The experience of families in face of the finiteness of their children in the process of adopting palliative care.


Journal

Revista gaucha de enfermagem
ISSN: 1983-1447
Titre abrégé: Rev Gaucha Enferm
Pays: Brazil
ID NLM: 8504882

Informations de publication

Date de publication:
2023
Historique:
received: 08 07 2022
accepted: 11 07 2022
entrez: 15 3 2023
pubmed: 16 3 2023
medline: 21 3 2023
Statut: epublish

Résumé

To reveal the experience of family members after learning their child would adopt palliative care. Phenomenological research on Heidegger's perspective. The participants were eleven family members of children who were recommended palliative care in the Pediatric Intensive Care Unit from a university hospital in southern Brazil. The statements were obtained in a semi-structured interview, from January to November/2017, and submitted to Heidegger's theoretical-philosophical analysis. Research approved by the institution's Ethical Committee. The communication of palliative care triggers the perception of the child's existencial facticity in the Family, revealing reactions explained in the thematic dimensions: "Coping with the finiteness of the child when confronted with the proposal of adopting palliative care" and "The need for compassionate and attentive care". Phenomenology allows us to understand the parent's existential purpose. An understanding perspective can help interdisciplinary teams to communicate the adoption of palliative care in a sensitive and ethical way, focusing on the best interest of the child.

Identifiants

pubmed: 36921141
pii: S1983-14472022000101009
doi: 10.1590/1983-1447.2022.20220174.en
pii:
doi:

Types de publication

Journal Article

Langues

eng por

Pagination

e20220174

Auteurs

Miriam Neis (M)

Universidade Federal do Rio Grande do Sul (UFRGS), Escola de Enfermagem, Programa de Pós-Graduação em Enfermagem. Porto Alegre, Rio Grande do Sul, Brazil.

Helena Becker Issi (HB)

Universidade Federal do Rio Grande do Sul (UFRGS), Escola de Enfermagem, Departamento de Enfermagem Materno-Infantil. Porto Alegre, Rio Grande do Sul, Brazil.

Maria da Graça Corso da Motta (MDGCD)

Universidade Federal do Rio Grande do Sul (UFRGS), Escola de Enfermagem, Programa de Pós-Graduação em Enfermagem. Porto Alegre, Rio Grande do Sul, Brazil.

Cristianne Maria Famer Rocha (CMF)

Universidade Federal do Rio Grande do Sul (UFRGS), Escola de Enfermagem, Programa de Pós-Graduação em Enfermagem. Porto Alegre, Rio Grande do Sul, Brazil.

Paulo Roberto Antonacci Carvalho (PRA)

Universidade Federal do Rio Grande do Sul (UFRGS), Faculdade de Medicina, Programa de Pós-Graduação em Saúde da Criança e do Adolescente. Porto Alegre, Rio Grande do Sul, Brazil.

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Classifications MeSH