Evaluation of variation in special educational needs provision and its impact on health and education using administrative records for England: umbrella protocol for a mixed-methods research programme.

epidemiology health equity health informatics public health qualitative research statistics & research methods

Journal

BMJ open
ISSN: 2044-6055
Titre abrégé: BMJ Open
Pays: England
ID NLM: 101552874

Informations de publication

Date de publication:
02 11 2023
Historique:
medline: 6 11 2023
pubmed: 3 11 2023
entrez: 2 11 2023
Statut: epublish

Résumé

One-third of children in England have special educational needs (SEN) provision recorded during their school career. The proportion of children with SEN provision varies between schools and demographic groups, which may reflect variation in need, inequitable provision and/or systemic factors. There is scant evidence on whether SEN provision improves health and education outcomes. The Health Outcomes of young People in Education (HOPE) research programme uses administrative data from the Education and Child Health Insights from Linked Data-ECHILD-which contains data from all state schools, and contacts with National Health Service hospitals in England, to explore variation in SEN provision and its impact on health and education outcomes. This umbrella protocol sets out analyses across four work packages (WP). WP1 defined a range of 'health phenotypes', that is health conditions expected to need SEN provision in primary school. Next, we describe health and education outcomes (WP1) and individual, school-level and area-level factors affecting variation in SEN provision across different phenotypes (WP2). WP3 assesses the impact of SEN provision on health and education outcomes for specific health phenotypes using a range of causal inference methods to account for confounding factors and possible selection bias. In WP4 we review local policies and synthesise findings from surveys, interviews and focus groups of service users and providers to understand factors associated with variation in and experiences of identification, assessment and provision for SEN. Triangulation of findings on outcomes, variation and impact of SEN provision for different health phenotypes in ECHILD, with experiences of SEN provision will inform interpretation of findings for policy, practice and families and methods for future evaluation. Research ethics committees have approved the use of the ECHILD database and, separately, the survey, interviews and focus groups of young people, parents and service providers. These stakeholders will contribute to the design, interpretation and communication of findings.

Identifiants

pubmed: 37918923
pii: bmjopen-2023-072531
doi: 10.1136/bmjopen-2023-072531
pmc: PMC10626865
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

e072531

Subventions

Organisme : Department of Health
ID : NIHR202025
Pays : United Kingdom
Organisme : Medical Research Council
Pays : United Kingdom

Informations de copyright

© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ.

Déclaration de conflit d'intérêts

Competing interests: None declared.

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Auteurs

Ania Zylbersztejn (A)

UCL Great Ormond Street Institute of Child Health, UCL, London, UK.

Kate Lewis (K)

UCL Great Ormond Street Institute of Child Health, UCL, London, UK.

Vincent Nguyen (V)

UCL Great Ormond Street Institute of Child Health, UCL, London, UK.

Jacob Matthews (J)

Department of Psychiatry, University of Cambridge, Cambridge, UK.

Isaac Winterburn (I)

Department of Psychiatry, University of Cambridge, Cambridge, UK.

Lucy Karwatowska (L)

UCL Great Ormond Street Institute of Child Health, UCL, London, UK.

Sarah Barnes (S)

Department of Psychiatry, University of Cambridge, Cambridge, UK.

Matthew Lilliman (M)

UCL Great Ormond Street Institute of Child Health, UCL, London, UK.

Jennifer Saxton (J)

Department of Psychiatry, University of Cambridge, Cambridge, UK.

Antony Stone (A)

UCL Great Ormond Street Institute of Child Health, UCL, London, UK.

Kate Boddy (K)

Department of Health and Community Sciences, University of Exeter Medical School, Exeter, UK.

Johnny Downs (J)

Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.
South London and Maudsley NHS Foundation Trust, London, UK.

Stuart Logan (S)

The Peninsula Childhood Disability Research Unit, University of Exeter Medical School, Exeter, UK.

Jugnoo Rahi (J)

UCL Great Ormond Street Institute of Child Health, UCL, London, UK.
UCL Institute of Ophthalmology, UCL, London, UK.

Kristine Black-Hawkins (K)

Faculty of Education, University of Cambridge, Cambridge, UK.

Lorraine Dearden (L)

UCL Social Research Institute, UCL, London, UK.

Tamsin Ford (T)

Department of Psychiatry, University of Cambridge, Cambridge, UK.

Katie Harron (K)

UCL Great Ormond Street Institute of Child Health, UCL, London, UK.

Bianca De Stavola (B)

UCL Great Ormond Street Institute of Child Health, UCL, London, UK.

Ruth Gilbert (R)

UCL Great Ormond Street Institute of Child Health, UCL, London, UK r.gilbert@ucl.ac.uk.

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