Methodological management of end-of-life decision data in intensive care studies: A systematic review of 178 randomized control trials published in seven major journals.


Journal

PloS one
ISSN: 1932-6203
Titre abrégé: PLoS One
Pays: United States
ID NLM: 101285081

Informations de publication

Date de publication:
2019
Historique:
received: 29 08 2018
accepted: 06 05 2019
entrez: 29 5 2019
pubmed: 29 5 2019
medline: 30 1 2020
Statut: epublish

Résumé

End-of-life (EOL) decisions are a serious ethical dilemma and are frequently carried out in intensive care units (ICUs). The aim of this systematic review was to investigated the different approaches used in ICUs and reported in randomized controlled trials (RCTs) to address EOL decisions and compare the impact of these different strategies regarding potential bias and mortality estimates. We identified relevant RCTs published in the past 15 years via PubMed, EMBASE, and CINAHL. In addition, we searched The Cochrane Library and checked registries, including ClinicalTrials.gov to assess concordance between declared and published outcomes. Among the journals we screened were the 3 ICU specialty journals and the four general medicine journals with the highest impact factor. Only RCTs were selected in which in-ICU mortality was the primary or secondary outcome. The primary outcome was information regarding EOL decisions, and the secondary outcome was how EOL decisions were treated in the study analysis. A total of 178 relevant trials were identified. The details regarding the methodological aspects resulting from EOL decisions were reported in only 62 articles (35%). The manner in which EOL decisions were considered in the study analysis was very heterogeneous, often leading to a high risk of bias. There is a heterogeneity regarding the management of data on EOL decisions in randomized control trials with mortality endpoints. Recommendations or rules are required regarding the inclusion of patients with potential EOL decisions in RCT analyses and how to manage such decisions from a methodological point of view. PROSPERO website (CRD42013005724).

Sections du résumé

BACKGROUND
End-of-life (EOL) decisions are a serious ethical dilemma and are frequently carried out in intensive care units (ICUs). The aim of this systematic review was to investigated the different approaches used in ICUs and reported in randomized controlled trials (RCTs) to address EOL decisions and compare the impact of these different strategies regarding potential bias and mortality estimates.
METHODS
We identified relevant RCTs published in the past 15 years via PubMed, EMBASE, and CINAHL. In addition, we searched The Cochrane Library and checked registries, including ClinicalTrials.gov to assess concordance between declared and published outcomes. Among the journals we screened were the 3 ICU specialty journals and the four general medicine journals with the highest impact factor. Only RCTs were selected in which in-ICU mortality was the primary or secondary outcome. The primary outcome was information regarding EOL decisions, and the secondary outcome was how EOL decisions were treated in the study analysis.
RESULTS
A total of 178 relevant trials were identified. The details regarding the methodological aspects resulting from EOL decisions were reported in only 62 articles (35%). The manner in which EOL decisions were considered in the study analysis was very heterogeneous, often leading to a high risk of bias.
CONCLUSION
There is a heterogeneity regarding the management of data on EOL decisions in randomized control trials with mortality endpoints. Recommendations or rules are required regarding the inclusion of patients with potential EOL decisions in RCT analyses and how to manage such decisions from a methodological point of view.
TRIAL REGISTRATION
PROSPERO website (CRD42013005724).

Identifiants

pubmed: 31136601
doi: 10.1371/journal.pone.0217134
pii: PONE-D-18-25208
pmc: PMC6538318
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't Systematic Review

Langues

eng

Sous-ensembles de citation

IM

Pagination

e0217134

Déclaration de conflit d'intérêts

The authors have declared that no competing interests exist.

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Auteurs

Sébastien Kerever (S)

Department of Anesthesiology and Critical Care, Lariboisière University Hospital, AP-HP, Paris, France.
ECSTRA Team, CRESS, Epidemiology and Statistics Center, Sorbonne Paris Cité, UMR 1153, INSERM, Paris, France.
University Denis Diderot-Paris VII, Paris, France.

Alice Jacquens (A)

Department of Neuro-Anesthesiology and Intensive Care, Pitié-Salpêtrière University Hospital, Assistance-publique-hôpitaux de Paris, Paris, France.
Sorbonne Université, UPMC Paris 6 University, Paris, France.

Violaine Smail-Faugeron (V)

Service d'Odontologie, Hôpital Bretonneau, AP-HP, Paris, France.
Unité de Recherches Biomatériaux Innovants et Interface EA4462, Montrouge, France.
Université Paris Descartes-Sorbonne Paris Cité, Faculté de Chirurgie Dentaire, Paris, France.

Etienne Gayat (E)

Department of Anesthesiology and Critical Care, Lariboisière University Hospital, AP-HP, Paris, France.
University Denis Diderot-Paris VII, Paris, France.
Biomarkers in CArdio-Neuro-VAScular diseases (BioCANVAS), UMR-S 942, Inserm, Paris, France.

Matthieu Resche-Rigon (M)

ECSTRA Team, CRESS, Epidemiology and Statistics Center, Sorbonne Paris Cité, UMR 1153, INSERM, Paris, France.
University Denis Diderot-Paris VII, Paris, France.
Biostatistics and Medical Information Departments, Saint Louis University Hospital, AP-HP, Paris, France.

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