The development of a new oral health patient reported outcome measure: the New South Wales public dental services approach.

Humans New South Wales Patient Reported Outcome Measures Oral Health Adult Child Surveys and Questionnaires Dental Health Services Quality of Life

Journal

Journal of patient-reported outcomes
ISSN: 2509-8020
Titre abrégé: J Patient Rep Outcomes
Pays: Germany
ID NLM: 101722688

Informations de publication

Date de publication:
19 Aug 2024
Historique:
received: 12 02 2024
accepted: 07 08 2024
medline: 19 8 2024
pubmed: 19 8 2024
entrez: 19 8 2024
Statut: epublish

Résumé

Addressing Patient Reported Outcomes (PROs) is essential for patient-centred care, shared decision making and improved health outcomes. Value-based health care systems in New South Wales (NSW) have a growing focus on collecting and using PROs that matter most to patients to improve their healthcare outcomes. Developing oral health patient reported outcomes measures (OH-PROM) is a first step towards value-based oral health care. This paper describes the development process of an adult and child OH-PROM tool that can be piloted for NSW public dental patients. An expert panel was assembled to undertake a systematic process of developing OH-PROMs for NSW Health. Key methodological considerations included: (1) forming an expert panel to specify the target population and context of implementation, (2) rapid literature review and environmental scan to identify existing validated OH-PROM tools for adults and children. (3) consensus gathering with the expert panel (4) consumer feedback, and (5) finalisation of the tool for electronic oral health record (eOHR) integration to establish a set of questions, that were relevant, context-appropriate, and important to oral healthcare outcomes for patients using public dental services. The panel considered a total of 59 questions from two child (15), and four adult (44) Oral Health Related Quality of Life (OHRQoL) questionnaires used to collect OH-PROMs. These questions were mapped to the four key dimensions of OHRQoL for OH-PROMs: Oral Function, Orofacial Pain, Orofacial Appearance, and Psychosocial Impact. The consensus resulted in seven questions that aligned with these four dimensions to form two new NSW OH-PROM tools: one for adults and one for children. The tools were tested with consumers for understandability and usefulness before being incorporated into the electronic oral health record system, in readiness for future pilot testing. The process for developing new OH-PROMs for NSW public dental services took a pragmatic approach that combined literature appraisal, expert consensus, and consumer consultation. Future work will assess the implementation of the OH-PROM tool and test its validity for broader use as an outcome measure for value-based oral healthcare.

Sections du résumé

BACKGROUND BACKGROUND
Addressing Patient Reported Outcomes (PROs) is essential for patient-centred care, shared decision making and improved health outcomes. Value-based health care systems in New South Wales (NSW) have a growing focus on collecting and using PROs that matter most to patients to improve their healthcare outcomes. Developing oral health patient reported outcomes measures (OH-PROM) is a first step towards value-based oral health care. This paper describes the development process of an adult and child OH-PROM tool that can be piloted for NSW public dental patients.
METHODS METHODS
An expert panel was assembled to undertake a systematic process of developing OH-PROMs for NSW Health. Key methodological considerations included: (1) forming an expert panel to specify the target population and context of implementation, (2) rapid literature review and environmental scan to identify existing validated OH-PROM tools for adults and children. (3) consensus gathering with the expert panel (4) consumer feedback, and (5) finalisation of the tool for electronic oral health record (eOHR) integration to establish a set of questions, that were relevant, context-appropriate, and important to oral healthcare outcomes for patients using public dental services.
RESULTS RESULTS
The panel considered a total of 59 questions from two child (15), and four adult (44) Oral Health Related Quality of Life (OHRQoL) questionnaires used to collect OH-PROMs. These questions were mapped to the four key dimensions of OHRQoL for OH-PROMs: Oral Function, Orofacial Pain, Orofacial Appearance, and Psychosocial Impact. The consensus resulted in seven questions that aligned with these four dimensions to form two new NSW OH-PROM tools: one for adults and one for children. The tools were tested with consumers for understandability and usefulness before being incorporated into the electronic oral health record system, in readiness for future pilot testing.
CONCLUSION CONCLUSIONS
The process for developing new OH-PROMs for NSW public dental services took a pragmatic approach that combined literature appraisal, expert consensus, and consumer consultation. Future work will assess the implementation of the OH-PROM tool and test its validity for broader use as an outcome measure for value-based oral healthcare.

