Perspectives of key stakeholders on employment of autistic adults across the united states, australia, and sweden.


Journal

Autism research : official journal of the International Society for Autism Research
ISSN: 1939-3806
Titre abrégé: Autism Res
Pays: United States
ID NLM: 101461858

Informations de publication

Date de publication:
11 2019
Historique:
received: 07 02 2019
accepted: 10 06 2019
pubmed: 6 7 2019
medline: 12 9 2020
entrez: 6 7 2019
Statut: ppublish

Résumé

Despite efforts to improve employment outcomes for autistic individuals, internationally their employment rates remain low. There is a need to better understand the factors influencing successful employment for autistic adults in the labor market from the perspectives of multiple key stakeholders. This study represents the second in a series of papers conducted as part of an International Society for Autism Research policy brief aimed at improving employment outcomes for autistic individuals. A community consultation methodology using focus groups, forums, and interviews was applied with autistic individuals (n = 19), family members (n = 18), service providers (n = 21), employers (n = 11), researchers (n = 5), and advocacy group representatives (n = 5) in Australia, Sweden, and the United States, aiming to identify the factors perceived to determine gaining and maintaining employment for autistic individuals. Directed content analysis, guided by the International Classification of Functioning, Disability and Health (ICF), was conducted to investigate the key factors influencing employment outcomes for autistic individuals. Meaningful verbal concepts, or units of text with common themes, were also derived from the qualitative data and then linked and compared to the ICF Autism Spectrum Disorder (ASD) Core-sets. Across countries, activity and participation and environmental factor categories of the ICF were the most associated with employment outcomes. Results suggest that removal of environmental barriers and enhancing environmental facilitators may assist to remediate ASD-related difficulties in the workplace. Autism Res 2019, © 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: This study sought to understand the perspectives of autistic individuals and key stakeholders on factors influencing if autistic adults get and keep jobs. Across Australia, Sweden, and the United States, focus groups and interviews were conducted to understand international perspectives on what helps and hinders getting and keeping a job for autistic individuals. The environment, including supports, relationships, attitudes, and services, were perceived to be the most important for workplace success. Intervention targeting barriers and facilitators in the workplace environment may support autistic adults to be successful in the labor market.

Identifiants

pubmed: 31276308
doi: 10.1002/aur.2167
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

1648-1662

Subventions

Organisme : International Society for Autism Research
Pays : International

Informations de copyright

© 2019 International Society for Autism Research, Wiley Periodicals, Inc.

