Service and support needs following pediatric brain injury: perspectives of children with mild traumatic brain injury and their parents.
Adolescent
Adult
Australia
Brain Concussion
/ psychology
Caregivers
/ psychology
Child
Child, Preschool
Communication
Continuity of Patient Care
Cost of Illness
Disabled Children
Female
Health Services Needs and Demand
/ statistics & numerical data
Humans
Male
Middle Aged
Parents
/ psychology
Post-Concussion Syndrome
/ psychology
Social Support
Health services
families
rehabilitation
unmet needs
unrecognized needs
Journal
Brain injury
ISSN: 1362-301X
Titre abrégé: Brain Inj
Pays: England
ID NLM: 8710358
Informations de publication
Date de publication:
2019
2019
Historique:
pubmed:
7
11
2018
medline:
1
2
2020
entrez:
7
11
2018
Statut:
ppublish
Résumé
To provide a qualitative examination of the service and support needs of children who have had a mild traumatic brain injury (mTBI), and their parents, in order to improve clinical services. Semi-structured interviews were conducted with 9 children (8-12 years; M = 10.6 years, SD = 0.8) and their parents (n = 9) 29-55 days (M = 34 days; SD = 9.3) after presenting to an Australian Paediatric Emergency Department (PED) for mTBI. Children's post-concussive symptoms (PCS) were additionally measured using the Post-Concussive Symptom Inventory (PCSI). Audio recordings were transcribed, and a thematic analysis was conducted. Post-injury needs were reflected in four main themes: Communication; Family Burden; Continuity of Care; and Social and Community Support. These themes reflected children's and parents' needs for information, emotional/social/community support, and follow-up care. Both the children's and parents' needs, and the extent to which they were met, appeared to be related to the severity and duration of the child's PCS. Dedicated pediatric mTBI follow-up services that build on family's resources and meet their individual needs for information, emotional support, and referral may assist in optimizing post-injury outcomes.
Identifiants
pubmed: 30396278
doi: 10.1080/02699052.2018.1540794
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM