Young Spouses' Experiences of Having a Partner With Heart Disease and Adolescents Living at Home.
adolescents
heart disease
informal caregivers
parenting
qualitative research
spouses
thematic analysis
Journal
Health expectations : an international journal of public participation in health care and health policy
ISSN: 1369-7625
Titre abrégé: Health Expect
Pays: England
ID NLM: 9815926
Informations de publication
Date de publication:
Aug 2024
Aug 2024
Historique:
revised:
02
06
2024
received:
08
12
2023
accepted:
19
06
2024
medline:
6
7
2024
pubmed:
6
7
2024
entrez:
6
7
2024
Statut:
ppublish
Résumé
To describe the life situation of spouses having a partner with heart disease and adolescents living at home. Qualitative inductive design. Participants (n = 22) were included from three Scandinavian countries. Semi-structured interviews were analysed using thematic analysis with an inductive and latent approach. Three themes were derived. 'Being in spousal and parental role transition' described how daily life had been affected and parental responsibilities had been doubled due to their partner's heart disease. 'Living with unpredictability and insecurity' included how the unpredictable illness trajectory caused worries and affected the well-being of the family. 'Managing a challenging life situation' highlights how spouses coped with their partners' heart disease and adapted to a new life situation. Young spouses' life situation was greatly affected by their partner's heart disease, resulting in increased responsibilities and double parenthood. Having a positive attitude and mindset towards life was used as a strategy to cope with the changed life situation and find a new way of life. All family members are affected by heart disease. Spouses needed additional professional support and guidance on how to involve the children when a parent is ill. This study highlights how young spouses, with adolescents living at home, experience their life situation. The life situation is unpredictable due to the partner's heart disease, as they must handle both caring for their partner and taking on double parenthood. Research involving family members can improve person- and family-centred care and treatment outcomes in health care and society. COREQ checklist was used preparing the manuscript. Data collection included interviews with spouse. WHAT DOES THIS PAPER CONTRIBUTE TO THE WIDER GLOBAL CLINICAL COMMUNITY?: By highlighting the spouses changed life situation due to heart disease and the importance of including them in health care.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
e14129Subventions
Organisme : This work was supported by Novo Nordisk Fonden (grant number NNF180C0034016), grant holder is Professor Selina Kikkenborg Berg and Kamprad Family Foundation (ref 20210130), grant holder is Professor Anna Strömberg. The funding sources had no role in the design and conducting of the study.
Informations de copyright
© 2024 The Author(s). Health Expectations published by John Wiley & Sons Ltd.
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