Co-Occurring Mental Illness and Behavioral Support Needs in Adults with Intellectual and Developmental Disabilities.
Behavioral support
Intellectual and developmental disabilities
Mental health
Journal
Community mental health journal
ISSN: 1573-2789
Titre abrégé: Community Ment Health J
Pays: United States
ID NLM: 0005735
Informations de publication
Date de publication:
08 2023
08 2023
Historique:
received:
14
10
2022
accepted:
22
01
2023
medline:
26
6
2023
pubmed:
5
2
2023
entrez:
4
2
2023
Statut:
ppublish
Résumé
People with intellectual and developmental disabilities (IDD) have higher incidences of mental health conditions and behavioral support needs than people without IDD but may not receive needed care from community providers. We examined rates of co-occurring conditions in a representative sample of adults with IDD who use state funded services in Virginia. Using data from two datasets, we identified four categories of mental health and behavioral conditions. We used these categories to examine differences in individual- and system-level factors in people with and without co-occurring conditions. We found high rates of co-occurring conditions in our sample. We found important disability factors and system-level characteristics that were associated with having a diagnosed mental health condition or behavioral support needs. Differing patterns of diagnosis and treatment for co-occurring conditions suggests more work needs to be done to support people with IDD and co-occurring mental health conditions living in the community.
Identifiants
pubmed: 36739327
doi: 10.1007/s10597-023-01091-4
pii: 10.1007/s10597-023-01091-4
pmc: PMC9899157
doi:
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
1119-1128Subventions
Organisme : National Institute on Disability and Rehabilitation Research
ID : 901FRE0015-02-0
Commentaires et corrections
Type : ErratumIn
Informations de copyright
© 2023. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.
Références
Baudewijns, L., Ronsse, E., Verstraete, V., Sabbe, B., Morrens, M., & Bertelli, M. O. (2018). Problem behaviours and major depressive disorder in adults with intellectual disability and autism. Psychiatry Research, 270, 769–774. https://doi.org/10.1016/j.psychres.2018.10.039
doi: 10.1016/j.psychres.2018.10.039
pubmed: 30551323
Bowring, D. L., Totsika, V., Hastings, R. P., Toogood, S., & Griffith, G. M. (2017). Challenging behaviours in adults with an intellectual disability: A total population study and exploration of risk indices. British Journal of Clinical Psychology, 56(1), 16–32. https://doi.org/10.1111/bjc.12118
doi: 10.1111/bjc.12118
pubmed: 27878840
Bradley, V., Hiersteiner, D., Rotholz, D., Maloney, J., Li, H., Bonardi, A., & Bershadsky, J. (2018). Personal characteristics and outcomes of individuals with developmental disabilities who need support for self-injurious behaviour. Journal of Intellectual Disability Research, 62(12), 1043–1057. https://doi.org/10.1111/jir.12518
doi: 10.1111/jir.12518
pubmed: 30022570
Brauer, R., Alfageh, B., Blais, J., Chan, E., Chui, C., Hayes, J., Man, K., Lau, W., Yan, N., Beykloo, M., Wang, Z., Wei, L., & Wong, I. (2021). Psychotropic medicine consumption in 65 countries and regions, 2008–19: A longitudinal study. The Lancet Psychiatry, 8(12), 1071–1082. https://doi.org/10.1016/S2215-0366(21)00292-3
doi: 10.1016/S2215-0366(21)00292-3
pubmed: 34801129
pmcid: 9766760
Dinora, P., Bogenschutz, M., & Broda, M. (2020). Identifying predictors for enhanced outcomes for people with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 58(2), 139–157. https://doi.org/10.1352/1934-9556-58.2.139
doi: 10.1352/1934-9556-58.2.139
pubmed: 32240047
Esler, A., Hewitt, A., Hall-Lande, J., Pettingell, S. L., & Houseworth, J. (2019). Psychotropic medication use for adults with autism spectrum disorder who receive services and supports through adult developmental disability services in the United States. Journal of Autism and Developmental Disorders, 49(6), 2291–2303. https://doi.org/10.1007/s10803-019-03903-7
doi: 10.1007/s10803-019-03903-7
pubmed: 30706350
Evans, L., & Randle-Phillips, C. (2020). People with intellectual disabilities’ experiences of psychological therapy: A systematic review and meta-ethnography. Journal of Intellectual Disabilities, 24(2), 233–252. https://doi.org/10.1177/1744629518784359
doi: 10.1177/1744629518784359
pubmed: 30003831
Friedman, C. (2021). Reducing ‘challenging’ behavior by training support staff to promote dignity and respect. Journal of Developmental and Physical Disabilities, 33(3), 449–458. https://doi.org/10.1007/s10882-020-09757-7
