Carla Fladrowski

Affiliations

Associazione Sclerosi Tuberosa ONLUS, Milan, Italy.
European Tuberous Sclerosis Complex Association, Dattein, Germany.

Publications (13)

Newly Diagnosed and Growing Subependymal Giant Cell Astrocytoma in Adults With Tuberous Sclerosis Complex: Results From the International TOSCA Study.

Frontiers in neurology

Avec: Anna C Jansen , Elena Belousova , Mirjana P Benedik , Tom Carter , Vincent Cottin , Paolo Curatolo , Lisa D'Amato , Guillaume Beaure d'Augères , Petrus J de Vries , José C Ferreira , Martha Feucht , Carla Fladrowski , Christoph Hertzberg , Sergiusz Jozwiak , John A Lawson , Alfons Macaya , Ruben Marques , Rima Nabbout , Finbar O'Callaghan , Jiong Qin , Valentin Sander , Matthias Sauter , Seema Shah , Yukitoshi Takahashi , Renaud Touraine , Sotiris Youroukos , Bernard Zonnenberg , John C Kingswood

TuberOus SClerosis registry to increAse disease awareness (TOSCA) Post-Authorisation Safety Study of Everolimus in Patients With Tuberous Sclerosis Complex.

Frontiers in neurology

Avec: J Chris Kingswood , Elena Belousova , Mirjana P Benedik , Klemens Budde , Tom Carter , Vincent Cottin , Paolo Curatolo , Maria Dahlin , Lisa D'Amato , Guillaume B d'Augères , Petrus J de Vries , José C Ferreira , Martha Feucht , Carla Fladrowski , Christoph Hertzberg , Sergiusz Jozwiak , John A Lawson , Alfons Macaya , Ruben Marques , Rima Nabbout , Finbar O'Callaghan , Jiong Qin , Valentin Sander , Matthias Sauter , Seema Shah , Yukitoshi Takahashi , Renaud Touraine , Sotiris Youroukos , Bernard Zonnenberg , Anna C Jansen , Auteur inconnu

Health utilities and quality of life in individuals with tuberous sclerosis complex (TSC) who experience epileptic seizures: A web-based survey.

Epilepsy & behavior : E&B

Avec: Theo Tritton , Bryan Bennett , Elaine Brohan , Laura Grant , Alison Cooper , Carla Fladrowski , Cathy Evanochko , Maureen Neary , João Vieira , Viviana Buffa , Chris Kingswood

Treatment Patterns and Use of Resources in Patients With Tuberous Sclerosis Complex: Insights From the TOSCA Registry.

Frontiers in neurology

Avec: Ruben Marques , Elena Belousova , Mirjana P Benedik , Tom Carter , Vincent Cottin , Paolo Curatolo , Maria Dahlin , Lisa D'Amato , Guillaume Beaure d'Augères , Petrus J de Vries , José C Ferreira , Martha Feucht , Carla Fladrowski , Christoph Hertzberg , Sergiusz Jozwiak , John A Lawson , Alfons Macaya , Rima Nabbout , Finbar O'Callaghan , Jiong Qin , Valentin Sander , Matthias Sauter , Seema Shah , Yukitoshi Takahashi , Renaud Touraine , Sotiris Youroukos , Bernard Zonnenberg , John C Kingswood , Anna C Jansen

Renal Manifestations of Tuberous Sclerosis Complex: Key Findings From the Final Analysis of the TOSCA Study Focussing Mainly on Renal Angiomyolipomas.

Frontiers in neurology

Avec: J Chris Kingswood , Elena Belousova , Mirjana P Benedik , Tom Carter , Vincent Cottin , Paolo Curatolo , Maria Dahlin , Lisa D'Amato , Guillaume Beaure d'Augères , Petrus J de Vries , José C Ferreira , Martha Feucht , Carla Fladrowski , Christoph Hertzberg , Sergiusz Jozwiak , John A Lawson , Alfons Macaya , Ruben Marques , Rima Nabbout , Finbar O'Callaghan , Jiong Qin , Valentin Sander , Seema Shah , Yukitoshi Takahashi , Renaud Touraine , Sotiris Youroukos , Bernard Zonnenberg , Anna C Jansen , Matthias Sauter

Rare manifestations and malignancies in tuberous sclerosis complex: findings from the TuberOus SClerosis registry to increAse disease awareness (TOSCA).

