Sports participation and physical activity in adult Dutch and Swedish patients with severe haemophilia: A comparison between intermediate- and high-dose prophylaxis.
factor consumption
haemarthrosis
prophylaxis
sports participation
treatment strategies
Journal
Haemophilia : the official journal of the World Federation of Hemophilia
ISSN: 1365-2516
Titre abrégé: Haemophilia
Pays: England
ID NLM: 9442916
Informations de publication
Date de publication:
Mar 2019
Mar 2019
Historique:
received:
27
06
2018
revised:
14
09
2018
accepted:
02
01
2019
pubmed:
29
1
2019
medline:
30
4
2019
entrez:
29
1
2019
Statut:
ppublish
Résumé
Differences in treatment and outcome have been reported for persons with haemophilia (PWH) on intermediate-dose (Dutch) and high-dose (Swedish) prophylaxis, but the potential influence of sports participation has not been considered. To compare sports participation and clinical outcome between adult Dutch and Swedish PWH. Self-reported sports participation (type and frequency per week), physical functioning (SF-36 Seventy-one adult PWH (NL: 43, SWE: 28) completed sports questionnaires (mean age: 26 years). All participants engaged in sports, including 59.2% in high-risk sports (33.9% twice weekly). Dutch PWH showed a significant age-related decline in (high-risk) sports participation (7x/wk in PWH 18-22 years to 2x/wk in PWH 30-40 years, P < 0.05), joint health (HJHS: median 2-15.5, P < 0.01) and physical functioning (SF-36 All participants reported sports participation, including 59.2% in high-risk sports. Dutch PWH treated with intermediate-dose prophylaxis showed an age-related decline in sports participation, joint status and physical functioning, whereas Swedish PWH on high-dose prophylaxis did not. Sports participation was not associated with bleeding.
Identifiants
pubmed: 30690833
doi: 10.1111/hae.13683
pmc: PMC6850651
doi:
Substances chimiques
Coagulants
0
Types de publication
Comparative Study
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
244-251Subventions
Organisme : Bayer
Informations de copyright
© 2019 The Authors. Haemophilia Published by John Wiley & Sons Ltd.
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