Electronic data capture in resource-limited settings using the lightweight clinical data acquisition and recording system.


Journal

Scientific reports
ISSN: 2045-2322
Titre abrégé: Sci Rep
Pays: England
ID NLM: 101563288

Informations de publication

Date de publication:
17 Aug 2024
Historique:
received: 13 06 2024
accepted: 06 08 2024
medline: 18 8 2024
pubmed: 18 8 2024
entrez: 17 8 2024
Statut: epublish

Résumé

Our prototype system designed for clinical data acquisition and recording of studies is a novel electronic data capture (EDC) software for simple and lightweight data capture in clinical research. Existing software tools are either costly or suffer from very limited features. To overcome these shortcomings, we designed an EDC software together with a mobile client. We aimed at making it easy to set-up, modifiable, scalable and thereby facilitating research. We wrote the software in R using a modular approach and implemented existing data standards along with a meta data driven interface and database structure. The prototype is an adaptable open-source software, which can be installed locally or in the cloud without advanced IT-knowledge. A mobile web interface and progressive web app for mobile use and desktop computers is added. We show the software's capability, by demonstrating four clinical studies with over 1600 participants and 679 variables per participant. We delineate a simple deployment approach for a server-installation and indicate further use-cases. The software is available under the MIT open-source license. Conclusively the software is versatile, easily deployable, highly modifiable, and extremely scalable for clinical studies. As an open-source R-software it is accessible, open to community-driven development and improvement in the future.

Identifiants

pubmed: 39153991
doi: 10.1038/s41598-024-69550-w
pii: 10.1038/s41598-024-69550-w
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

19056

Informations de copyright

© 2024. The Author(s).

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Auteurs

Jakob Vielhauer (J)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.
German Center for Infection Research, Partner Site Munich, 81377, Munich, Germany.

Ujjwal Mukund Mahajan (UM)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.

Kristina Adorjan (K)

Department of Psychiatry and Psychotherapy, Hospital of the LMU Munich, 80336, Munich, Germany.

Christopher Benesch (C)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.

Bettina Oehrle (B)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.

Georg Beyer (G)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.

Simon Sirtl (S)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.

Anna-Lena Johlke (AL)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.

Julian Allgeier (J)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.

Anna Pernpruner (A)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.

Johanna Erber (J)

Department of Internal Medicine II, Technical University of Munich, School of Medicine, University Hospital Rechts Der Isar, 81675, Munich, Germany.

Parichehr Shamsrizi (P)

Institute for Infection Research and Vaccine Development (IIRVD), Center for Internal Medicine, University Medical Center Hamburg-Eppendorf, 20246, Hamburg, Germany.
German Center for Infection Research, Partner Site Hamburg-Lübeck-Borstel-Riems, 20246, Hamburg, Germany.

Christian Schulz (C)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.
German Center for Infection Research, Partner Site Munich, 81377, Munich, Germany.

Fady Albashiti (F)

Medical Data Integration Center (MeDIC LMU), Hospital of the LMU Munich, 82152, Munich, Germany.

Ludwig Christian Hinske (LC)

Institute for Digital Medicine, Augsburg University Hospital, 86156, Augsburg, Germany.
Department of Anesthesiology, Hospital of the LMU Munich, 81377, Munich, Germany.

Julia Mayerle (J)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany.

Hans Christian Stubbe (HC)

Department of Medicine II, Hospital of the LMU Munich, 81377, Munich, Germany. hans_christian.stubbe@med.uni-muenchen.de.
German Center for Infection Research, Partner Site Munich, 81377, Munich, Germany. hans_christian.stubbe@med.uni-muenchen.de.

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