Orphanet journal of rare diseases

Avec: Matthias Sauter , Elena Belousova , Mirjana P Benedik , Tom Carter , Vincent Cottin , Paolo Curatolo , Maria Dahlin , Lisa D'Amato , Guillaume B d'Augères , Petrus J de Vries , José C Ferreira , Martha Feucht , Carla Fladrowski , Christoph Hertzberg , Sergiusz Jozwiak , John A Lawson , Alfons Macaya , Ruben Marques , Rima Nabbout , Finbar O'Callaghan , Jiong Qin , Valentin Sander , Seema Shah , Yukitoshi Takahashi , Renaud Touraine , Sotiris Youroukos , Bernard Zonnenberg , Anna Jansen , J Chris Kingswood , Auteur inconnu

Natural clusters of tuberous sclerosis complex (TSC)-associated neuropsychiatric disorders (TAND): new findings from the TOSCA TAND research project.

Journal of neurodevelopmental disorders

Avec: Petrus J de Vries , Elena Belousova , Mirjana P Benedik , Tom Carter , Vincent Cottin , Paolo Curatolo , Lisa D'Amato , Guillaume Beure d'Augères , José C Ferreira , Martha Feucht , Carla Fladrowski , Christoph Hertzberg , Sergiusz Jozwiak , John A Lawson , Alfons Macaya , Ruben Marques , Rima Nabbout , Finbar O'Callaghan , Jiong Qin , Valentin Sander , Matthias Sauter , Seema Shah , Yukitoshi Takahashi , Renaud Touraine , Sotiris Youroukos , Bernard Zonnenberg , J Chris Kingswood , Anna C Jansen , Auteur inconnu

Approach to Preventive Epilepsy Treatment in Tuberous Sclerosis Complex and Current Clinical Practice in 23 Countries.

Pediatric neurology

Avec: Monika Słowińska , Katarzyna Kotulska , Sylwia Szymańska , Steven L Roberds , Carla Fladrowski , Sergiusz Jóźwiak

Burden of Illness and Quality of Life in Tuberous Sclerosis Complex: Findings From the TOSCA Study.

Frontiers in neurology

Avec: Anna C Jansen , Stephanie Vanclooster , Petrus J de Vries , Carla Fladrowski , Guillaume Beaure d'Augères , Tom Carter , Elena Belousova , Mirjana P Benedik , Vincent Cottin , Paolo Curatolo , Maria Dahlin , Lisa D'Amato , José C Ferreira , Martha Feucht , Christoph Hertzberg , Sergiusz Jozwiak , John A Lawson , Alfons Macaya , Ruben Marques , Rima Nabbout , Finbar O'Callaghan , Jiong Qin , Valentin Sander , Matthias Sauter , Seema Shah , Yukitoshi Takahashi , Renaud Touraine , Sotiris Youroukos , Bernard Zonnenberg , J Chris Kingswood

Renal angiomyolipoma in patients with tuberous sclerosis complex: findings from the TuberOus SClerosis registry to increase disease Awareness.

Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association

Avec: J Chris Kingswood , Elena Belousova , Mirjana P Benedik , Tom Carter , Vincent Cottin , Paolo Curatolo , Maria Dahlin , Lisa D' Amato , Guillaume Beaure d'Augères , Petrus J de Vries , José C Ferreira , Martha Feucht , Carla Fladrowski , Christoph Hertzberg , Sergiusz Jozwiak , John A Lawson , Alfons Macaya , Ruben Marques , Rima Nabbout , Finbar O'Callaghan , Jiong Qin , Valentin Sander , Matthias Sauter , Seema Shah , Yukitoshi Takahashi , Renaud Touraine , Sotiris Youroukos , Bernard Zonnenberg , Anna C Jansen

Epilepsy in tuberous sclerosis complex: Findings from the TOSCA Study.

Epilepsia open

Avec: Rima Nabbout , Elena Belousova , Mirjana P Benedik , Tom Carter , Vincent Cottin , Paolo Curatolo , Maria Dahlin , Lisa D Amato , Guillaume Beaure d'Augères , Petrus J de Vries , José C Ferreira , Martha Feucht , Carla Fladrowski , Christoph Hertzberg , Sergiusz Jozwiak , John A Lawson , Alfons Macaya , Ruben Marques , Finbar O'Callaghan , Jiong Qin , Valentin Sander , Matthias Sauter , Seema Shah , Yukitoshi Takahashi , Renaud Touraine , Sotiris Youroukos , Bernard Zonnenberg , Anna Jansen , John C Kingswood , Auteur inconnu

Beyond the Guidelines: How We Can Improve Healthcare for People With Tuberous Sclerosis Complex Around the World.

