A shared decision-making tool for individuals living with complete androgen insensitivity syndrome.
Complete androgen insensitivity syndrome
Decision support tool
Differences of sex development
Disorders of sex development
Shared decision-making
Journal
Seminars in pediatric surgery
ISSN: 1532-9453
Titre abrégé: Semin Pediatr Surg
Pays: United States
ID NLM: 9216162
Informations de publication
Date de publication:
Oct 2019
Oct 2019
Historique:
entrez:
1
11
2019
pubmed:
2
11
2019
medline:
30
4
2020
Statut:
ppublish
Résumé
Reports exist regarding a gradual approach to the care of patients with differences of sexual development. Each patient and family have different values and styles of learning that have to be taken into account. The goals of care should include education about the condition, counseling of the patient and family, and a complete outlining of treatment options. Motivated by a call from the 2010 Health Reform Law for the use of shared decision-making tools and the emphasis placed on these issues by the DSD Consensus Statement, we sought to develop and implement such tools for the DSD population.
Identifiants
pubmed: 31668289
pii: S1055-8586(19)30102-7
doi: 10.1016/j.sempedsurg.2019.150844
pmc: PMC7208826
mid: NIHMS1560125
pii:
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
150844Subventions
Organisme : NICHD NIH HHS
ID : R01 HD093450
Pays : United States
Informations de copyright
Copyright © 2019 Elsevier Inc. All rights reserved.
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