five decades.

Identifiants

pubmed: 36595114
doi: 10.1007/s10654-022-00947-5
pii: 10.1007/s10654-022-00947-5
pmc: PMC9867659
doi:

Types de publication

Journal Article Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

109-120

Informations de copyright

© 2022. The Author(s).

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Auteurs

Sven Cnattingius (S)

Clinical Epidemiology Division, Department of Medicine, Karolinska Institutet, Solna, Sweden.

Karin Källén (K)

Department of Clinical Sciences, Centre of Reproduction Epidemiology, Tornblad Institute, Lund University, Lund, Sweden.

Anna Sandström (A)

Clinical Epidemiology Division, Department of Medicine, Karolinska Institutet, Solna, Sweden.
Department of Women's Health, Division of Obstetrics, Karolinska University Hospital, Stockholm, Sweden.

Henny Rydberg (H)

Statistics Unit 1, Department of Registers and Statistics, National Board of Health and Welfare, Stockholm, Sweden.

Helena Månsson (H)

Statistics Unit 1, Department of Registers and Statistics, National Board of Health and Welfare, Stockholm, Sweden.

Olof Stephansson (O)

Clinical Epidemiology Division, Department of Medicine, Karolinska Institutet, Solna, Sweden.
Department of Women's Health, Division of Obstetrics, Karolinska University Hospital, Stockholm, Sweden.

Thomas Frisell (T)

Clinical Epidemiology Division, Department of Medicine, Karolinska Institutet, Solna, Sweden.

Jonas F Ludvigsson (JF)

Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, 17177, Stockholm, Sweden. jonasludvigsson@yahoo.com.
Department of Pediatrics, Örebro University Hospital, Örebro, Sweden. jonasludvigsson@yahoo.com.
Department of Medicine, Columbia University College of Physicians and Surgeons, New York, NY, USA. jonasludvigsson@yahoo.com.

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