Recurrent, founder and hypomorphic variants contribute to the genetic landscape of Joubert syndrome.


Journal

Journal of medical genetics
ISSN: 1468-6244
Titre abrégé: J Med Genet
Pays: England
ID NLM: 2985087R

Informations de publication

Date de publication:
09 2023
Historique:
received: 24 05 2022
accepted: 08 01 2023
medline: 23 8 2023
pubmed: 15 2 2023
entrez: 14 2 2023
Statut: ppublish

Résumé

Joubert syndrome (JS) is a neurodevelopmental ciliopathy characterised by a distinctive mid-hindbrain malformation, the 'molar tooth sign'. Over 40 JS-associated genes are known, accounting for two-thirds of cases. While most variants are novel or extremely rare, we report on 11 recurring variants in seven genes, including three known 'founder variants' in the Ashkenazi Jewish, Hutterite and Finnish populations. We evaluated variant frequencies in ~550 European patients with JS and compared them with controls (>15 000 Italian plus gnomAD), and with an independent cohort of ~600 JS probands from the USA. All variants were markedly enriched in the European JS cohort compared with controls. When comparing allele frequencies in the two JS cohorts, the Ashkenazim founder variant ( This study contributes to understand the complex genetic landscape of JS, explain its variable prevalence in distinct geographical areas and characterise two recurrent hypomorphic variants.

Sections du résumé

BACKGROUND
Joubert syndrome (JS) is a neurodevelopmental ciliopathy characterised by a distinctive mid-hindbrain malformation, the 'molar tooth sign'. Over 40 JS-associated genes are known, accounting for two-thirds of cases.
METHODS
While most variants are novel or extremely rare, we report on 11 recurring variants in seven genes, including three known 'founder variants' in the Ashkenazi Jewish, Hutterite and Finnish populations. We evaluated variant frequencies in ~550 European patients with JS and compared them with controls (>15 000 Italian plus gnomAD), and with an independent cohort of ~600 JS probands from the USA.
RESULTS
All variants were markedly enriched in the European JS cohort compared with controls. When comparing allele frequencies in the two JS cohorts, the Ashkenazim founder variant (
CONCLUSION
This study contributes to understand the complex genetic landscape of JS, explain its variable prevalence in distinct geographical areas and characterise two recurrent hypomorphic variants.

Identifiants

pubmed: 36788019
pii: jmg-2022-108725
doi: 10.1136/jmg-2022-108725
pmc: PMC10447400
doi:

Types de publication

Journal Article Research Support, N.I.H., Extramural Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

885-893

Subventions

Organisme : NICHD NIH HHS
ID : P50 HD103524
Pays : United States
Organisme : NINDS NIH HHS
ID : R01 NS064077
Pays : United States
Organisme : NICHD NIH HHS
ID : U54 HD083091
Pays : United States
Organisme : NICHD NIH HHS
ID : R01 HD100730
Pays : United States

Informations de copyright

© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

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Auteurs

Valentina Serpieri (V)

Neurogenetics Research Centre, IRCCS Mondino Foundation, Pavia, Italy.

Giulia Mortarini (G)

Department of Molecular Medicine, University of Pavia, Pavia, Italy.

Hailey Loucks (H)

Department of Pediatrics, University of Washington, Seattle, Washington, USA.

Tommaso Biagini (T)

Bioinformatics Unit, Fondazione IRCCS Casa Sollievo della Sofferenza, S. Giovanni Rotondo, Foggia, Italy.

Alessia Micalizzi (A)

Laboratory of Medical Genetics, IRCCS Bambino Gesù Children's Hospital, Rome, Italy.

Ilaria Palmieri (I)

Neurogenetics Research Centre, IRCCS Mondino Foundation, Pavia, Italy.

Jennifer C Dempsey (JC)

Department of Pediatrics, University of Washington, Seattle, Washington, USA.

Fulvio D'Abrusco (F)

Department of Molecular Medicine, University of Pavia, Pavia, Italy.

Concetta Mazzotta (C)

Department of Molecular Medicine, University of Pavia, Pavia, Italy.

Roberta Battini (R)

Department of Neuroscience, IRCCS Stella Maris Foundation, Pisa, Italy.
Department of Clinical and Experimental Medicine, University of Pisa, Pisa, Italy.

Enrico Silvio Bertini (ES)

Unit of Neuromuscular and Neurodegenerative Disorders, IRCCS Ospedale Pediatrico Bambino Gesù, Rome, Italy.

Eugen Boltshauser (E)

Departement of Pediatric Neurology, University Children's Hospital Zürich, Zurich, Switzerland.

Renato Borgatti (R)

Department of Brain and Behavioral Sciences, University of Pavia, Pavia, Italy.
Child Neurology and Psychiatry Unit, IRCCS Mondino Foundation, Pavia, Italy.

Knut Brockmann (K)

Interdisciplinary Pediatric Centre for Children with Developmental Disabilities and Severe Chronic Disorders, University Medical Centre, Georg August University, Göttingen, Germany.

Stefano D'Arrigo (S)

Department of Pediatric Neuroscience, Fondazione IRCCS Istituto Neurologico "C Besta", Milan, Italy.

Nardo Nardocci (N)

Department of Pediatric Neuroscience, Fondazione IRCCS Istituto Neurologico "C Besta", Milan, Italy.

Rita Fischetto (R)

Clinical Genetics Unit, Department of Pediatric Medicine, Giovanni XXIII Children's Hospital, Bari, Italy.

Emanuele Agolini (E)

Laboratory of Medical Genetics, IRCCS Bambino Gesù Children's Hospital, Rome, Italy.

Antonio Novelli (A)

Laboratory of Medical Genetics, IRCCS Bambino Gesù Children's Hospital, Rome, Italy.

Alfonso Romano (A)

Section of Pediatrics, Department of Medical Translational Sciences, University of Naples Federico II, Naples, Italy.

Romina Romaniello (R)

Child Neurology and Psychiatry Unit, IRCCS Mondino Foundation, Pavia, Italy.

Franco Stanzial (F)

Genetic Counseling Service, Department of Pediatrics, Regional Hospital of Bozen, Bozen, Italy.

Sabrina Signorini (S)

Child Neurology and Psychiatry Unit, IRCCS Mondino Foundation, Pavia, Italy.

Pietro Strisciuglio (P)

Section of Pediatrics, Department of Medical Translational Sciences, University of Naples Federico II, Naples, Italy.

Simone Gana (S)

Neurogenetics Research Centre, IRCCS Mondino Foundation, Pavia, Italy.

Tommaso Mazza (T)

Bioinformatics Unit, Fondazione IRCCS Casa Sollievo della Sofferenza, S. Giovanni Rotondo, Foggia, Italy.

Dan Doherty (D)

Department of Pediatrics, University of Washington, Seattle, Washington, USA.

Enza Maria Valente (EM)

Neurogenetics Research Centre, IRCCS Mondino Foundation, Pavia, Italy enzamaria.valente@unipv.it.
Department of Molecular Medicine, University of Pavia, Pavia, Italy.

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