Pediatric neurology

Avec: Clare Stuart , Carla Fladrowski , Jennifer Flinn , Berit Öberg , Angela Peron , Micaela Rozenberg , Catherine A Smith

Clinical practice recommendations for kidney involvement in tuberous sclerosis complex: a consensus statement by the ERKNet Working Group for Autosomal Dominant Structural Kidney Disorders and the ERA Genes & Kidney Working Group.

Nature reviews. Nephrology

Avec: Djalila Mekahli , Roman-Ulrich Müller , Matko Marlais , Tanja Wlodkowski , Stefanie Haeberle , Marta López de Argumedo , Carsten Bergmann , Luc Breysem , Carla Fladrowski , Elizabeth P Henske , Peter Janssens , François Jouret , John Christopher Kingswood , Jean-Baptiste Lattouf , Marc Lilien , Geert Maleux , Micaela Rozenberg , Stefan Siemer , Olivier Devuyst , Franz Schaefer , David J Kwiatkowski , Olivier Rouvière , John Bissler

Réseau de co-auteurs

Elena Belousova 9 collaborations

Mirjana P Benedik 9 collaborations

Tom Carter 9 collaborations

Vincent Cottin 9 collaborations

Paolo Curatolo 9 collaborations

Petrus J de Vries 9 collaborations

José C Ferreira 9 collaborations

Martha Feucht 9 collaborations

Christoph Hertzberg 9 collaborations

Sergiusz Jozwiak 9 collaborations

John A Lawson 9 collaborations

Alfons Macaya 9 collaborations

Ruben Marques 9 collaborations

Rima Nabbout 9 collaborations

Finbar O'Callaghan 9 collaborations

Jiong Qin 9 collaborations

Valentin Sander 9 collaborations

Matthias Sauter 9 collaborations

Seema Shah 9 collaborations

Yukitoshi Takahashi 9 collaborations

Renaud Touraine 9 collaborations

Sotiris Youroukos 9 collaborations

Bernard Zonnenberg 9 collaborations

Anna C Jansen 7 collaborations

Lisa D'Amato 7 collaborations

Maria Dahlin 7 collaborations

Guillaume Beaure d'Augères 6 collaborations

J Chris Kingswood 6 collaborations

None None 4 collaborations

John C Kingswood 3 collaborations

Guillaume B d'Augères 2 collaborations

Anna Jansen 2 collaborations

Micaela Rozenberg 2 collaborations

Klemens Budde 1 collaboration

Theo Tritton 1 collaboration

Bryan Bennett 1 collaboration

Elaine Brohan 1 collaboration

Laura Grant 1 collaboration

Alison Cooper 1 collaboration

Cathy Evanochko 1 collaboration

Maureen Neary 1 collaboration

João Vieira 1 collaboration

Viviana Buffa 1 collaboration

Chris Kingswood 1 collaboration

Guillaume Beure d'Augères 1 collaboration

Monika Słowińska 1 collaboration

Katarzyna Kotulska 1 collaboration

Sylwia Szymańska 1 collaboration

Steven L Roberds 1 collaboration

Sergiusz Jóźwiak 1 collaboration

Stephanie Vanclooster 1 collaboration

Lisa D' Amato 1 collaboration

Lisa D Amato 1 collaboration

Clare Stuart 1 collaboration

Jennifer Flinn 1 collaboration

Berit Öberg 1 collaboration

Angela Peron 1 collaboration

Catherine A Smith 1 collaboration

Djalila Mekahli 1 collaboration

Roman-Ulrich Müller 1 collaboration

Matko Marlais 1 collaboration

Tanja Wlodkowski 1 collaboration

Stefanie Haeberle 1 collaboration

Marta López de Argumedo 1 collaboration

Carsten Bergmann 1 collaboration

Luc Breysem 1 collaboration

Elizabeth P Henske 1 collaboration

Peter Janssens 1 collaboration

François Jouret 1 collaboration

John Christopher Kingswood 1 collaboration

Jean-Baptiste Lattouf 1 collaboration

Marc Lilien 1 collaboration

Geert Maleux 1 collaboration

Stefan Siemer 1 collaboration

Olivier Devuyst 1 collaboration

Franz Schaefer 1 collaboration

David J Kwiatkowski 1 collaboration

Olivier Rouvière 1 collaboration

John Bissler 1 collaboration