HIST1H1E heterozygous protein-truncating variants cause a recognizable syndrome with intellectual disability and distinctive facial gestalt: A study to clarify the HIST1H1E syndrome phenotype in 30 individuals.


Journal

American journal of medical genetics. Part A
ISSN: 1552-4833
Titre abrégé: Am J Med Genet A
Pays: United States
ID NLM: 101235741

Informations de publication

Date de publication:
10 2019
Historique:
received: 19 07 2019
revised: 25 07 2019
accepted: 27 07 2019
pubmed: 11 8 2019
medline: 4 8 2020
entrez: 11 8 2019
Statut: ppublish

Résumé

Histone Gene Cluster 1 Member E, HIST1H1E, encodes Histone H1.4, is one of a family of epigenetic regulator genes, acts as a linker histone protein, and is responsible for higher order chromatin structure. HIST1H1E syndrome (also known as Rahman syndrome, OMIM #617537) is a recently described intellectual disability (ID) syndrome. Since the initial description of five unrelated individuals with three different heterozygous protein-truncating variants (PTVs) in the HIST1H1E gene in 2017, we have recruited 30 patients, all with HIST1H1E PTVs that result in the same shift in frame and that cluster to a 94-base pair region in the HIST1H1E carboxy terminal domain. The identification of 30 patients with HIST1H1E variants has allowed the clarification of the HIST1H1E syndrome phenotype. Major findings include an ID and a recognizable facial appearance. ID was reported in all patients and is most frequently of moderate severity. The facial gestalt consists of a high frontal hairline and full lower cheeks in early childhood and, in later childhood and adulthood, affected individuals have a strikingly high frontal hairline, frontal bossing, and deep-set eyes. Other associated clinical features include hypothyroidism, abnormal dentition, behavioral issues, cryptorchidism, skeletal anomalies, and cardiac anomalies. Brain magnetic resonance imaging (MRI) is frequently abnormal with a slender corpus callosum a frequent finding.

Identifiants

pubmed: 31400068
doi: 10.1002/ajmg.a.61321
doi:

Substances chimiques

H1-4 protein, human 0
Histones 0

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

2049-2055

Subventions

Organisme : Child Growth Foundation
ID : GR01/13
Pays : International
Organisme : Wellcome Trust
ID : 100210/Z/12/Z
Pays : United Kingdom
Organisme : Health Innovation Challenge Fund
ID : HICF-1009-003
Pays : International
Organisme : Biomedical Research Centre
Pays : International

Informations de copyright

© 2019 Wiley Periodicals, Inc.

Références

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Auteurs

Deepika D'Cunha Burkardt (DD)

Center for Human Genetics,University Hospitals Rainbow Babies and Children, Department of genetics, Case Western Reserve University, Cleveland, Ohio.

Anna Zachariou (A)

Institute of Cancer Research, London, UK.

Chey Loveday (C)

Institute of Cancer Research, London, UK.

Clare L Allen (CL)

Lowerbank Dental Practice, Leyland, UK.

David J Amor (DJ)

Department of Paediatrics, The Royal Children's Hospital, Murdoch Children's Research Institute, University of Melbourne, Parkville, Victoria, Australia.

Anna Ardissone (A)

Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan, Lombardia, Italy.

Siddharth Banka (S)

Faculty of Biology, Medicine and Health, Division of Evolution and Genomic Sciences, School of Biological Sciences, University of Manchester, Manchester, UK.
Manchester Centre for Genomic Medicine, St Mary's Hospital, Manchester University NHS Foundation Trust, Health Innovation Manchester, Manchester, UK.

Alexia Bourgois (A)

CHU Côte de Nacre, Service de Génétique, Caen, France.

Christine Coubes (C)

Hôpital Arnaud de Villeneuve Montpellier, Montpellier, France.

Cheryl Cytrynbaum (C)

Division of Clinical and Metabolic Genetics, The Hospital for Sick Children, Toronto, Ontario, Canada.

Laurence Faivre (L)

Genetics Center, Hôpital d'Enfants, Dijon, France.

Gerard Marion (G)

Service de Génétique, Centre Hospitalier Universitaire de Caen Normandie, Caen, France.

Rachel Horton (R)

University Hospital Southampton NHS Foundation Trust, Southampton, UK.

Dieter Kotzot (D)

Division of Clinical Genetics, Department of Pediatrics, Paracelsus Medical University Salzburg, Salzburg, Austria.

Guillermo Lay-Son (G)

División de Pediatría, Pontificia Universidad Católica de Chile, Santiago, Chile.

Melissa Lees (M)

Clinical Genetics Department, Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK.

Karen Low (K)

Clinical Genetics, St Michaels Hospital, University Hospitals Bristol, Bristol, UK.

Ho-Ming Luk (HM)

Department of Health, Clinical Genetic Service, Hong Kong, Hong Kong.

Paul Mark (P)

Spectrum Health Division of Medical Genetics, Grand Rapids, Michigan.

Allyn McConkie-Rosell (A)

Division of Medical Genetics, Department of Pediatrics, Duke University Medical Genetics, Durham, North Carolina.

Marie McDonald (M)

Division of Medical Genetics, Department of Pediatrics, Duke University Medical Genetics, Durham, North Carolina.

John Pappas (J)

Human Genetics Program, University School of Medicine, New York, New York, USA.

Christophe Phillipe (C)

UF Innovation en Diagnostic Génomique des Maladies Rares, CHU Dijon Bourgogne, INSERM UMR1231 GAD, Dijon, France.

Deborah Shears (D)

Clinical Genetics, Churchill Hospital, Oxford, UK.

Brian Skotko (B)

Division of Medical Genetics and Genomics, Department of Pediatrics, Massachusetts General Hospital, Harvard Medical School, Boston, Massachusetts.

Fiona Stewart (F)

Medical Genetics, Belfast City Hospital, Belfast, UK.

Helen Stewart (H)

Clinical Genetics, Oxford University Hospitals NHS Foundation Trust, Oxford Centre for Genomic Medicine, Nuffield Orthopaedic Centre, Oxford, UK.

I Karen Temple (IK)

Faculty of Medicine, Wessex Clinical Genetics Service, University Hospital Southampton, University of Southampton, Southampton, UK.

Frederic T Mau-Them (FT)

UF D'innovation en Génétique Moléculaire, Plateau Technique de Biologie, Centre Hospitalier Universitaire de Dijon, FHU TRANSLAD, Dijon, France.

Ricardo A Verdugo (RA)

Programa de Genética Humans, ICBM, Santiago, Chile.

Rosanna Weksberg (R)

Division of Clinical and Metabolic Genetics, The Hospital for Sick Children, Toronto, Ontario, Canada.

Yuri A Zarate (YA)

Section of Genetics and Metabolism, Arkansas Children's Hospital, Little Rock, Arkansas.

John M Graham (JM)

Medical Genetics, Cedars-Sinai Medical Center, Los Angeles, California.

Katrina Tatton-Brown (K)

Institute of Cancer Research, London, UK.
South West Thames Regional Genetics Service, St George's University Hospitals NHS Foundation Trust, London, UK.
St George's University of London, London, UK.

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