Knowledge and Perceptions on End-of-life Care among End-stage Renal Disease Patients on Hemodialysis.
Journal
Saudi journal of kidney diseases and transplantation : an official publication of the Saudi Center for Organ Transplantation, Saudi Arabia
ISSN: 1319-2442
Titre abrégé: Saudi J Kidney Dis Transpl
Pays: Saudi Arabia
ID NLM: 9436968
Informations de publication
Date de publication:
01 Sep 2022
01 Sep 2022
Historique:
medline:
14
11
2023
pubmed:
1
9
2022
entrez:
13
11
2023
Statut:
ppublish
Résumé
The role of end-of-life care is fundamental for end-stage renal disease (ESRD) patients, who are known to have a high morbidity and mortality rate despite being on dialysis. This requires effective communication and shared decision-making. Thus, exploring patients' knowledge and perceptions is essential to improve the gaps in delivering end-of-life care. This study aimed to describe the knowledge and perceptions of end-of-life care among ESRD patients on hemodialysis (HD). This was a cross-sectional study involving 14 outpatient HD centers in Kuantan, Malaysia. Patients were recruited from March to June 2019. A validated questionnaire was delivered via interview-based surveys by the researcher or trained interviewers. The majority of the respondents had poor knowledge of the disease and end-of-life care. However, more than 70% of the respondents felt that it was important for them to be actively involved in medical decision-making, as well as being prepared and planning for death. End-of-life needs, which included management of symptoms and psychological, social, and spiritual support, were important to most respondents. Additionally, patients with higher educational backgrounds were observed to have higher scores for both knowledge and perceptions (P <0.05). The study found poor knowledge but acceptable perceptions among patients. This highlights the gaps in the current local approach in clinical practice to end-of-life care in ESRD.
Identifiants
pubmed: 37955458
doi: 10.4103/1319-2442.389426
pii: 00936703-202233050-00007
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
664-673Informations de copyright
Copyright © 2022 Copyright: © 2022 Saudi Journal of Kidney Diseases and Transplantation.
Références
Abbasi MA, Chertow GM, Hall YN. End-stage renal disease. BMJ Clin Evid 2010;2010:2002.
Davison SN. End-of-life care preferences and needs: Perceptions of patients with chronic kidney disease. Clin J Am Soc Nephrol 2010;5:195-204.
Farrar A. Acute kidney injury. Nurs Clin North Am 2018;53:499-510.
Kane PM, Vinen K, Murtagh FE. Palliative care for advanced renal disease: A summary of the evidence and future direction. Palliat Med 2013;27:817-21.
Ghazali A, Lim YN, Goh BL, et al. 24th Report of the Malaysian Dialysis & Transplant Registry; 2016. Available from: https://www.msn.org.my/msn/Doc/PublicDoc_PB/Publication/mdtr2016/All%20Chapters.pdf. [Last accessed 20 July 2019].
Wu YL, Cheung DS, Takemura N, Lin CC. Effects of hemodialysis on the symptom burden of terminally Ill and nonterminally Ill end-stage renal disease patients. J Palliat Med 2019;22:282-9.
Bujang MA, Musa R, Liu WJ, Chew TF, Lim CT, Morad Z. Depression, anxiety and stress among patients with dialysis and the association with quality of life. Asian J Psychiatr 2015;18:49-52.
Beng TS, Yun LA, Yi LX, et al. The experiences of suffering of end-stage renal failure patients in Malaysia: A thematic analysis. Ann Palliat Med 2019;8:401-10.
Bristowe K, Horsley HL, Shepherd K, et al. Thinking ahead – The need for early advance care planning for people on haemodialysis: A qualitative interview study. Palliat Med 2015;29:443-50.
Grubbs V, Moss AH, Cohen LM, et al. A palliative approach to dialysis care: A patient-centered transition to the end of life. Clin J Am Soc Nephrol 2014;9:2203-9.
Morton RL, Webster AC, McGeechan K, et al. Conservative management and end-of-life care in an Australian cohort with ESRD. Clin J Am Soc Nephrol 2016;11:2195-203.
Fassett RG, Robertson IK, Mace R, Youl L, Challenor S, Bull R. Palliative care in end-stage kidney disease. Nephrology (Carlton) 2011;16:4-12.
Hing Wong A, Chin LE, Ping TL, Peng NK, Kun LS. Clinical impact of education provision on determining advance care planning decisions among end stage renal disease patients receiving regular hemodialysis in university Malaya medical centre. Indian J Palliat Care 2016;22:437-45.
Flaxman SR, Bourne RR, Resnikoff S, Ackland P, Braithwaite T, Cicinelli MV, et al. Global causes of blindness and distance vision impairment 1990-2020: A systematic review and meta-analysis. Lancet Glob Health 2017;5:e1221-34.
Lazenby S, Edwards A, Samuriwo R, Riley S, Murray MA, Carson-Stevens A. End-of-life care decisions for haemodialysis patients - ‘We only tend to have that discussion with them when they start deteriorating’. Health Expect 2017;20:260-73.
Baharoon SA, Al-Jahdali HH, Al-Sayyari AA, Tamim H, Babgi Y, Al-Ghamdi SM. Factors associated with decision-making about end-of-life care by hemodialysis patients. Saudi J Kidney Dis Transpl 2010;21:447-53.
Sánchez-Tomero JA, Rodríguez-Jornet A, Balda S, et al. Exploring the opinion of CKD patients on dialysis regarding end-of-life and advance care planning. Nefrologia 2011;31:449-56.
Oyegbile YO, Brysiewicz P. Exploring caregiver burden experienced by family caregivers of patients with end-stage renal disease in Nigeria. Int J Africa Nurs Sci 2017;7:136-43.
Eneanya ND, Goff SL, Martinez T, et al. Shared decision-making in end-stage renal disease: A protocol for a multi-center study of a communication intervention to improve end-of-life care for dialysis patients. BMC Palliat Care 2015;14:30.
Collins AJ, Foley RN, Chavers B, et al. ‘United states renal data system 2011 annual data report: Atlas of chronic kidney disease & end-stage renal disease in the United States’. Am J Kidney Dis 2012;59:e71-420.
Rak A, Raina R, Suh TT, et al. Palliative care for patients with end-stage renal disease: Approach to treatment that aims to improve quality of life and relieve suffering for patients (and families) with chronic illnesses. Clin Kidney J 2017;10:68-73.