Identifying and Quantifying Adolescent and Young Adult Patient Preferences in Cancer Care: Development of a Conjoint Analysis-Based Decision-Making Tool.
Adolescent
Adult
Advance Care Planning
/ standards
Child
Cluster Analysis
Communication
Decision Making
Decision Support Techniques
Family
/ psychology
Female
Follow-Up Studies
Health Personnel
/ statistics & numerical data
Humans
Male
Neoplasms
/ therapy
Patient Care Planning
/ standards
Patient Preference
/ psychology
Prognosis
Quality of Life
Young Adult
advance care planning
communication
conjoint analysis
decision-making
end-of-life care
quality of life
Journal
Journal of adolescent and young adult oncology
ISSN: 2156-535X
Titre abrégé: J Adolesc Young Adult Oncol
Pays: United States
ID NLM: 101543508
Informations de publication
Date de publication:
04 2019
04 2019
Historique:
pubmed:
27
10
2018
medline:
19
5
2020
entrez:
27
10
2018
Statut:
ppublish
Résumé
Compared with younger children and older adults, adolescent and young adult (AYA) patients with cancer receive more intensive end-of-life (EOL) care. We hypothesize that enhanced understanding of AYA preferences, increased engagement of these patients in decision-making, and improved communication of their preferences with family members and the medical team will lead to increased provision of goal-concordant care and decreased intensity of EOL care. In this study, we describe the development of a novel tool that quantifies the relative importance of numerous factors considered by AYA patients with cancer, their parents, and health care providers when choosing between treatment options.
Identifiants
pubmed: 30362893
doi: 10.1089/jayao.2018.0116
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM