Finding Your Way - A shared decision making resource developed by and for Aboriginal people in Australia: Perceived acceptability, usability, and feasibility.


Journal

Patient education and counseling
ISSN: 1873-5134
Titre abrégé: Patient Educ Couns
Pays: Ireland
ID NLM: 8406280

Informations de publication

Date de publication:
10 2023
Historique:
received: 12 01 2023
revised: 06 07 2023
accepted: 18 07 2023
medline: 4 9 2023
pubmed: 3 8 2023
entrez: 2 8 2023
Statut: ppublish

Résumé

Finding Your Way is a culturally adapted shared decision making (SDM) resource for Aboriginal (First Nations) people of Australia. It integrates the Eight Ways of Aboriginal Learning (8 Ways) and was created by Aboriginal health workers and community members in New South Wales (NSW), Australia. To explore the perceived acceptability, usability, and feasibility of Finding Your Way as a SDM resource for Aboriginal people making health and wellbeing decisions. The web-based resources were disseminated using social media, professional networks, publications, and the 'Koori grapevine'. Thirteen 'champions' also promoted the resources. An online questionnaire was available on the website for three months. Framework analysis determined early indications of its acceptability, usability, and feasibility. Web and social media analytics were also analysed. Partnership with and leadership by Aboriginal people was integrated at all phases of the project. The main landing page was accessed 5219 times by 4259 users. 132 users completed the questionnaire. The non-linear and visual aspects of the resources 'speak to mob' and identified with Aboriginal culture. The inclusion of social and emotional well-being, and the holistic approach were well received by the small number of users who opted to provide feedback. They suggested that non-digital formats and guidance on the resources are required to support use in clinical practice. The 8 Ways enabled the development of a culturally safe SDM resource for Aboriginal people, which was well received by users who took the time to provide feedback after a brief dissemination process. Additional accessible formats, practice guides and training are required to support uptake in clinical practice. Finding Your Way could be used to help improve experiences, health literacy, decision making quality and outcomes of healthcare for Aboriginal Australians.

Sections du résumé

BACKGROUND
Finding Your Way is a culturally adapted shared decision making (SDM) resource for Aboriginal (First Nations) people of Australia. It integrates the Eight Ways of Aboriginal Learning (8 Ways) and was created by Aboriginal health workers and community members in New South Wales (NSW), Australia.
OBJECTIVE
To explore the perceived acceptability, usability, and feasibility of Finding Your Way as a SDM resource for Aboriginal people making health and wellbeing decisions.
METHODS
The web-based resources were disseminated using social media, professional networks, publications, and the 'Koori grapevine'. Thirteen 'champions' also promoted the resources. An online questionnaire was available on the website for three months. Framework analysis determined early indications of its acceptability, usability, and feasibility. Web and social media analytics were also analysed. Partnership with and leadership by Aboriginal people was integrated at all phases of the project.
RESULTS
The main landing page was accessed 5219 times by 4259 users. 132 users completed the questionnaire. The non-linear and visual aspects of the resources 'speak to mob' and identified with Aboriginal culture. The inclusion of social and emotional well-being, and the holistic approach were well received by the small number of users who opted to provide feedback. They suggested that non-digital formats and guidance on the resources are required to support use in clinical practice.
CONCLUSION
The 8 Ways enabled the development of a culturally safe SDM resource for Aboriginal people, which was well received by users who took the time to provide feedback after a brief dissemination process. Additional accessible formats, practice guides and training are required to support uptake in clinical practice.
PRACTICE IMPLICATIONS
Finding Your Way could be used to help improve experiences, health literacy, decision making quality and outcomes of healthcare for Aboriginal Australians.

Identifiants

pubmed: 37531789
pii: S0738-3991(23)00300-2
doi: 10.1016/j.pec.2023.107920
pii:
doi:

Types de publication

Journal Article

Langues

eng

Pagination

107920

Informations de copyright

Copyright © 2023 The Authors. Published by Elsevier B.V. All rights reserved.

Déclaration de conflit d'intérêts

Declaration of Competing Interest The authors declare the following financial interests/personal relationships which may be considered as potential competing interests: Lyndal Trevena reports a relationship with New South Wales Agency for Clinical Innovation that includes: consulting or advisory.

Auteurs

Tara Dimopoulos-Bick (T)

Agency for Clinical Innovation, NSW, Australia. Electronic address: tara.dimopoulosbick@health.nsw.gov.au.

David Follent (D)

Agency for Clinical Innovation, NSW, Australia.

Catherine Kostovski (C)

Agency for Clinical Innovation, NSW, Australia.

Val Middleton (V)

Agency for Clinical Innovation, NSW, Australia.

Cory Paulson (C)

Royal Flying Doctor Service, South Eastern Section, NSW, Australia.

Stewart Sutherland (S)

College of Health and Medicine, Australian National University, Canberra, Australia.

Melissa Cawley (M)

South Eastern Sydney Local Health District, NSW, Australia.

Marsha Files (M)

Katungul Aboriginal Corporation Regional Health and Community Services, NSW, Australia.

Sue Follent (S)

NSW, Australia.

Regina Osten (R)

Agency for Clinical Innovation, NSW, Australia.

Lyndal Trevena (L)

School of Public Health, University of Sydney, NSW, Australia.

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Classifications MeSH