European Health Information Portal: a one-stop shop for health information.
Journal
European journal of public health
ISSN: 1464-360X
Titre abrégé: Eur J Public Health
Pays: England
ID NLM: 9204966
Informations de publication
Date de publication:
01 Jul 2024
01 Jul 2024
Historique:
medline:
1
7
2024
pubmed:
1
7
2024
entrez:
1
7
2024
Statut:
ppublish
Résumé
Timely and high-quality population-level health information is needed to support evidence-informed decision-making, for planning and evaluation of prevention, care and cure activities as well as for research to generate new knowledge. FAIR (Findable, Accessible, Interoperable and Reusable) principles are one of the key elements supporting health research and making it more cost-effective through the reuse of already existing data. Currently, health data are in many countries dispersed and difficult to find and access. Two EU Public Health Programmes co-funded Joint Actions, Information for Action (InfAct) and Population Health Information Research Infrastructure (PHIRI) have established a European Health Information Portal, a web-based service, to facilitate better findability, access, interoperability and reuse of existing health information. The European Health Information Portal (www.healthinformationportal.eu) has been established including sections on National Nodes, data sources, publications, health information projects within countries and across Europe, research networks and research infrastructures, ethical and legal issues for health information exchange and use, capacity-building activities in all areas of population health and a dedicated COVID-19 section. The European Health Information Portal, being a central place for a wide range of population health information from EU Member States, is an information source for researchers, policy-makers and other relevant stakeholders. It is important to ensure the sustainability of the portal, especially in light of the European Health Data Space (EHDS) Regulation proposal and its requirements regarding the secondary use of health data.
Sections du résumé
BACKGROUND
BACKGROUND
Timely and high-quality population-level health information is needed to support evidence-informed decision-making, for planning and evaluation of prevention, care and cure activities as well as for research to generate new knowledge. FAIR (Findable, Accessible, Interoperable and Reusable) principles are one of the key elements supporting health research and making it more cost-effective through the reuse of already existing data. Currently, health data are in many countries dispersed and difficult to find and access.
METHODS
METHODS
Two EU Public Health Programmes co-funded Joint Actions, Information for Action (InfAct) and Population Health Information Research Infrastructure (PHIRI) have established a European Health Information Portal, a web-based service, to facilitate better findability, access, interoperability and reuse of existing health information.
RESULTS
RESULTS
The European Health Information Portal (www.healthinformationportal.eu) has been established including sections on National Nodes, data sources, publications, health information projects within countries and across Europe, research networks and research infrastructures, ethical and legal issues for health information exchange and use, capacity-building activities in all areas of population health and a dedicated COVID-19 section.
CONCLUSIONS
CONCLUSIONS
The European Health Information Portal, being a central place for a wide range of population health information from EU Member States, is an information source for researchers, policy-makers and other relevant stakeholders. It is important to ensure the sustainability of the portal, especially in light of the European Health Data Space (EHDS) Regulation proposal and its requirements regarding the secondary use of health data.
