Tacit knowledge in dyads of persons with profound intellectual and multiple disabilities and their caregivers: An interpretative literature study.
PIMD
care
caregiving dyads
dementia
infants
tacit knowledge
Journal
Journal of applied research in intellectual disabilities : JARID
ISSN: 1468-3148
Titre abrégé: J Appl Res Intellect Disabil
Pays: England
ID NLM: 9613616
Informations de publication
Date de publication:
Sep 2023
Sep 2023
Historique:
revised:
16
03
2023
received:
08
07
2022
accepted:
08
06
2023
medline:
23
10
2023
pubmed:
21
6
2023
entrez:
20
6
2023
Statut:
ppublish
Résumé
Caring for persons with profound intellectual and multiple disabilities (PIMD) demands specific expertise. Tacit knowledge seems to play an important role, but little is known about its nature, including what is necessary for its development and transfer. To gain understanding of the nature and development of tacit knowledge between persons with PIMD and their caregivers. We conducted an interpretative synthesis of literature on tacit knowledge in caregiving dyads with persons with PIMD, persons with dementia or infants. Twelve studies were included. Tacit knowledge is about caregivers and care-recipients becoming sensitive and responsive to each other's cues and together crafting care routines. Learning takes place in a constant process of action and response that transforms those involved. Building tacit knowledge together is necessary for persons with PIMD to learn to recognise and express their needs. Suggestions are made for ways to facilitate its development and transfer.
Sections du résumé
BACKGROUND
BACKGROUND
Caring for persons with profound intellectual and multiple disabilities (PIMD) demands specific expertise. Tacit knowledge seems to play an important role, but little is known about its nature, including what is necessary for its development and transfer.
AIM
OBJECTIVE
To gain understanding of the nature and development of tacit knowledge between persons with PIMD and their caregivers.
METHOD
METHODS
We conducted an interpretative synthesis of literature on tacit knowledge in caregiving dyads with persons with PIMD, persons with dementia or infants. Twelve studies were included.
RESULTS
RESULTS
Tacit knowledge is about caregivers and care-recipients becoming sensitive and responsive to each other's cues and together crafting care routines. Learning takes place in a constant process of action and response that transforms those involved.
CONCLUSION
CONCLUSIONS
Building tacit knowledge together is necessary for persons with PIMD to learn to recognise and express their needs. Suggestions are made for ways to facilitate its development and transfer.
Types de publication
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
966-977Subventions
Organisme : ZonMw
ID : 639003919
Pays : Netherlands
Informations de copyright
© 2023 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd.
Références
André, M., Borgquist, L., Foldevi, M., & Mölstad, S. (2002). Asking for ‘rules of thumb’: A way to discover tacit knowledge in general practice. Family Practice, 19, 617-622. https://doi.org/10.1093/fampra/19.6.617
Apesoa-Varano, E. C. (2020). “I know best”: women caring for kin with dementia. Social Science & Medicine, 256, 113026. https://doi.org/10.1016/j.socscimed.2020.113026
Athanasiou, T., & Darzi, A. (2011). Evidence synthesis in healthcare: A practical handbook for clinicians. Springer Science & Business Media.
Benner, P. (2005). Skill acquisition and clinical judgement in nursing practice: Towards expertise and practical wisdom. In Y. Higgs (Ed.), Practice wisdom (pp. 225-240). Brill. https://doi.org/10.1163/9789004410497_019
Benner, P., & Tanner, C. (1987). How expert nurses use intuition. American Journal of Nursing, 87, 23-31.
Börjesson, U., Bengtsson, S., & Cedersund, E. (2014). “You have to have a certain feeling for this work” exploring tacit knowledge in elder care. SAGE Open, 4(2), 2158244014534829. https://doi.org/10.1177/2158244014534829
Carter, B., Arnott, J., Simons, J., & Bray, L. (2017). Developing a sense of knowing and acquiring the skills to manage pain in children with profound cognitive impairments: Mothers' perspectives. Pain Research and Management, 2017, 2514920. https://doi.org/10.1155/2017/2514920
Creswell, J. W., & Poth, C. N. (2016). Qualitative inquiry and research design: Choosing among five approaches. Sage Publications.