Identifiants

DOI: 10.1186/s41687-024-00777-x PMID: 39158646
pubmed: 39158646
doi: 10.1186/s41687-024-00777-x
pii: 10.1186/s41687-024-00777-x
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

98

Informations de copyright

© 2024. The Author(s).

Références

WHO (2021) From value for money to value-based health services: a twenty-first century shift. WHO policy brief. Geneva
Zanotto BS, Etges APBdS, Marcolino MAZ, Polanczyk CA (2021) Value-based healthcare initiatives in practice: a systematic review. J Healthc Manag 66(5):340–365
Commonwealth Department of Health (2020) National Health Reform Agreement (NHRA) Canberra 2020–25. Canberra
ACSQHS (2023) What are PROMs? Cited 2024. Available from https://www.safetyandquality.gov.au/our-work/indicators-measurement-and-reporting/patient-reported-outcome-measures/about-proms#:%7E:text=PROMs%20are%20questionnaires%20that%20help,to%20be%20made%20over%20time
US Food and Drug Administration (2009) Guidance for industry patient reported outcome measures: use in medical product development to support labelling. FDA, Rockville. Available from https://www.fda.gov/media/77832/download
Mittal H, John MT, Sekulić S, Theis-Mahon N, Rener-Sitar K (2019) Patient-reported outcome measures for adult dental patients: a systematic review. J Evid-Based Dent Pract 19(1):53–70
doi: 10.1016/j.jebdp.2018.10.005 pubmed: 30926102
Chanthavisouk P, Pattanaik S, John MT, Paulson D (2022) Commonalities among dental patient-reported outcomes. PloS ONE 17(6):e0268750
doi: 10.1371/journal.pone.0268750 pubmed: 35731744 pmcid: 9216565
Riordain RN, Glick M, Mashhadani SSAA, Aravamudhan K, Barrow J, Cole D et al (2021) Developing a standard set of patient-centred outcomes for adult oral health– an international, cross-disciplinary consensus. Int Dent J 71(1):40–52
doi: 10.1111/idj.12604 pubmed: 33616051 pmcid: 9275363
Porter ME (2006) Redefining health care: creating value-based competition on results. Harvard Business Review Press, Boston, Massachusetts
Lin CE, Nguyen TM, McGrath R, Patterson A, Hall M (2023) Dental health services Victoria value-based health care principles for oral health models of care. J Public Health Dent 83(3):325–328
doi: 10.1111/jphd.12581 pubmed: 37584232
NSW Health Agency for Clinical Innovation (2021) Analytic principles for patient-reported outcome measures. NSW Agency for Clinical Innovation, Sydney
Greenhalgh J, Gooding K, Gibbons E, Dalkin S, Wright J, Valderas J et al (2018) How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis. J Patient-Rep Outcomes 2(1):42
doi: 10.1186/s41687-018-0061-6 pubmed: 30294712 pmcid: 6153194
Douglas-de-oliveira DW, Chen KJ (2023) Patient-reported measures outcomes: modern evaluation of oral health. BMC Oral Health 23(1):498
doi: 10.1186/s12903-023-03219-0 pubmed: 37464376 pmcid: 10355069
Koff E, Lyons N (2020) Implementing value-based health care at scale: the NSW experience. Med J Australia 212(3):104–6.e1
doi: 10.5694/mja2.50470 pubmed: 31909479
NSW Health (2017) Eligibility of persons for public oral health care in NSW. Available from https://www1.health.nsw.gov.au/pds/Pages/doc.aspx?dn=PD2017_027
NSwW Health (2017) Priority oral health program (POHP) and waiting list management St.Leonards NSW Health. Available from https://www1.health.nsw.gov.au/pds/Pages/doc.aspx?dn=PD2017_023
Amini M, Oemrawsingh A, Verweij LM, Lingsma HF, Hazelzet JA, Eijkenaar F et al (2021) Facilitators and barriers for implementing patient-reported outcome measures in clinical care: an academic centre’s initial experience. Health Policy (Amsterdam) 125(9):1247–1255
doi: 10.1016/j.healthpol.2021.07.001
