Engaging across dimensions of diversity: A cross-national perspective on mHealth tools for managing relapsing remitting and progressive multiple sclerosis.
Adult
Cross-Sectional Studies
Cultural Diversity
Disease Management
Disease Progression
Female
Focus Groups
Humans
Italy
/ ethnology
Male
Middle Aged
Multiple Sclerosis
/ diagnosis
Multiple Sclerosis, Relapsing-Remitting
/ diagnosis
Spain
/ ethnology
Telemedicine
/ methods
United Kingdom
/ ethnology
Barriers and facilitators
Engagement
Mobile health
Multiple sclerosis
mHealth
Journal
Multiple sclerosis and related disorders
ISSN: 2211-0356
Titre abrégé: Mult Scler Relat Disord
Pays: Netherlands
ID NLM: 101580247
Informations de publication
Date de publication:
Jul 2019
Jul 2019
Historique:
received:
19
10
2018
revised:
23
01
2019
accepted:
14
04
2019
pubmed:
28
5
2019
medline:
31
12
2019
entrez:
25
5
2019
Statut:
ppublish
Résumé
Smartphone apps and wearable devices could augment clinical practice by detecting changes in health status for multiple sclerosis (MS). This study sought to investigate potential barriers and facilitators for uptake and sustained use in (i) people with both relapsing remitting MS (RRMS) and progressive MS (PMS) and (ii) across different countries. Twenty four participants with MS took part in four focus groups held in three countries (2 in the UK, 1 in Spain, and 1 in Italy) to investigate potential barriers and facilitators for mHealth technology. A systematic thematic analysis was used to extract themes and sub-themes. Facilitators and barriers were organised into functional technology-related factors and non-functional health-related and user-related factors. Twelve themes captured all requirements across the three countries for both RRMS and PMS. Key requirements included accommodation for varying physical abilities, providing information and memory aids. Potential negative effects on mood and providing choice and control as part of overcoming practical challenges were identified. We took a cross-national perspective and found many similarities between three European countries across people with RRMS and PMS. Future provision should accommodate the key requirements identified to engage people with MS in scalable mHealth interventions.
Sections du résumé
BACKGROUND
BACKGROUND
Smartphone apps and wearable devices could augment clinical practice by detecting changes in health status for multiple sclerosis (MS). This study sought to investigate potential barriers and facilitators for uptake and sustained use in (i) people with both relapsing remitting MS (RRMS) and progressive MS (PMS) and (ii) across different countries.
METHODS
METHODS
Twenty four participants with MS took part in four focus groups held in three countries (2 in the UK, 1 in Spain, and 1 in Italy) to investigate potential barriers and facilitators for mHealth technology. A systematic thematic analysis was used to extract themes and sub-themes.
RESULTS
RESULTS
Facilitators and barriers were organised into functional technology-related factors and non-functional health-related and user-related factors. Twelve themes captured all requirements across the three countries for both RRMS and PMS. Key requirements included accommodation for varying physical abilities, providing information and memory aids. Potential negative effects on mood and providing choice and control as part of overcoming practical challenges were identified.
CONCLUSIONS
CONCLUSIONS
We took a cross-national perspective and found many similarities between three European countries across people with RRMS and PMS. Future provision should accommodate the key requirements identified to engage people with MS in scalable mHealth interventions.
Identifiants
pubmed: 31125754
pii: S2211-0348(19)30180-4
doi: 10.1016/j.msard.2019.04.020
pii:
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
123-132Informations de copyright
Copyright © 2019. Published by Elsevier B.V.