Associations of Home Monitoring Data to Interventional Catheterization for Infants with Recurrent Coarctation of the Aorta and Hypoplastic Left Heart Syndrome.
Cardiac catheterization
Coarctation of the aorta
Hypoplastic left heart syndrome
Interstage monitoring
Journal
Pediatric cardiology
ISSN: 1432-1971
Titre abrégé: Pediatr Cardiol
Pays: United States
ID NLM: 8003849
Informations de publication
Date de publication:
Oct 2023
Oct 2023
Historique:
received:
08
03
2023
accepted:
26
06
2023
medline:
18
8
2023
pubmed:
8
7
2023
entrez:
8
7
2023
Statut:
ppublish
Résumé
The post-Norwood interstage period for infants with hypoplastic left heart syndrome is a high-risk time with 10-20% of infants having a complication of recurrent coarctation of the aorta (RCoA). Many interstage programs utilize mobile applications allowing caregivers to submit home physiologic data and videos to the clinical team. This study aimed to investigate if caregiver-entered data resulted in earlier identification of patients requiring interventional catheterization for RCoA. Retrospective home monitoring data were extracted from five high-volume Children's High Acuity Monitoring Program®-affiliated centers (defined as contributing > 20 patients to the registry) between 2014 and 2021 after IRB approval. Demographics and caregiver-recorded data evaluated include weight, heart rate (HR), oxygen saturation (SpO
Identifiants
pubmed: 37421465
doi: 10.1007/s00246-023-03224-8
pii: 10.1007/s00246-023-03224-8
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
1462-1470Informations de copyright
© 2023. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.
Références
Ghanayem NS, Hoffman GM, Mussatto KA et al (2003) Home surveillance program prevents interstage mortality after the Norwood procedure. J Thorac Cardiovasc Surg 126(5):1367–1375
doi: 10.1016/S0022-5223(03)00071-0
pubmed: 14666008
Hehir DA, Dominguez TE, Ballweg JA et al (2008) Risk factors for interstage death after stage 1 reconstruction of hypoplastic left heart syndrome and variants. J Thorac Cardiovasc Surg 136(1):94-99.e1-e3
doi: 10.1016/j.jtcvs.2007.12.012
pubmed: 18603060
Schidlow D, Anderson JB, Klitzner TS, JCCHD National Pediatric Cardiology Quality Improvement Collaborative et al (2011) Variation in interstage outpatient care after the Norwood procedure: a report from the Joint Council on Congenital Heart Disease National Quality Improvement Collaborative. Congenit Heart Dis 6(2):98–107
doi: 10.1111/j.1747-0803.2011.00509.x
pubmed: 21426523
Hill KD, Rhodes JF, Aiyagari R et al (2013) Intervention for recoarctation in the single ventricle reconstruction trial: incidence, risk, and outcomes. Circulation 128(9):954–961. https://doi.org/10.1161/CIRCULATIONAHA.112.000488
doi: 10.1161/CIRCULATIONAHA.112.000488
pubmed: 23864006
Rudd NA, Frommelt MA, Tweddell JS et al (2014) Improving interstage survival after Norwood operation: outcomes from 10 years of home monitoring. J Thorac Cardiovasc Surg 148(4):1540–1547
doi: 10.1016/j.jtcvs.2014.02.038
pubmed: 24667026
Shirali G, Erickson L, Apperson J et al (2016) Harnessing teams and technology to improve outcomes in infants with single ventricle. Circ Cardiovasc Qual Outcomes 9(3):303–311. https://doi.org/10.1161/CIRCOUTCOMES.115.002452
doi: 10.1161/CIRCOUTCOMES.115.002452
pubmed: 27166202
Bingler M, Erickson LA, Reid KJ et al (2018) Interstage outcomes in infants with single ventricle heart disease comparing home monitoring technology to three-ring binder documentation: a randomized crossover study. World J Pediatr Congenit Heart Surg 9(3):305–314. https://doi.org/10.1177/2150135118762401
doi: 10.1177/2150135118762401
pubmed: 29692236
Harris CR, Millman KJ, van der Walt SJ et al (2020) Array programming with NumPy. Nature 585:357–362. https://doi.org/10.1038/s41586-020-2649-2
doi: 10.1038/s41586-020-2649-2
pubmed: 32939066
pmcid: 7759461
Christ M, Braun N, Neuffer J, Kempa-Liehr AW (2018) Time series feature extraction on the basis of scalable hypothesis tests (tsfresh–a python package). Neurocomputing 307:72–77
doi: 10.1016/j.neucom.2018.03.067
Bates D, Mächler M, Bolker B, Walker S (2015) Fitting linear mixed-effects models using lme4. J Stat Softw 67(1):1–48. https://doi.org/10.18637/jss.v067.i01
doi: 10.18637/jss.v067.i01
Rudd NA, Ghanayem NS, Hill GD, Lambert LM, Mussatto KA, Nieves JA, Robinson S, Shirali G, Steltzer MM, Uzark K, Pike NA, the American Heart Association Council on Cardiovascular and Stroke Nursing, Council on Lifelong Congenital Heart Disease and Heart Health in the Young, Council on Arteriosclerosis, Thrombosis and Vascular Biology; Council on Clinical Cardiology, Council on Lifestyle and Cardiometabolic Health (2020) Interstage home monitoring for infants with single ventricle heart disease: education and management: a scientific statement from the American heart association. J Am Heart Assoc 9(16):e014548. https://doi.org/10.1161/JAHA.119.014548
doi: 10.1161/JAHA.119.014548
pubmed: 32777961
pmcid: 7660817
Whiteside W, Hancock HS, Pasquali SK, Yu S, Armstrong AK, Menchaca A, Hadley A, Hirsch-Romano J (2016) Recurrent coarctation after neonatal univentricular and biventricular norwood-type arch reconstruction. Ann Thorac Surg 102(6):2087–2094. https://doi.org/10.1016/j.athoracsur.2016.04.099
doi: 10.1016/j.athoracsur.2016.04.099
pubmed: 27353483
Rusin CG, Acosta SI, Vu EL, Ahmed M, Brady KM, Penny DJ (2021) Automated prediction of cardiorespiratory deterioration in patients with single ventricle. J Am Coll Cardiol 77(25):3184–3192. https://doi.org/10.1016/j.jacc.2021.04.072
doi: 10.1016/j.jacc.2021.04.072
pubmed: 34167643
Aly DM, Erickson LA, Hancock H, Apperson JW, Gaddis M, Shirali G, Goudar S (2021) Ability of video telemetry to predict unplanned hospital admissions for single ventricle infants. J Am Heart Assoc 10(16):e020851. https://doi.org/10.1161/JAHA.121.020851
doi: 10.1161/JAHA.121.020851
pubmed: 34365801
pmcid: 8475020
Erickson, L.A. (2020). A descriptive correlational study of rate and determinants of parental mHealth adherence to symptom home monitoring for infants with congenital heart disease during the single ventricle interstage period: The DOMAIN study. Published Dissertation in Nursing from the University of Missouri Kansas City via Proquest MoSpace. https://hdl.handle.net/10355/73993