Références

Australian Bureau of Statistics. (2017, 2015). 4430.0 - Disability, ageing and carers, Australia: Summary of findings. Canberra, ACT: Australian Bureau of Statistics.
Autism Spectrum Australia (Aspect). (2013). We belong: The experiences, aspirations and needs of adults with asperger's disorder and high functioning autism. Retrieved from: https://www.autismspectrum.org.au/sites/default/files/Autism_Spectrum_WE_BELONG_Research_Report-FINAL_LR_R.pdf
Baldwin, S., Costley, D., & Warren, A. (2014). Employment activities and experiences of adults with high-functioning autism and asperger's disorder. Journal of Autism and Developmental Disorders, 44(10), 2440-2449. https://doi.org/10.1007/s10803-014-2112-z
Bölte, S., Mahdi, S., de Vries, P. J., Granlund, M., Robison, J., Shulman, C., … Selb, M. (2018). The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets. Autism, 23(2), 449-467. https://doi.org/10.1177/1362361318755522
Cieza, A., Geyh, S., Chatterji, S., Kostanjsek, N., Üstün, B., & Stucki, G. (2005). ICF linking rules: An update based on lessons learned. Journal of Rehabilitation Medicine, 37(4), 212-218. https://doi.org/10.1080/16501970510040263
de Schipper, E., Mahdi, S., de Vries, P., Granlund, M., Holtmann, M., Karande, S., … Bölte, S. (2016). Functioning and disability in autism spectrum disorder: A worldwide survey of experts. Autism Research, 9(9), 959-969. https://doi.org/10.1002/aur.1592
Flint, E., Bartley, M., Shelton, N., & Sacker, A. (2013). Do labour market status transitions predict changes in psychological well-being? Journal of Epidemiology and Community Health, 67(9), 796-802. https://doi.org/10.1136/jech-2013-202425
Goodare, H. (1999). Involving patients in clinical research. British Medical Journal, 319(7217), 724-725. https://doi.org/10.1136/bmj.319.7212.724
Grotkamp, S., Cibis, W., & Seger, W. (2012). Personal factors in the international classification of functioning, disability and health: Prospective evidence. Australian Journal of Rehabilitation Counselling, 18(1), 1-24. https://doi.org/10.1017/jrc.2012.4
Grun, C., Hauser, W., & Rhein, T. (2010). Is any job better than no job? life satisfaction in re-employment. Journal of Labor Research, 31(3), 285-306. https://doi.org/10.1007/s12122-010-9093-2
Guba, E. (1981). Criteria for assessing the trustworthiness of naturalistic inquiries. Educational Technology Research and Development, 29(2), 75-91.
Hatfield, M., Falkmer, M., Falkmer, T., & Ciccarelli, M. (2017). Process evaluation of the BOOST-A™ transition planning program for adolescents on the autism spectrum: A strengths-based approach. Journal of Autism and Developmental Disorders, 48(2), 377-388. https://doi.org/10.1007/s10803-017-3317-8
Hsieh, H., & Shannon, S. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277-1288. https://doi.org/10.1177/1049732305276687
Israel, B., Schultz, A., Parker, E., & Becker, A. (1998). Review of community-based research: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19, 173-202. https://doi.org/10.1146/annurev.publhealth.19.1.173
Järbrink, K., McCrone, P., Fombonne, E., Zandén, H., & Knapp, M. (2007). Cost-impact of young adults with high-functioning autistic spectrum disorder. Research in Developmental Disabilities, 28(1), 94-104. https://doi.org/10.1016/j.ridd.2005.11.002
Kindon, S., Pain, R., & Kesby, M. (Eds.). (2007). Participatory action research approaches and methods: Connecting people, participation and place. Abingdon, Oxon: Routledge.
Kirchner, J., Ruch, W., & Dziobek, I. (2016). Brief Report: Character strengths in adults with autism spectrum disorder without intellectual impairment. Journal of Autism and Developmental Disorders, 46(10), 3330-3337. https://doi.org/10.1007/s10803-016-2865-7
Krefting, L. (1991). Rigor in qualitative research: The assessment of trustworthiness. The American Journal of Occupational Therapy, 45(3), 214-222. https://doi.org/10.5014/ajot.45.3.214
Krieger, B., Kinebanian, A., Prodinger, B., & Heigl, F. (2012). Becoming a member of the work force: Perceptions of adults with asperger syndrome. Work, 43(2), 141-157. https://doi.org/10.3233/WOR-2012-1392
Müller, E., Schuler, A., Burton, B., & Yates, G. (2003). Meeting the vocational support needs of individuals with asperger syndrome and other autism spectrum disabilities. Journal of Vocational Rehabilitation, 18(3), 163-175.
Nowell, L., Norris, J., White, D., & Moules, N. (2017). Thematic analysis: Striving to meet the trustworthiness criteria. International Journal of Qualitative Methods, 16(1), 1-13. https://doi.org/https://doi.org/10.1177/1609406917733847
Oliver, M. (1996). Understanding disability: From theory to practice. New York, NY: St. Martin's Press.
Organisation for Economic Co-operation and Development. (2010). Sickness, disability and work: Breaking the barriers. Paris, France: Organisation for Economic Co-operation and Development.
Organisation for Economic Co-operation and Development. (2017). OECD Better Life Index - Edition 2017. Retrieved from http://www.oecdbetterlifeindex.org
Roux, A. M., Rast, J. E., Anderson, K. A., & Shattuck, P. T. (2017). National autism indicators report: Developmental disability services and outcomes in adulthood. Philadelphia, PA: Life Course Outcomes Program, A.J. Drexel Autism Institute & Drexel University.
Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B., … Jinks, C. (2018). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality and Quantity, 52(4), 1893-1907. https://doi.org/10.1007/s11135-017-0574-8
Schiariti, V., Mahdi, S., & Bölte, S. (2018). International classification of functioning, disability and health core sets for cerebral palsy, autism spectrum disorder, and attention-deficit-hyperactivity disorder. Developmental Medicine and Child Neurology, 60(9), 933-941. https://doi.org/10.1111/dmcn.13922
Scott, M., Falkmer, M., Falkmer, T., & Girdler, S. (2018). Evaluating the effectiveness of an autism-specific workplace tool for employers: A randomized controlled trial. Journal of Autism and Developmental Disorders, 48(10), 3377-3392. https://doi.org/10.1007/s10803-018-3611-0
Scott, M., Falkmer, M., Girdler, S., & Falkmer, T. (2015). Viewpoints on factors for successful employment for adults with autism spectrum disorders. PLoS One, 10(10), e0139281. https://doi.org/10.1371/journal.pone.0139281
Scott, M., Jacob, A., Hendrie, D., Parsons, R., Girdler, S., Falkmer, T., & Falkmer, M. (2017). Employers' perception of the costs and benefits of hiring individuals with autism spectrum disorder in open employment in Australia. PLoS One, 12(5), e0177607. https://doi.org/10.1371/journal.pone.0177607
Scott, M., Milbourn, B., Falkmer, M., Black, M., Bolte, S., Halladay, A., … Girdler, S. (2018). Factors impacting employment for people with autism spectrum disorder: A scoping review. Autism, 23(4), 869-901. https://doi.org/10.1177/1362361318787789
Shakespeare, T., & Watson, N. (2001). The social model of disability: An outdated ideology? In S. Barnartt & B. Altman (Eds.), Exploring theories and expanding methodologies: Where we are and where we need to go (Research in Social Science and Disability, Volume 2) (pp. 9-28). United Kingdom: Emerald Group Publishing Limited.
Siew, C., Mazzucchelli, T., Rooney, R., & Girdler, S. (2017). A specialist peer mentoring program for university students on the autism spectrum. PLoS One, 12(7), e0180854. https://doi.org/10.1371/journal.pone.0180854
Statistics Sweden. (2015). Information on education and the labour market 2016: 1 The labour market situation for people with disabilities 2015. Stockholm, Sweden: Statistics Sweden.
Swedish Public Employment Service [Arbetsförmedlingen]. (2012). Special introduction and follow up support (SIUS). Sweden: Swedish Public Employment Service.
Van Manen, M. (1990). Researching lived experience: Human science for an action sensitive pedagogy. New York: State University of New York Press.
World Health Organization. (2002). Towards a common language for functioning, disability and health: The international classification of functioning, disability and health. Geneva: World Health Organization.
World Medical Association. (2013). World Medical Association Declaration of Helsinki: Ethical principles for medical research involving human subjects. JAMA, 310(20), 2191-2194. https://doi.org/10.1001/jama.2013.281053