Paulson DR, Pattanaik S, Chanthavisouk P, John MT (2021) Including the patient’s oral health perspective in evidence-based decision-making. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz 64(8):959–966
doi: 10.1007/s00103-021-03375-0 pubmed: 34244813 pmcid: 8319104
NSW Ministry of Health (2021) Elevating the human experience our guide to action for patient, family, carer, volunteer and caregiver experiences (ed: Brand SP). St. Leonards
Ayre J, Bonner C, Muscat DM, Dunn AG, Harrison E, Dalmazzo J et al (2023) Multiple Automated Health Literacy Assessments of Written Health Information: development of the SHeLL (Sydney Health Literacy Lab) Health Literacy Editor v1. JMIR Form Res 7:e40645–e
doi: 10.2196/40645 pubmed: 36787164 pmcid: 9975914
Slade GD (1997) Derivation and validation of a short-form oral health impact profile. Community Dent Oral Epidemiol 25(4):284–290
doi: 10.1111/j.1600-0528.1997.tb00941.x pubmed: 9332805
Naik A, John MT, Kohli N, Self K, Flynn P (2016) Validation of the English-language version of 5-item oral health impact profile. J Prosthodont Res 60(2):85–91
doi: 10.1016/j.jpor.2015.12.003 pubmed: 26795728 pmcid: 4841723
Tsakos G, Blair YI, Yusuf H, Wright W, Watt RG, Macpherson LMD (2012) Developing a new self-reported scale of oral health outcomes for 5-year-old children (SOHO-5). Health Qual Life Outcomes 10(1):62
doi: 10.1186/1477-7525-10-62 pubmed: 22676710 pmcid: 3413607
Gherunpong S, Tsakos G, Sheiham A (2004) Developing and evaluating an oral health-related quality of life index for children; the CHILD-OIDP. Community Dent Health 21(2):161–169
pubmed: 15228206
Greenhalgh T, Hinton L, Finlay T, Macfarlane A, Fahy N, Clyde B et al (2019) Frameworks for supporting patient and public involvement in research: systematic review and co-design pilot. Health Expect 22(4):785–801
doi: 10.1111/hex.12888 pubmed: 31012259 pmcid: 6737756
Omara M, Stamm T, Bekes K (2021) Four-dimensional oral health-related quality of life impact in children: a systematic review. J Oral Rehabil 48(3):293–304
doi: 10.1111/joor.13066 pubmed: 32757443
Rener-Sitar K, John MT, Truong V, Tambe S, Theis-Mahon N (2021) Nonmalignant oral disease–specific dental patient-reported outcome measures for adult patients: a systematic review. J Evid-Based Dent Pract 21(1):101529
doi: 10.1016/j.jebdp.2021.101529 pubmed: 34051957
Nguyen TM, Bridge G, Hall M, Theodore K, Lin C, Scully B et al (2023) Is value-based healthcare a strategy to achieve universal health coverage that includes oral health? An Australian case study. J Public Health Policy 44(2):310–324
doi: 10.1057/s41271-023-00414-9 pubmed: 37142745 pmcid: 10232653
Gensheimer SG, Wu AW, Snyder CF (2018) Oh, the places we’ll go: patient-reported outcomes and electronic health records. Patient 11(6):591–598
doi: 10.1007/s40271-018-0321-9 pubmed: 29968179
Øvretveit J, Zubkoff L, Nelson EC, Frampton S, Knudsen JL, Zimlichman E (2017) Using patient-reported outcome measurement to improve patient care. Int J Qual Health Care 29(6):874–879
doi: 10.1093/intqhc/mzx108 pubmed: 29025001
Nanayakkara S, Zhou X, Spallek H (2019) Impact of big data on oral health outcomes. Oral Dis 25(5):1245–1252
doi: 10.1111/odi.13007 pubmed: 30474902
Gruber-Baldini AL, Velozo C, Romero S, Shulman LM (2017) Validation of the PROMIS® measures of self-efficacy for managing chronic conditions. Qual Life Res 26(7):1915–1924
doi: 10.1007/s11136-017-1527-3 pubmed: 28239781 pmcid: 5479750
Aghdaee M, Gu Y, Sinha K, Parkinson B, Sharma R, Cutler H (2023) Mapping the patient-reported outcomes measurement information system (PROMIS-29) to EQ-5D-5L. PharmacoEconomics 41(2):187–198
doi: 10.1007/s40273-022-01157-3 pubmed: 36336773

