Prevalence and trends for Aboriginal and Torres Strait Islander children living with cerebral palsy: A birds-eye view.


Journal

Developmental medicine and child neurology
ISSN: 1469-8749
Titre abrégé: Dev Med Child Neurol
Pays: England
ID NLM: 0006761

Informations de publication

Date de publication:
11 2023
Historique:
revised: 16 03 2023
received: 02 11 2022
accepted: 17 03 2023
medline: 3 10 2023
pubmed: 6 5 2023
entrez: 6 5 2023
Statut: ppublish

Résumé

To provide a birds-eye view of the trends of cerebral palsy (CP) for Australian Aboriginal and Torres Strait Islander children and young adults. Data were obtained for this population-based observational study from the Australian Cerebral Palsy Register (ACPR), birth years 1995 to 2014. The Indigenous status of children was classified by maternal Aboriginal and Torres Strait Islander or non-Indigenous status. Descriptive statistics were calculated for socio-demographic and clinical characteristics. Prenatal/perinatal and post-neonatal birth prevalence was calculated per 1000 live births and per 10 000 live births respectively, and Poisson regression used to assess trends. Data from the ACPR were available for 514 Aboriginal and Torres Strait Islander individuals with CP. Most children could walk independently (56%) and lived in urban or regional areas (72%). One in five children lived in socioeconomically disadvantaged remote/very remote areas. The birth prevalence of prenatal/perinatal CP declined after the mid-2000s from a high of 4.8 (95% confidence interval 3.2-7.0) to 1.9 per 1000 live births (95% confidence interval 1.1-3.2) (2013-2014), with marked declines observed for term births and teenage mothers. The birth prevalence of CP in Aboriginal and Torres Strait Islander children in Australia declined between the mid-2000s and 2013 to 2014. This birds-eye view provides key stakeholders with new knowledge to advocate for sustainable funding for accessible, culturally safe, antenatal and CP services. Birth prevalence of cerebral palsy (CP) is beginning to decline for Aboriginal and Torres Strait Islanders. Recent CP birth prevalence for Aboriginal and Torres Strait Islanders is 1.9 per 1000 live births. Most children with CP live in more populated areas rather than remote or very remote areas. One in five Aboriginal and Torres Strait Islander children with CP live in socioeconomically disadvantaged remote areas.

Identifiants

pubmed: 37147854
doi: 10.1111/dmcn.15617
doi:

Types de publication

Observational Study Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1475-1485

Commentaires et corrections

Type : CommentIn

Informations de copyright

© 2023 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press.

Références

Dev Med Child Neurol. 2016 Feb;58 Suppl 2:60-5
pubmed: 26857827
Med J Aust. 2020 Jul;213(2):79-85
pubmed: 32608051
SSM Popul Health. 2020 Aug 06;12:100637
pubmed: 32923575
BMC Public Health. 2020 Apr 6;20(1):459
pubmed: 32252712
Dev Med Child Neurol. 2019 Feb;61(2):186-193
pubmed: 30187914
Health Care Women Int. 2014;35(10):1216-26
pubmed: 23980668
J Bioeth Inq. 2021 Mar;18(1):83-92
pubmed: 33443724
Dev Med Child Neurol. 2016 Feb;58 Suppl 2:50-6
pubmed: 26777873
EClinicalMedicine. 2019 Jun 24;12:43-51
pubmed: 31388662
BMC Health Serv Res. 2020 Apr 21;20(1):337
pubmed: 32316970
Med J Aust. 2016 Oct 17;205(8):374-379
pubmed: 27736626
JAMA. 2002 Sep 18;288(11):1357-63
pubmed: 12234229
Dev Med Child Neurol. 2023 Nov;65(11):1475-1485
pubmed: 37147854
JAMA Pediatr. 2021 Aug 1;175(8):846-858
pubmed: 33999106
Dev Med Child Neurol. 2019 May;61(5):586-592
pubmed: 30221759
Dev Med Child Neurol. 2016 Feb;58 Suppl 2:36-42
pubmed: 26781773
JAMA Pediatr. 2017 Sep 1;171(9):897-907
pubmed: 28715518
Dev Med Child Neurol. 1997 Apr;39(4):214-23
pubmed: 9183258
Aust Fam Physician. 2016 Oct;45(10):712-717
pubmed: 27695719
Women Birth. 2015 Sep;28(3):236-45
pubmed: 25845486
Aust N Z J Public Health. 2020 Dec;44(6):449-450
pubmed: 33104287
Dev Med Child Neurol. 2022 Sep;64(9):1114-1122
pubmed: 35261024
Health Place. 2011 Sep;17(5):1170-3
pubmed: 21727022

Auteurs

Tanya Martin (T)

School of Nursing and Midwifery, The University of Sydney, Camperdown, New South Wales, Australia.

Sarah McIntyre (S)

Cerebral Palsy Alliance/Research Institute, Specialty of Child & Adolescent Health, The University of Sydney, Camperdown, New South Wales, Australia.

Emma Waight (E)

Cerebral Palsy Alliance/Research Institute, Specialty of Child & Adolescent Health, The University of Sydney, Camperdown, New South Wales, Australia.

Gareth Baynam (G)

Department of Health, Western Australian Register of Developmental Anomalies, Government of Western Australia, Perth, Western Australia, Australia.

Linda Watson (L)

Department of Health, Western Australian Register of Developmental Anomalies, Government of Western Australia, Perth, Western Australia, Australia.

Katherine Langdon (K)

Perth Children's Hospital, Perth, Western Australia, Australia.

Susan Woolfenden (S)

Discipline of Paediatrics, School of Clinical Medicine, UNSW Sydney, Sydney, New South Wales, Australia.
Sydney Institute of Women, Children and their Families, Sydney Local Health District, Sydney, New South Wales, Australia.

Hayley Smithers-Sheedy (H)

Cerebral Palsy Alliance/Research Institute, Specialty of Child & Adolescent Health, The University of Sydney, Camperdown, New South Wales, Australia.

Juanita Sherwood (J)

Jumbunna Institute for Indigenous Education and Research, University of Technology Sydney, Sydney, New South Wales, Australia.

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