Auteurs

Melissa H Black (MH)

School of Occupational Therapy, Social Work and Speech Pathology, Curtin University, Perth, Western Australia, Australia.
Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia.

Soheil Mahdi (S)

Center of Neurodevelopmental Disorders (KIND), Centre for Psychiatry Research, Department of Women's and Children's Health, Karolinska Institutet & Stockholm Health Care Services, Region Stockholm, Stockholm, Sweden.

Benjamin Milbourn (B)

School of Occupational Therapy, Social Work and Speech Pathology, Curtin University, Perth, Western Australia, Australia.
Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia.

Craig Thompson (C)

School of Occupational Therapy, Social Work and Speech Pathology, Curtin University, Perth, Western Australia, Australia.
Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia.

Axel D'Angelo (A)

Center of Neurodevelopmental Disorders (KIND), Centre for Psychiatry Research, Department of Women's and Children's Health, Karolinska Institutet & Stockholm Health Care Services, Region Stockholm, Stockholm, Sweden.

Eva Ström (E)

Swedish Public Employment Service, Unit for Rehabilitation and Work, Stockholm, Sweden.

Marita Falkmer (M)

School of Occupational Therapy, Social Work and Speech Pathology, Curtin University, Perth, Western Australia, Australia.
Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia.
CHILD, Swedish Institute for Disability Research, School of Education and Communication, Jönköping University, Jönköping, Sweden.

Torbjörn Falkmer (T)

School of Occupational Therapy, Social Work and Speech Pathology, Curtin University, Perth, Western Australia, Australia.
Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia.
Pain and Rehabilitation Centre, Department of Medical and Health Sciences, Linkoping University, Linkoping, Sweden.

Matthew Lerner (M)

Stony Brook University, Stony Brook, New York.

Alycia Halladay (A)

Autism Science Foundation, New York, New York.

Alan Gerber (A)

Stony Brook University, Stony Brook, New York.

Christopher Esposito (C)

Stony Brook University, Stony Brook, New York.

Sonya Girdler (S)

School of Occupational Therapy, Social Work and Speech Pathology, Curtin University, Perth, Western Australia, Australia.
Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia.

Sven Bölte (S)

School of Occupational Therapy, Social Work and Speech Pathology, Curtin University, Perth, Western Australia, Australia.
Curtin Autism Research Group, Curtin University, Perth, Western Australia, Australia.
Center of Neurodevelopmental Disorders (KIND), Centre for Psychiatry Research, Department of Women's and Children's Health, Karolinska Institutet & Stockholm Health Care Services, Region Stockholm, Stockholm, Sweden.
Child and Adolescent Psychiatry, Stockholm Health Care Services, Region Stockholm, Stockholm, Sweden.

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