doi: 10.1007/s10882-020-09757-7
García-Domínguez, L., Navas, P., Verdugo, M. Á., Arias, V. B., & Gómez, L. E. (2022). Psychotropic drugs intake in people aging with intellectual disability: Prevalence and predictors. Journal of Applied Research in Intellectual Disabilities, 35(5), 1109–1118. https://doi.org/10.1111/jar.12996
doi: 10.1111/jar.12996
pubmed: 35384179
pmcid: 9545215
Gómez, L. G., Navas, P., Verdugo, M. Á., & Tassé, M. J. (2021). Empirically supported psychological treatments: The challenges of comorbid psychiatric and behavioral disorders in people with intellectual disability. World Journal of Psychiatry, 11(11), 1039–1052. https://doi.org/10.5498/wjp.v11.i11.1039
doi: 10.5498/wjp.v11.i11.1039
pubmed: 34888172
pmcid: 8613764
Hamers, P. C. M., Festen, D. A. M., & Hermans, H. (2018). Non-pharmacological interventions for adults with intellectual disabilities and depression: A systematic review. Journal of Intellectual Disability Research, 62(8), 684–700. https://doi.org/10.1111/jir.12502
doi: 10.1111/jir.12502
pubmed: 29797730
Havercamp, S. M., Krahn, G. L., Larson, S. A., Fujiura, G., Goode, T. D., Kornblau, B. L., National Health Surveillance for IDD Workgroup. (2019). Identifying people with intellectual and developmental disabilities in national population surveys. Intellectual and Developmental Disabilities, 57(5), 376–389. https://doi.org/10.1352/1934-9556-57.5.376
doi: 10.1352/1934-9556-57.5.376
pubmed: 31568737
Kats, D., Payne, L., Parlier, M., & Piven, J. (2013). Prevalence of selected clinical problems in older adults with autism and intellectual disability. Journal of Neurodevelopmental Disorders, 5(1), 27. https://doi.org/10.1186/1866-1955-5-27
doi: 10.1186/1866-1955-5-27
pubmed: 24066979
pmcid: 3848965
Kildahi, A. N., Helverschou, S. B., Bakken, T. L., & Oddli, H. (2020). “If we do not look for it, we do not see it”: Clinicians’ experiences and understanding of identifying post-traumatic stress disorder in adults with autism and intellectual disability. Journal of Applied Research in Intellectual Disabilities, 33(5), 1119–1132. https://doi.org/10.1111/jar.12734
doi: 10.1111/jar.12734
Lake, J. K., Jachyra, P., Volpe, T., Lunsky, Y., Magnacca, C., Marcinkiewicz, A., & Hamradi, Y. (2021). The wellbeing and mental health care experiences of adults with intellectual and developmental disabilities during COVID-19. Journal of Mental Health Research in Intellectual Disabilities, 14(3), 285–300. https://doi.org/10.1080/19315864.2021.1892890
doi: 10.1080/19315864.2021.1892890
Larson, S. A., Eschenbacher, H. J., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M. L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.
Lauer, E., Nicola, N. D., Warsett, K., & Monterrey, R. (2019). Contributions of mental and behavioral health conditions to health service utilization among people with intellectual and developmental disabilities in Massachusetts. Inclusion, 7(3), 188–201. https://doi.org/10.1352/2326-6988-7.3.188
doi: 10.1352/2326-6988-7.3.188
Lunsky, Y., & Balogh, R. (2010). Dual diagnosis: A national study of psychiatric hospitalization patterns of people with developmental disability. The Canadian Journal of Psychiatry, 55(11), 721–728. https://doi.org/10.1177/070674371005501106
doi: 10.1177/070674371005501106
pubmed: 21070700
Lunsky, Y., & Modi, M. (2018). Predictors of psychotropic polypharmacy among outpatients with psychiatric disorders and intellectual disability. Psychiatric Services, 69(2), 242–246. https://doi.org/10.1176/appi.ps.201700032
doi: 10.1176/appi.ps.201700032
pubmed: 29089006
Maddox, B. B., Crabbe, S., Beidas, R. S., Brookman-Frazee, L., Cannuscio, C. C., Miller, J. S., Nicolaidis, C., & Mandell, D. S. (2019). “I wouldn’t know where to start”: Perspectives from clinicians, agency leaders, and autistic adults on improving community mental health services for autistic adults. Autism, 24(4), 919–930. https://doi.org/10.1177/1362361319882227
doi: 10.1177/1362361319882227
pubmed: 31674198
pmcid: 7192780
Mazza, M. G., Rossetti, A., Crespi, G., & Clerici, M. (2020). Prevalence of co-occurring psychiatric disorders in adults and adolescents with intellectual disability: A systematic review and meta-analysis. Journal of Applied Research in Intellectual Disabilities, 33(2), 126–138. https://doi.org/10.1111/jar.12654
doi: 10.1111/jar.12654
pubmed: 31430018
McCarthy, J., Hemmings, C., Kravariti, E., Dworzynski, K., Holt, G., Bouras, N., & Tsakanikos, E. (2010). Challenging behavior and co-morbid psychopathology in adults with intellectual disability and autism spectrum disorders. Research in Developmental Disabilities, 31(2), 362–366. https://doi.org/10.1016/j.ridd.2009.10.009