Daelman, M. (2003). Een analyse van de presymbolische communicatie bij blinde kinderen met een meervoudige handicap. Een aanzet tot orthopedagogisch handelen [An analysis of presymbolic communication in blind children with a multiple impairment. A starting point for orthopedagogical practice]. (Unpublished doctoral dissertation). Katholieke Universiteit Leuven. Retrieved January 31, 2019, by mail correspondence.
Davies, D., & Evans, L. (2001). Assessing pain in people with profound learning disabilities. British Journal of Nursing, 10(8), 513-516. https://doi.org/10.12968/bjon.2001.10.8.5314
Despret, V. (2004). The body we care for: Figures of anthropo-zoo-genesis. Body & Society, 10, 111-134. https://doi.org/10.1177/1357034X04042938
Dixon-Woods, M., Agarwal, S., Jones, D., Young, B., & Sutton, A. (2005). Synthesising qualitative and quantitative evidence: A review of possible methods. Journal of Health Services Research & Policy, 10, 45-53. https://doi.org/10.1177/135581960501000110
Dombroski, K. (2018). Learning to be affected: Maternal connection, intuition and “elimination communication”. Emotion, Space and Society, 26, 72-79. https://doi.org/10.1016/j.emospa.2017.09.004
Evans, R., & Collins, H. (2008). Expertise: From attribute to attribution and Back again? In E. J. Hackett, O. Amsterdamska, M. Lynch, & J. Wajcman (Eds.), The Handbook of Science and Technology Studies (pp. 609-630). MIT Press.
Forster, S., & Iacono, T. (2014). The nature of affect attunement used by disability support workers interacting with adults with profound intellectual and multiple disabilities. Journal of Intellectual Disability Research, 58(12), 1105-1120.
Friedman, L. H., & Bernell, S. L. (2006). The importance of team level tacit knowledge and related characteristics of high-performing health care teams. Health Care Management Review, 31, 223-230.
Gardner, M. (2014). Maternal caregiving and strategies used by inexperienced mothers of young infants with complex health conditions. Journal of Obstetric, Gynecologic & Neonatal Nursing, 43, 813-823. https://doi.org/10.1111/1552-6909.12508
Gerrity, P. L. (1987). Perception in nursing: The value of intuition. Holistic Nursing Practice, 1, 63-71.
Gourlay, S. (2002). Tacit knowledge, tacit knowing, or behaving? Paper presented at the 3rd European Organizaional knowledge, Learning and Capabilities Conference, Athens. https://eprints.kingston.ac.uk/id/eprint/2293/1/Gourlay%202002%20tacit%20knowledge.pdf
Gourlay, S. (2006). Towards conceptual clarity for ‘tacit knowledge’: A review of empirical studies. Knowledge Management Research & Practice, 4, 60-69. https://doi.org/10.1057/palgrave.kmrp.8500082
Greenhalgh, J., Flynn, R., Long, A. F., & Tyson, S. (2008). Tacit and encoded knowledge in the use of standardised outcome measures in multidisciplinary team decision making: A case study of in-patient neurorehabilitation. Social Science & Medicine, 67(1), 183-194.
Heiberg Engel, P. J. (2008). Tacit knowledge and visual expertise in medical diagnostic reasoning: Implications for medical education. Medical Teacher, 30(7), e184-e188. https://doi.org/10.1080/01421590802144260
Hellner, B. M., & Norberg, A. (1994). Intuition: Two caregivers' descriptions of how they provide severely demented patients with loving care. The International Journal of Aging and Human Development, 38(4), 327-338.
Holste, J., & Fields, D. (2010). Trust and tacit knowledge sharing and use [Empirical Study; Quantitative Study]. Journal of Knowledge Management, 14(1), 128-140. https://doi.org/10.1108/13673271011015615
Hostyn, I., & Maes, B. (2009). Interaction between persons with profound intellectual and multiple disabilities and their partners: A literature review. Journal of Intellectual and Developmental Disability, 34, 296-312. https://doi.org/10.3109/13668250903285648
Hostyn, I., & Maes, B. (2013). Interaction with a person with profound intellectual and multiple disabilities: A case study in dialogue with an experienced staff member. Journal of Intellectual & Developmental Disability, 38, 189-204. https://doi.org/10.3109/13668250903285648
Hostyn, I., Petry, K., Lambrechts, G., & Maes, B. (2011). Evaluating the quality of the interaction between persons with profound intellectual and multiple disabilities and direct support staff: A preliminary application of three observation scales from parent-infant research. Journal of Applied Research in Intellectual Disabilities, 24, 407-420. https://doi.org/10.1111/j.1468-3148.2010.00618.x
King, L., & Appleton, J. V. (1997). Intuition: A critical review of the research and rhetoric. Journal of Advanced Nursing, 26, 194-202. https://doi.org/10.1046/j.1365-2648.1997.1997026194.x
Kontos, P. C., & Naglie, G. (2009). Tacit knowledge of caring and embodied selfhood. Sociology of Health & Illness, 31, 688-704. https://doi.org/10.1111/j.1467-9566.2009.01158.x
Kruithof, K., Willems, D., van Etten-Jamaludin, F., & Olsman, E. (2020). Parents' knowledge of their child with profound intellectual and multiple disabilities: An interpretative synthesis. Journal of Applied Research in Intellectual Disabilities, 33, 1141-1150. https://doi.org/10.1111/jar.12740
Latour, B. (2004). How to talk about the body? The normative dimension of science studies. Body & Society, 10, 205-229. https://doi.org/10.1177/1357034X04042943
MacGregor, L. (2021). Mingled bodies and voices: Maternal reflections on caregiver expertise and intellectual disability. Journal of Intellectual Disabilities, 26(3), 594-602. https://doi.org/10.1177/17446295211009339
Nakken, H., & Vlaskamp, C. (2007). A need for a taxonomy for profound intellectual and multiple disabilities. Journal of Policy and Practice in Intellectual Disabilities, 4(2), 83-87. https://doi.org/10.1111/j.1741-1130.2007.00104.x
Nieuwenhuijse, A., Willems, D., van Goudoever, J., & Olsman, E. (2020). The perspectives of professional caregivers on quality of life of persons with profound intellectual and multiple disabilities: A qualitative study. International Journal of Developmental Disabilities, 68, 190-197. https://doi.org/10.1080/20473869.2020.1737469
Ogawa, M., Nishida, S., & Shirai, H. (2017). A qualitative study to explore ways to observe results of engaging activities in clients with dementia. Occupational Therapy International, 2017, 7513875.
Olsman, E., Nieuwenhuijse, A. M., & Willems, D. L. (2021). Witnessing quality of life of persons with profound intellectual and multiple disabilities. A practical-philosophical approach. Health Care Analysis, 29, 144-153. https://doi.org/10.1007/s10728-021-00428-y
Olsson, C. (2004). Dyadic interaction with a child with multiple disabilities: A system theory perspective on communication. Augmentative and Alternative Communication, 20(4), 228-242. https://doi.org/10.1080/07434610400005622
Palese, A., Bressan, V., Kasa, T., Meri, M., Hayter, M., & Watson, R. (2018). Interventions maintaining eating Independence in nursing home residents: A multicentre qualitative study. BMC Geriatrics, 18(1), 1-10.
Patel, V. L., Arocha, J. F., & Kaufman, D. R. (1999). Expertise and tacit knowledge in medicine. In R. J. Sternberg & J. A. Horvath (Eds.), Tacit knowledge in professional practice: Researcher and practitioner perspectives (1st ed., pp. 75-99). Psychology Press. https://doi.org/10.4324/9781410603098
Perry, M. A. (2000). Reflections on intuition and expertise. Journal of Clinical Nursing, 9, 137-145. https://doi.org/10.1046/j.1365-2702.2000.00326.x
Phelvin, A. (2013). Getting the message: Intuition and reflexivity in professional interpretations of non-verbal behaviours in people with profound learning disabilities. British Journal of Learning Disabilities, 41(1), 31-37. https://doi.org/10.1111/j.1468-3156.2011.00719.x
Plochg, T., & Van Zwieten, M. C. B. (2007). Kwalitatief onderzoek. In T. Plochg, R. E. Juttmann, N. S. Klazinga, & J. P. Mackenbach (Eds.), Handboek gezondheidszorgonderzoek (pp. 77-93). Bohn Stafleu van Loghum.
