Responses to a cancer diagnosis: a qualitative patient-centred interview study.


Journal

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer
ISSN: 1433-7339
Titre abrégé: Support Care Cancer
Pays: Germany
ID NLM: 9302957

Informations de publication

Date de publication:
Jan 2020
Historique:
received: 07 11 2018
accepted: 31 03 2019
pubmed: 26 4 2019
medline: 26 2 2020
entrez: 26 4 2019
Statut: ppublish

Résumé

A cancer diagnosis is an emotive and challenging time for patients. This study aimed to systematically explore patients' accounts of experiencing their cancer diagnosis. The purpose of this article is to offer a typology of patient responses to receiving a cancer diagnosis as a means through which to affirm the range of patients' experiences and to guide clinicians' practice. Qualitative semi-structured interviews were conducted between 2015 and 2017 with 80 patients living with cancer: 34 females and 46 males, aged between 31 and 85, diagnosed with a range of cancer types, stages and treatment trajectories, from two metropolitan hospitals on the east coast of Australia. Interview data were analysed thematically, using the framework approach. A typology of responses to the cancer diagnosis was derived from the analysis and included (1) the incongruent diagnosis, unexpected because it did not 'fit' with the patient's 'healthy' identity; (2) the incidental diagnosis, arising from seemingly unrelated or minor medical investigations; (3) the validating diagnosis, as explanation and confirmation of previously unexplained symptoms, pain or feelings; (4) the life context diagnosis, where the cancer diagnosis was positioned relative to other challenging life events, or as relatively inconsequential compared with the hardship of others. A diagnosis of cancer is not always (or only) experienced by patients with shock and despair. Diagnosis is perceived and experienced in diverse ways, shaped by broader social or life contexts, and with important implications for the clinical encounter and communication from an oncology perspective.

Identifiants

pubmed: 31020437
doi: 10.1007/s00520-019-04796-z
pii: 10.1007/s00520-019-04796-z
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

229-238

Subventions

Organisme : Australian Research Council
ID : DP150100414
Organisme : Australian Research Council
ID : DE150100285
Organisme : Australian Research Council
ID : DE170100440

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Auteurs

Emma R Kirby (ER)

Practical Justice Initiative, Centre for Social Research in Health, Level 3 John Goodsell Building, UNSW Sydney, Kensington, 2052, Australia. emma.kirby@unsw.edu.au.
Warwick MedicalSchool, University of Warwick, Coventry, UK. emma.kirby@unsw.edu.au.

Katherine E Kenny (KE)

Practical Justice Initiative, Centre for Social Research in Health, Level 3 John Goodsell Building, UNSW Sydney, Kensington, 2052, Australia.

Alexander F Broom (AF)

Practical Justice Initiative, Centre for Social Research in Health, Level 3 John Goodsell Building, UNSW Sydney, Kensington, 2052, Australia.

John L Oliffe (JL)

School of Nursing, University of British Columbia, Vancouver, Canada.

Sophie Lewis (S)

Practical Justice Initiative, Centre for Social Research in Health, Level 3 John Goodsell Building, UNSW Sydney, Kensington, 2052, Australia.

David K Wyld (DK)

Royal Brisbane and Women's Hospital, Brisbane, Queensland, Australia.
School of Medicine, University of Queensland, Brisbane, Australia.

Patsy M Yates (PM)

School of Nursing, Queensland University of Technology, Brisbane, Australia.

Rhiannon B Parker (RB)

Practical Justice Initiative, Centre for Social Research in Health, Level 3 John Goodsell Building, UNSW Sydney, Kensington, 2052, Australia.

Zarnie Lwin (Z)

Royal Brisbane and Women's Hospital, Brisbane, Queensland, Australia.
School of Medicine, University of Queensland, Brisbane, Australia.

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