"The project did not come to us with a solution": Perspectives of research teams on implementing a study about electronic health record-embedded individualized pain plans for emergency department treatment of vaso-occlusive episodes in adults with sickle cell disease.
Emergency department
Implementation science
Sickle cell disease
Journal
BMC health services research
ISSN: 1472-6963
Titre abrégé: BMC Health Serv Res
Pays: England
ID NLM: 101088677
Informations de publication
Date de publication:
13 Nov 2023
13 Nov 2023
Historique:
received:
24
05
2023
accepted:
30
10
2023
medline:
14
11
2023
pubmed:
13
11
2023
entrez:
12
11
2023
Statut:
epublish
Résumé
This study aimed to capture the implementation process of the ALIGN Study, (An individualized Pain Plan with Patient and Provider Access for Emergency Department care of Sickle Cell Disease). ALIGN aimed to embed Individualized Pain Plans in the electronic health record (E-IPP) and provide access to the plan for both adult patients with sickle cell disease (SCD) and emergency department providers when a person with SCD comes to the emergency department in vaso-occlusive crises. Semi-structured interviews were conducted with research teams from the 8 participating sites from the ALIGN study. Seventeen participants (principal investigators and study coordinators) shared their perspectives about the implementation of ALIGN in their sites. Data were analyzed in three phases using open coding steps adapted from grounded theory and qualitative content analysis. A total of seven overarching themes were identified: (1) the E-IPP structure (location and upkeep) and collaboration with the informatics team, (2) the role of ED champion, (3) the role of research coordinators, (4) research team communication, and communication between research team and clinical team, (5) challenges with the study protocol, (6) provider feedback: addressing over-utilizers, patient mistrust, and the positive feedback about the intervention, and (7) COVID-19 and its effects on study implementation. Findings from this study contribute to learning how to implement E-IPPs for adult patients with SCD in ED. The study findings highlight the importance of early engagement with different team members, a champion from the emergency department, study coordinators with different skills and enhancement of communication and trust among team members. Further recommendations are outlined for hospitals aiming to implement E-IPP for patients with SCD in ED.
Sections du résumé
BACKGROUND
BACKGROUND
This study aimed to capture the implementation process of the ALIGN Study, (An individualized Pain Plan with Patient and Provider Access for Emergency Department care of Sickle Cell Disease). ALIGN aimed to embed Individualized Pain Plans in the electronic health record (E-IPP) and provide access to the plan for both adult patients with sickle cell disease (SCD) and emergency department providers when a person with SCD comes to the emergency department in vaso-occlusive crises.
METHODS
METHODS
Semi-structured interviews were conducted with research teams from the 8 participating sites from the ALIGN study. Seventeen participants (principal investigators and study coordinators) shared their perspectives about the implementation of ALIGN in their sites. Data were analyzed in three phases using open coding steps adapted from grounded theory and qualitative content analysis.
RESULTS
RESULTS
A total of seven overarching themes were identified: (1) the E-IPP structure (location and upkeep) and collaboration with the informatics team, (2) the role of ED champion, (3) the role of research coordinators, (4) research team communication, and communication between research team and clinical team, (5) challenges with the study protocol, (6) provider feedback: addressing over-utilizers, patient mistrust, and the positive feedback about the intervention, and (7) COVID-19 and its effects on study implementation.
CONCLUSIONS
CONCLUSIONS
Findings from this study contribute to learning how to implement E-IPPs for adult patients with SCD in ED. The study findings highlight the importance of early engagement with different team members, a champion from the emergency department, study coordinators with different skills and enhancement of communication and trust among team members. Further recommendations are outlined for hospitals aiming to implement E-IPP for patients with SCD in ED.
Identifiants
pubmed: 37953236
doi: 10.1186/s12913-023-10255-7
pii: 10.1186/s12913-023-10255-7
pmc: PMC10641983
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
1245Subventions
Organisme : NHLBI NIH HHS
ID : U24 HL133948
Pays : United States
Organisme : NHLBI NIH HHS
ID : U01 HL134042
Pays : United States
Organisme : NHLBI NIH HHS
ID : U01 HL133994
Pays : United States
Organisme : NHLBI NIH HHS
ID : U01 HL133964
Pays : United States
Organisme : NHLBI NIH HHS
ID : U01 HL134007
Pays : United States
Organisme : NHLBI NIH HHS
ID : U01 HL133997
Pays : United States
Organisme : NHLBI NIH HHS
ID : U24HL133948, U01HL133964, U01HL133990, U01HL133996, U01HL133994, U01HL133997, U01HL134004, U01HL134007, U01HL134042
Pays : United States
Organisme : NHLBI NIH HHS
ID : U01 HL134004
Pays : United States
Organisme : NHLBI NIH HHS
ID : U01 HL133990
Pays : United States
Organisme : NHLBI NIH HHS
ID : U01 HL133996
Pays : United States
Informations de copyright
© 2023. The Author(s).
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