Polanyi, M. (2009). The tacit dimension. University of Chicago Press. https://doi.org/10.1007/s11016-010-9328-0
Pope, C., Smith, A., Goodwin, D., & Mort, M. (2003). Passing on tacit knowledge in anaesthesia: A qualitative study. Medical Education, 37, 650-655. https://doi.org/10.1046/j.1365-2923.2003.01581.x
Reid, J. E. (2014). Nurturing the novice mother: A grounded theory of'support'and its impact on building confidence with breastfeeding and parenting for first-time mothers. PQDT-Global. https://researchdirect.westernsydney.edu.au/islandora/object/uws:32230/datastream/PDF/view
Reinders, H. (2010). The importance of tacit knowledge in practices of care. Journal of Intellectual Disability Research, 54, 28-37. https://doi.org/10.1111/j.1365-2788.2009.01235.x
Rew, L. (2000). Acknowledging intuition in clinical decision making. Journal of Holistic Nursing, 18(94-108), 109-113. https://doi.org/10.1177/089801010001800202
Sandvoll, A. M. (2017). Tacit practice in care homes. International Practice Development Journal, 7, 1-13.
Schutz, S. (2007). Reflection and reflective practice. Community Practitioner, 80(9), 26-29.
Smith, A., Goodwin, D., Mort, M., & Pope, C. (2003). Expertise in practice: An ethnographic study exploring acquisition and use of knowledge in anaesthesia. British Journal of Anaesthesia, 91, 319-328. https://doi.org/10.1093/bja/aeg180
Stolper, E., van Bokhoven, M., Houben, P., Van Royen, P., van de Wiel, M., van der Weijden, T., & Jan Dinant, G. (2009). The diagnostic role of gut feelings in general practice a focus group study of the concept and its determinants. BMC Family Practice, 10, 1-9. https://doi.org/10.1186/1471-2296-10-17
Stolper, E., Van de Wiel, M., Van Royen, P., Van Bokhoven, M., Van der Weijden, T., & Dinant, G. J. (2011). Gut feelings as a third track in general practitioners' diagnostic reasoning. Journal of General Internal Medicine, 26, 197-203. https://doi.org/10.1007/s11606-010-1524-5
Stolper, E., van Royen, P., & Dinant, G. J. (2010). The ‘sense of alarm’ (‘gut feeling’) in clinical practice. A survey among European general practitioners on recognition and expression. The European Journal of General Practice, 16, 72-74. https://doi.org/10.3109/13814781003653424
Stolper, E., Van Royen, P., Van de Wiel, M., Van Bokhoven, M., Houben, P., Van der Weijden, T., & Jan Dinant, G. (2009). Consensus on gut feelings in general practice. BMC Family Practice, 10(1), 1-6. https://doi.org/10.1186/1471-2296-10-66
van Dam, L., & Roemer, M. H. P. (2004). Verstaanbaar maken: communicatie met mensen met een zeer ernstige verstandelijke (meervoudige) handicap: inventarisatie en overdracht van ervaringskennis. Retrieved from: Verstaanbaar maken: communicatie met mensen met een zeer ernstige verstandelijke (meervoudige) handicap: inventarisatie en overdracht van ervaringskennis-Maastricht University.
Watson, J., Wilson, E., & Hagiliassis, N. (2017). Supporting end of life decision making: Case studies of relational closeness in supported decision making for people with severe or profound intellectual disability. Journal of Applied Research in Intellectual Disabilities, 30(6), 1022-1034. https://doi.org/10.1111/jar.12393
Wilder, J., & Granlund, M. (2003). Behaviour style and interaction between seven children with multiple disabilities and their caregivers. Child: Care, Health and Development, 29(6), 559-567. https://doi.org/10.1046/j.1365-2214.2003.00377.x
Zaal-Schuller, I., De Vos, M., Ewals, F., Van Goudoever, J., & Willems, D. (2016). End-of-life decision-making for children with severe developmental disabilities: The parental perspective. Research in Developmental Disabilities, 49, 235-246. https://doi.org/10.1016/j.ridd.2015.12.006