Identifiants
pubmed: 38946446
pii: 7701772
doi: 10.1093/eurpub/ckad172
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
i29-i34Subventions
Organisme : European Union's Health Programme
ID : 801553
Investigateurs
Claudia Habl
(C)
Cara Pries
(C)
Richard Pentz
(R)
Stefan Mathis-Edenhofer
(S)
Andrea Schmidt
(A)
Alexander Grabenhofer-Eggerth
(A)
Johannes Weiss
(J)
Sophie Sagerschnig
(S)
Anita Gottlob
(A)
Lorenz Dolanski
(L)
Alexander Degelsegger-Marquez
(A)
Beate Gruber
(B)
Katharana Habimana
(K)
Petronille Bogaert
(P)
Marie Delnord
(M)
Nienke Schutte
(N)
Kim Vyncke
(K)
Tadek Krzywania
(T)
Linda Abboud
(L)
Miriam Saso
(M)
Brecht Devleesschauwer
(B)
Barthélémy Moreau de Lizoreux
(BM)
Pascal Derycke
(P)
Pierre Daubresse
(P)
Sasha Milbeck
(S)
Karin De Ridder
(K)
Charles-Andrew Van de Catsyne
(CA)
Sejla Cilovic Lagarija
(SC)
Anina Chileva
(A)
Jelena Dimnjakovic
(J)
Jakov Vukovic
(J)
Sarka Dankova
(S)
Ondrej Májek
(O)
Sigrid Vorobjov
(S)
Jane Idavain
(J)
Merika Rätsep
(M)
Hanna Tolonen
(H)
Mari Mäkinen
(M)
Mika Gissler
(M)
Jennifer Zeitlin
(J)
Marianne Philibert
(M)
Laure Carcaillon-Bentata
(L)
Romana Haneef
(R)
Tatjana Makovski
(T)
Martin Thißen
(M)
Stefanie Seeling
(S)
Angela Fehr
(A)
Thomas Ziese
(T)
Christina Georgakopoulou
(C)
Elena Petelos
(E)
Christog Lionis
(C)
Dimitra Lingri
(D)
Tóth Kornél
(T)
Ágnes Töll
(Á)
Peter Bezzegh
(P)
István Csizmadia
(I)
Róbert Láng
(R)
Kiss Csaba
(K)
Alan Cahill
(A)
Michael Courtney
(M)
Pauline White
(P)
Kelly Ailish
(K)
Patricia Clarke
(P)
Sharon Kappala
(S)
Breda Smyth
(B)
Luigi Palmieri
(L)
Brigid Unim
(B)
Andrea Faragalli
(A)
Janis Misins
(J)
Irisa Zile
(I)
Ausra Zelviene
(A)
Audronè Astrauskiené
(A)
Guy Weber
(G)
Dorita Buttigieg
(D)
Neville Calleja
(N)
Oleg Lozan
(O)
Rodica Gramme
(R)
Mariken Tijhuis
(M)
Daniela Moye Holz
(DM)
Henk Hilderink
(H)
Linda Berger-Symons
(L)
Marit de Vries
(M)
Håkon Haaheim
(H)
Frode Forland
(F)
Zuzana Nordeng
(Z)
Tricia Larose
(T)
Malgorzata Strozyk
(M)
Pawel Maryniak
(P)
Krystyna Drogon
(K)
Karolina WęGrzyn
(K)
Tomasz Wisniewski
(T)
Kinga Paciorek
(K)
Paulo Nogueira
(P)
Leonor Bacelar-Nicolau
(L)
Rodrigo Feteira Santos
(RF)
Luís Lapão
(L)
Mariana Peyroteo
(M)
Marília Silva Paulo
(MS)
Teresa Montez
(T)
Carlos Dias
(C)
Veronica Gomez
(V)
Lucinda Oliveira das Neves
(LOD)
Andre Peralta-Santos
(A)
Petru Sandu
(P)
Elena Gabriela Gaftonie
(EG)
Edit Fekete
(E)
Lacramioara Brinduse
(L)
Silviu Radulescu
(S)
Maja Krstic
(M)
Aleksandar Medaveric
(A)
Jan Cap
(J)
Metka Zaletel
(M)
Matej Vinko
(M)
Tatjana Kofol Bric
(TK)
Inmaculada León Gómez
(IL)
Carmen Rodriguez-Blazquez
(C)
M João Forjaz
(M)
Marta Marin
(M)
Amparo Larrauri
(A)
Rebeca Ramis
(R)
Asuncion Diaz
(A)
Ester Angulo-Pueyo
(E)
Cesar Garriga
(C)
Teresa Valero
(T)
Francisco Estupiñán
(F)
Sandra Garcia-Armesto
(S)
Enrique Bernal-Delgado
(E)
Juan González García
(JG)
Javier Gómez-Arrue Azpiazu
(JG)
Ramon Launa Garces
(RL)
Teresa López-Cuadrado
(T)
Ramón Launag
(R)
Carlos Telleria
(C)
Meriam Seral
(M)
Ester Angulo-Pueyo
(E)
Lovisa Syden
(L)
Ashley Akbari
(A)
Ronan Lyons
(R)
Sarag Aldridge
(S)
Informations de copyright
© The Author(s) 2024. Published by Oxford University Press on behalf of the European Public Health Association.