Too little too late? Communication with patients with congenital heart disease about challenges of adult life.
adult congenital heart disease
communication
employment
family planning
health insurance
Journal
Congenital heart disease
ISSN: 1747-0803
Titre abrégé: Congenit Heart Dis
Pays: United States
ID NLM: 101256510
Informations de publication
Date de publication:
Jul 2019
Jul 2019
Historique:
received:
17
12
2018
revised:
10
03
2019
accepted:
15
04
2019
pubmed:
6
5
2019
medline:
28
1
2020
entrez:
5
5
2019
Statut:
ppublish
Résumé
To investigate the experiences and communication preferences of adult patients with congenital heart disease (CHD) in the domains of employment, insurance, and family planning. Patients ≥ 18 years of age completed a questionnaire about experiences and communication preferences regarding employment, health insurance, and family planning. Of 152 patients (median age = 33 years, 50% female, 35% with CHD of great complexity), one in four reported work-related problems due to CHD and a quarter also recalled a previous gap in health insurance. Of females, 29% experienced an unplanned pregnancy. The median importance of discussion ratings (on a 0-10 scale) were 3.5 (employment), 6.0 (insurance), and 8.0 (family planning). Few patients recalled discussions about employment (19%) or health insurance (20%). Over half recalled discussions about family planning, although males were less likely to have had these discussions than females (24% vs 86%, P < .001). Across the three domains, patients identified 16-18 years as the most appropriate age to initiate discussion, although for patients who recalled discussions, they typically occurred between 20 and 25 years. Adults with CHD commonly face employment, health insurance, and family planning challenges. However, discussions about these matters occur with less frequency than recommended and at older ages than patients would prefer. Communication about such issues should be incorporated into a comprehensive educational curriculum for adolescents during the process of transition to adult care.
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
534-540Subventions
Organisme : Big Hearts to Little Hearts
Organisme : Bronchick Family Foundation
Organisme : HFO Foundation
Informations de copyright
© 2019 Wiley Periodicals, Inc.
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