Communication in the context of glioblastoma treatment: A qualitative study of what matters most to patients, caregivers and health care professionals.
Brain tumour
caregivers
communication
decision-making
glioblastoma
palliative care
Journal
Palliative medicine
ISSN: 1477-030X
Titre abrégé: Palliat Med
Pays: England
ID NLM: 8704926
Informations de publication
Date de publication:
06 2023
06 2023
Historique:
medline:
30
5
2023
pubmed:
4
2
2023
entrez:
3
2
2023
Statut:
ppublish
Résumé
Patients with glioblastoma have a poor prognosis and treatment is palliative in nature from diagnosis. It is therefore critical that the benefits and burdens of treatments are clearly discussed with patients and caregivers. To explore experiences and preferences around glioblastoma treatment communication in patients, family caregivers and healthcare professionals. Qualitative design. A thematic analysis of semi-structured interviews. A total of 15 adult patients with glioblastoma, 13 caregivers and 5 healthcare professionals were recruited from Leeds Teaching Hospitals NHS Trust. Four themes were identified: (1) In glioblastoma treatment communication, where prognosis is poor and treatmentwill not result in cure, building trusting relationships, maintaining a sense of control and being well-informed are identified as critical.
Sections du résumé
BACKGROUND
Patients with glioblastoma have a poor prognosis and treatment is palliative in nature from diagnosis. It is therefore critical that the benefits and burdens of treatments are clearly discussed with patients and caregivers.
AIM
To explore experiences and preferences around glioblastoma treatment communication in patients, family caregivers and healthcare professionals.
DESIGN
Qualitative design. A thematic analysis of semi-structured interviews.
SETTING/PARTICIPANTS
A total of 15 adult patients with glioblastoma, 13 caregivers and 5 healthcare professionals were recruited from Leeds Teaching Hospitals NHS Trust.
RESULTS
Four themes were identified: (1)
CONCLUSIONS
In glioblastoma treatment communication, where prognosis is poor and treatmentwill not result in cure, building trusting relationships, maintaining a sense of control and being well-informed are identified as critical.
Identifiants
pubmed: 36734532
doi: 10.1177/02692163231152525
pmc: PMC10227096
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
834-843Références
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