The Weariness of Hoping: Synchronizing Affect While Awaiting Organ Transplantation for Cystic Fibrosis in Germany.

Affective arrangements Germany cystic fibrosis hope as practice hospital ethnography organ transplantation

Journal

Medical anthropology
ISSN: 1545-5882
Titre abrégé: Med Anthropol
Pays: United States
ID NLM: 7707343

Informations de publication

Date de publication:
18 08 2023
Historique:
medline: 31 8 2023
pubmed: 1 8 2023
entrez: 1 8 2023
Statut: ppublish

Résumé

We describe the challenges in synchronizing affect during the lengthy lead-up to organ transplantation. Our analysis draws on ethnographic fieldwork in Eastern Germany among medical staff caring for patients with cystic fibrosis, a progressive, genetic illness. Patient and practitioners must together endure an uncertain wait for a donor organ, while simultaneously living and working toward living as well as possible. The organizing affective principle in this setting is hoping, which is a socio-material practice that must be continuously and interactively re-produced. Too little or too much hoping must be managed by adjusting affective intensities. A failure to strike this balance can lead to what we designate as the

Identifiants

pubmed: 37526924
doi: 10.1080/01459740.2023.2240946
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

593-606

Auteurs

Stefan Reinsch (S)

Centre for Health Service Research & Faculty of Health Sciences Brandenburg, Brandenburg Medical School - Theodor Fontane, Neuruppin, Germany.

Jörg Niewöhner (J)

Institute of European Ethnology & Integrative Research Institute THESys - Transformations of Human-Environment-Systems , Humboldt-Universität zu Berlin, Berlin, Germany.

Carsten Schwarz (C)

Cystic Fibrosis Centre Westbrandenburg, Division Cystic Fibrosis, Clinic Westbrandenburg, HMU - Health and Medical University Potsdam, Potsdam, Germany.

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Classifications MeSH