Rural palliative care to support dying at home can be realised; experiences of family members and nurses with a new model of care.
attitude to death
bereavement
oncology
palliative care
rural health services
Journal
The Australian journal of rural health
ISSN: 1440-1584
Titre abrégé: Aust J Rural Health
Pays: Australia
ID NLM: 9305903
Informations de publication
Date de publication:
Aug 2019
Aug 2019
Historique:
received:
16
11
2018
revised:
06
03
2019
accepted:
07
04
2019
entrez:
21
8
2019
pubmed:
21
8
2019
medline:
6
2
2020
Statut:
ppublish
Résumé
While 60%-70% of people would prefer to die at home, only 14% do so. Families in a rural environment feel particularly unsupported in fulfilling this last wish of their loved one, which reflects the general shortage of health care workforce and resource allocation to institutions. The aim of this study was to describe the experience of families and nurses with extended rural palliative care to support dying at home. Semistructured interviews were conducted with family members and nurses. Process data were included to describe the frequency and nature of contacts. The results were analysed using descriptive analysis. A rural town in Northern Victoria, Australia (Australian Statistical Geography Standard-Remoteness Area). Ten family members and four nurses were interviewed. Experience with the extended palliative care service and with the dying at home process. All patients in the project died at home. The families were very positive about the extended palliative care; it increased their familiarity with dying, and had a positive impact on bereavement. The nurses were equally positive, but also commented on the need to debrief and on the heavy emotional toll the work takes. Rural care support for dying at home can be realised. This study has demonstrated the positive impact of an end-of-life service, while at the same time pointing to concerns of the nursing staff on the suitability of the model of care. Health care workers and communities alike need to be educated and have conversations on end-of-life care.
Types de publication
Journal Article
Langues
eng
Pagination
336-343Subventions
Organisme : Murray Primary Health Network (PHN)
ID : EOI_CORP_AH103
Informations de copyright
© 2019 National Rural Health Alliance Ltd.
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