doi: 10.1016/j.ridd.2009.10.009
pubmed: 19954927
McGill, P., Vanono, L., Clover, W., Smyth, E., Cooper, V., Hopkins, L., Barratt, N., Joyce, C., Henderson, K., Sekasi, S., Davis, S., & Deveau, R. (2018). Reducing challenging behaviour of adults with intellectual disabilities in supported accommodation: A cluster randomized controlled trial of setting-wide positive behaviour support. Research in Developmental Disabilities, 81, 143–154. https://doi.org/10.1016/j.ridd.2018.04.020
doi: 10.1016/j.ridd.2018.04.020
pubmed: 29752027
National Alliance on Mental Illness [NAMI]. (2022). Mental health by the numbers. Retrieved from https://www.nami.org/mhstats
Painter, J., Hastings, R., Ingham, B., Trevithick, L., & Roy, A. (2018). Associations between mental health problems and challenging behavior in adults with intellectual disabilities: A test of the behavioral equivalents hypothesis. Journal of Mental Health Research in Intellectual Disabilities, 11(2), 157–172. https://doi.org/10.1080/19315864.2018.1431747
doi: 10.1080/19315864.2018.1431747
Poppes, P., Van der Putten, A., & Vlaskamp, C. (2010). Frequency and severity of challenging behaviour in people with profound intellectual and multiple disabilities. Research in Developmental Disabilities, 31(6), 1269–1275. https://doi.org/10.1016/j.ridd.2010.07.017
doi: 10.1016/j.ridd.2010.07.017
pubmed: 20728304
R Core Team. (2013). R: A language and environment for statistical computing. R Foundation for Statistical Computing.
Ramerman, L., Hoekstra, P. J., & de Kuijper, G. (2018). Health-related quality of life in people with intellectual disability who use long-term antipsychotic drugs for challenging behaviour. Research in Developmental Disabilities, 75, 49–58. https://doi.org/10.1016/j.ridd.2018.02.011
doi: 10.1016/j.ridd.2018.02.011
pubmed: 29482036
Reichard, A., Haile, E., & Morris, A. (2019). Characteristics of Medicare beneficiaries with intellectual or developmental disabilities. Intellectual and Developmental Disabilities, 57(5), 405–420. https://doi.org/10.1352/1934-9556-57.5.405
doi: 10.1352/1934-9556-57.5.405
pubmed: 31568735
Report of the Independent Reviewer. (2021). Report of the independent reviewer on compliance with the settlement agreement United States v. Commonwealth of Virginia. Retrieved from https://dbhds.virginia.gov/assets/doc/settlement/indreview/211213-final-19th-report-to-the-court.pdf
Ricciardi, J. N. (2013). Co-occurring psychiatric disorders in individuals with intellectual disability. In D. D. Reed, D. F. DiGennaro Reed, & J. K. Luiselli (Eds.), Handbook of crisis intervention and developmental disabilities (pp. 213–243). Springer.
doi: 10.1007/978-1-4614-6531-7_13
Schalock, R. L., Luckasson, R., & Tassé, M. J. (2019). The contemporary view of intellectual and developmental disabilities: Implications for psychologists. Psicothema. https://doi.org/10.7334/psicothema2019.119
doi: 10.7334/psicothema2019.119
pubmed: 31292035
Scott, H. M., & Havercamp, S. M. (2014). Mental health for people with intellectual disability: The impact of stress and social support. American Journal on Intellectual and Developmental Disabilities, 119(6), 552–564. https://doi.org/10.1352/1944-7558-119.6.552
doi: 10.1352/1944-7558-119.6.552
pubmed: 25354124
Terlizzi, E. P., & Norris, T. (2021). Mental health treatment among adults: United States, 2020. NCHS Dara Brief, 419. Retrieved from https://www.cdc.gov/nchs/products/databriefs/db419.htm .
Thompson, J. R., Bryant, B., Schalock, R. L., Shogren, K. A., Tassé, M. J., Wehmeyer, M. L., Campbell, E. M., Craig, E. M., Hughes, C., & Rotholz, D. A. (2015). Supports intensity scale—Adult version: User’s manual. American Association on Intellectual and Developmental Disabilities.
Virginia Register of Regulations. (2019). Title 12. Health: Department of Medical Assistance Services, Chapter 122. Virginia Register of Regulations, 35 (12). Retrieved from http://register.dls.virginia.gov/details.aspx?id=7347 .
Wagner, J. B., Kim, M., & Tassé, M. J. (2019). Technology tools: Increasing our reach in national surveillance of intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 57(5), 463–475. https://doi.org/10.1352/1934-9556-57.5.463
doi: 10.1352/1934-9556-57.5.463
pubmed: 31568740
Whittle, E. L., Fisher, K. R., Reppermund, S., Lenroot, R., & Trollor, J. (2017). Barriers and enablers to accessing mental health services for people with intellectual disability: A scoping review. Journal of Mental Health Research in Intellectual Disabilities, 11(1), 69–102. https://doi.org/10.1080/19315864.2017.1408724
doi: 10.1080/19315864.2017.1408724