Taking a "Care Pathway/Whole Systems" Approach to Equality Diversity Inclusion (EDI) in Organ Donation and Transplantation in Relation to the Needs of "Ethnic/Racial/Migrant" Minority Communities: A Statement and a Call for Action.
ethnic minorities
inequities
migrants
organ donation
organ transplantation
Journal
Transplant international : official journal of the European Society for Organ Transplantation
ISSN: 1432-2277
Titre abrégé: Transpl Int
Pays: Switzerland
ID NLM: 8908516
Informations de publication
Date de publication:
2023
2023
Historique:
received:
26
02
2023
accepted:
13
07
2023
medline:
22
8
2023
pubmed:
21
8
2023
entrez:
21
8
2023
Statut:
epublish
Résumé
International evidence shows variation in organ donation and transplantation (ODT) based upon a range of patient characteristics. What is less well understood is the impact of patient "ethnicity/race/immigration background," as these terms are defined and intended differently across countries. We also know that these characteristics do not operate in isolation but intersect with a range of factors. In this paper, we propose a framework that seeks to clarify the definition of the key terms "ethnicity/race/migrant" and to review how these communities are operationalized across European studies about inequities in ODT. Further, patients and the public wish to see Equality Diversity Inclusion (EDI) approaches in their everyday lives, not just in relation to ODT. We propose a 'care pathway/whole-systems' approach to ODT encompassing culturally competent public health interventions for a) the prevention and management of chronic diseases, b) improvements in public engagement for the promotion of the culture of ODT and enhancements in end-of-life care, through to c) enhanced likelihood of successful transplant among migrant/ethnic minority communities. Our framework recognizes that if we truly wish to take an EDI approach to ODT, we need to adopt a more social, human and holistic approach to examining questions around patient ethnicity.
Identifiants
pubmed: 37600748
doi: 10.3389/ti.2023.11310
pii: 11310
pmc: PMC10437067
doi:
Types de publication
Journal Article
Review
Langues
eng
Sous-ensembles de citation
IM
Pagination
11310Informations de copyright
Copyright © 2023 Grossi, Randhawa, Jansen and Paredes-Zapata.
Déclaration de conflit d'intérêts
The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.
Références
Clin J Am Soc Nephrol. 2021 Feb 8;16(2):177-178
pubmed: 33509964
Prog Transplant. 2010 Dec;20(4):380-91
pubmed: 21265292
BMJ Open. 2020 Jun 21;10(6):e035360
pubmed: 32565460
BMC Public Health. 2016 Jun 01;16:463
pubmed: 27250252
Nephrol Dial Transplant. 2012 Jun;27(6):2588-93
pubmed: 22323533
Transplantation. 2012 Mar 27;93(6):610-6
pubmed: 22245879
Lancet Respir Med. 2021 Oct;9(10):1101-1110
pubmed: 34364537
J Clin Med. 2020 Nov 21;9(11):
pubmed: 33233422
J Epidemiol Community Health. 2016 May;70(5):493-9
pubmed: 26659762
Curr Opin Organ Transplant. 2019 Feb;24(1):97-102
pubmed: 30507707
J Epidemiol Community Health. 2004 Jun;58(6):441-5
pubmed: 15143107
Am J Transplant. 2009 Apr;9(4):669-74
pubmed: 19344460
Transplant Proc. 2009 Jul-Aug;41(6):2363-5
pubmed: 19715920
Pediatr Nephrol. 2011 Feb;26(2):309-15
pubmed: 21052728
Clin J Am Soc Nephrol. 2020 Jan 7;15(1):101-108
pubmed: 31857376
Transpl Int. 2020 Nov;33(11):1405-1416
pubmed: 32621764
Transplant Proc. 2016 Apr;48(3):680-8
pubmed: 27234714
Transplantation. 2022 Jun 1;106(6):1113-1122
pubmed: 34495014
BMC Public Health. 2018 Aug 8;18(1):987
pubmed: 30089475
Eur J Pediatr. 2009 Jan;168(1):11-6
pubmed: 18351389
Patient Educ Couns. 2013 Jan;90(1):118-24
pubmed: 22940372
HLA. 2020 Dec;96(6):697-708
pubmed: 32985786
Int J Equity Health. 2022 Feb 12;21(1):22
pubmed: 35151327
Semin Nephrol. 2010 Jan;30(1):81-9
pubmed: 20116652
Int J Health Serv. 2014;44(4):711-34
pubmed: 25626225
Curr Opin Organ Transplant. 2021 Oct 1;26(5):501-507
pubmed: 34310358
PLoS One. 2019 Jan 2;14(1):e0209161
pubmed: 30601839
Transpl Int. 2022 Jun 15;35:10490
pubmed: 35781938
Curr Opin Organ Transplant. 2011 Apr;16(2):243-9
pubmed: 21415828
Crit Care Med. 2013 Feb;41(2):496-505
pubmed: 23263585
Am J Kidney Dis. 2016 Feb;67(2):293-301
pubmed: 26561356
Eur J Public Health. 2022 Jun 1;32(3):372-378
pubmed: 35381065
Br Med Bull. 2022 Jul 9;142(1):4-14
pubmed: 35368069
BMJ Open. 2013 Dec 20;3(12):e003453
pubmed: 24362010
Ann Surg. 2022 Sep 1;276(3):420-429
pubmed: 35762615
Clin J Am Soc Nephrol. 2021 Feb 8;16(2):262-274
pubmed: 33509963
Transplantation. 2010 Aug 15;90(3):279-85
pubmed: 20523276
BMC Nephrol. 2022 Mar 19;23(1):113
pubmed: 35305568
Am J Transplant. 2005 Nov;5(11):2682-7
pubmed: 16212627
PLoS One. 2019 Oct 22;14(10):e0224116
pubmed: 31639158
PLoS One. 2022 Aug 4;17(8):e0272436
pubmed: 35925996
Transplantation. 2014 Nov 15;98(9):974-8
pubmed: 24926831
J Epidemiol Community Health. 2007 Dec;61 Suppl 2:ii4-10
pubmed: 18000117
Nephrol Dial Transplant. 2017 May 01;32(5):890-900
pubmed: 28379431
Tidsskr Nor Laegeforen. 2019 Sep 19;139(13):
pubmed: 31556540
Front Pediatr. 2019 Feb 12;7:25
pubmed: 30809513
Diabet Med. 2023 May 24;:e15153
pubmed: 37223892
Nephrol Dial Transplant. 2010 Feb;25(2):628-34
pubmed: 19825838
Transplantation. 2006 Apr 27;81(8):1147-52
pubmed: 16641600
Kidney Int. 2021 Nov;100(5):1012-1022
pubmed: 34246656
BMC Public Health. 2020 Jun 30;20(1):1039
pubmed: 32605605
Intensive Care Med. 2019 Mar;45(3):331-342
pubmed: 30840119
Ann Intern Med. 1996 Oct 15;125(8):675-9
pubmed: 8849153
J Diabetes Res. 2016;2016:8030627
pubmed: 27830158