Auteurs

Rebecca Chen (R)

Westmead Applied Research Centre, Faculty of Medicine, and Health, The University of Sydney, 176 Hawkesbury Rd, Westmead, NSW, 2145, Australia. Rebecca.chen@sydney.edu.au.
Faculty of Medicine and Health, Sydney Dental School, The University of Sydney, Sydney, Australia. Rebecca.chen@sydney.edu.au.
Western Sydney Local Health District, Westmead, NSW, Australia. Rebecca.chen@sydney.edu.au.
ORCID: 0000-0003-4796-5937

Shilpi Ajwani (S)

Faculty of Medicine and Health, Sydney Dental School, The University of Sydney, Sydney, Australia.
Sydney Local Health District, Sydney, NSW, Australia.
School of Nursing and Midwifery, Western Sydney University, Liverpool, NSW, Australia.

Bradley Christian (B)

Faculty of Medicine and Health, Sydney Dental School, The University of Sydney, Sydney, Australia.
School of Nursing and Midwifery, Western Sydney University, Liverpool, NSW, Australia.

Claire Phelan (C)

South Eastern Sydney Local Health District, Kogarah, NSW, Australia.

Ravi Srinivas (R)

Faculty of Medicine and Health, Sydney Dental School, The University of Sydney, Sydney, Australia.
South Western Sydney Local Health District, Liverpool, NSW, Australia.
School of Nursing and Midwifery, Western Sydney University, Liverpool, NSW, Australia.

Josephine Kenny (J)

Western Sydney Local Health District, Westmead, NSW, Australia.

Mark O'Connor (M)

Illawarra Shoalhaven Local Health District, Nowra, NSW, Australia.

Kara Clarke (K)

Centre for Oral Health Strategy, The Ministry of Health, Sydney, NSW, Australia.

Woosung Sohn (W)

Faculty of Medicine and Health, Sydney Dental School, The University of Sydney, Sydney, Australia.
Centre for Oral Health Strategy, The Ministry of Health, Sydney, NSW, Australia.

Albert Yaacoub (A)

Faculty of Medicine and Health, Sydney Dental School, The University of Sydney, Sydney, Australia.
Nepean Blue Mountains Local Health District, Penrith, NSW, Australia.
School of Nursing and Midwifery, Western Sydney University, Liverpool, NSW, Australia.

Articles similaires

[Redispensing of expensive oral anticancer medicines: a practical application].

Lisanne N van Merendonk, Kübra Akgöl, Bastiaan Nuijen
1.00
Humans Antineoplastic Agents Administration, Oral Drug Costs Counterfeit Drugs

Smoking Cessation and Incident Cardiovascular Disease.

Jun Hwan Cho, Seung Yong Shin, Hoseob Kim et al.
1.00
Humans Male Smoking Cessation Cardiovascular Diseases Female

Evaluation of Low-Value Services Across Major Medicare Advantage Insurers and Traditional Medicare.

Ciara Duggan, Adam L Beckman, Ishani Ganguli et al.
1.00
Humans United States Aged Cross-Sectional Studies Medicare Part C

Effectiveness of Virtual Yoga for Chronic Low Back Pain: A Randomized Clinical Trial.

Hallie Tankha, Devyn Gaskins, Amanda Shallcross et al.
1.00
Humans Yoga Low Back Pain Female Male

Classifications MeSH

questionsmedicales.fr › Eucaryotes › Animaux › Chordés › Vertébrés › Mammifères › Eutheria › Primates › Haplorhini › Catarrhini › Hominidae › Humains › The development of a new oral health patient...
questionsmedicales.fr › Régions géographiques › Océanie › Australasie › Australie › Nouvelle-Galles du Sud › The development of a new oral health patient...
questionsmedicales.fr › Environnement et santé publique › Santé publique › Méthodes épidémiologiques › Collecte de données › Enquêtes et questionnaires › Enquêtes sur les soins de santé › Mesures des résultats rapportés par les patients › The development of a new oral health patient...
questionsmedicales.fr › Caractéristiques de la population › Santé › Santé buccodentaire › The development of a new oral health patient...
questionsmedicales.fr › Personnes › Tranches d'âge › Adulte › The development of a new oral health patient...
questionsmedicales.fr › Personnes › Tranches d'âge › Enfant › The development of a new oral health patient...
questionsmedicales.fr › Environnement et santé publique › Santé publique › Méthodes épidémiologiques › Collecte de données › Enquêtes et questionnaires › The development of a new oral health patient...
questionsmedicales.fr › Établissements, main d'oeuvre et services de soins de santé › Services de santé › Services de santé buccodentaire › The development of a new oral health patient...
questionsmedicales.fr › Environnement et santé publique › Santé publique › Mesures épidémiologiques › Démographie › État de santé › Qualité de vie › The development of a new oral health patient...