Preparing for transition: The effects of a structured transition program on adolescent heart transplant patients' adherence and transplant knowledge.
Adolescent
Caregivers
Continuity of Patient Care
Female
Focus Groups
Health Knowledge, Attitudes, Practice
Heart Failure
/ surgery
Heart Transplantation
Humans
Immunosuppressive Agents
/ therapeutic use
Male
Medication Adherence
Parents
Patient Education as Topic
Retrospective Studies
Self Care
Surveys and Questionnaires
Transition to Adult Care
Young Adult
adherence
adolescence
adult care
heart transplant
transition
Journal
Pediatric transplantation
ISSN: 1399-3046
Titre abrégé: Pediatr Transplant
Pays: Denmark
ID NLM: 9802574
Informations de publication
Date de publication:
11 2019
11 2019
Historique:
received:
08
03
2019
revised:
04
06
2019
accepted:
16
06
2019
pubmed:
28
7
2019
medline:
20
9
2020
entrez:
27
7
2019
Statut:
ppublish
Résumé
Transition to adult health care has become a mainstream focus in pediatric health care as a higher percentage of patients are surviving into adulthood. This study investigated the success of a structured educational transition program in improving pediatric heart transplant patients' overall medical knowledge, medication adherence, readiness to transition, as well as parental perceptions of their child's readiness to transition to aid in the successful transition to an adult heart transplant program. Patients underwent a structured transition program over 2 years that included a total of seven 2-hour educational sessions hosted quarterly. This study comprised of a retrospective review of 12 heart transplant patients between the ages of 16-22 years. Test results indicated a statistically significant increase in overall medical knowledge scores from presession assessment compared to post-session assessment. Participants remained confident in their ability to transition throughout the program. Further, a statistically significant decrease in participant non-adherence was observed, as percentage of calcineurin inhibitor levels determined to be out of range decreased over the course of the program. Results suggest that a structured transition program is effective in improving overall patient medical knowledge in relation to their heart transplant and enhancing patient medication adherence. To effectively facilitate transition, pediatric providers, caregivers, and patients must communicate to provide a purposeful planned transition experience from pediatric to adult health care.
Substances chimiques
Immunosuppressive Agents
0
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
e13544Informations de copyright
© 2019 Wiley Periodicals, Inc.
Références
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