Human relationships in patients' end-of-life: a qualitative study in a hospice ward.


Journal

Internal and emergency medicine
ISSN: 1970-9366
Titre abrégé: Intern Emerg Med
Pays: Italy
ID NLM: 101263418

Informations de publication

Date de publication:
09 2020
Historique:
received: 16 07 2019
accepted: 04 12 2019
pubmed: 19 12 2019
medline: 18 5 2021
entrez: 19 12 2019
Statut: ppublish

Résumé

Living in a hospice department is an intense experience for patients, caregivers, and healthcare professionals. End-of-life care aims to conduct vulnerable dying patients towards a painless and peaceful death. The importance of a strong staff-patient relationship and the perspective of pain and suffering from patients has already been studied. This study aimed to explore patients' inner needs living in hospice through a qualitative research approach. A descriptive qualitative study was conducted in the hospice department at ARNAS Civico in Palermo, Italy. From a qualitative research point of view, a significant sample of ten dying patients was interviewed. Data were collected until saturation by in-depth interview using a semi-structured interview guide, and Colaizzi's method was used. Five themes emerged: experiencing hospice, hospice staff, family role, coping with the disease, and death. Human relationships seem to represent a fundamental key in patients' end-of-life, especially in their family fondness. Predictably, terminally ill patients seem to fear pain and incoming death. Even though patients had everything they needed in the hospice, their main thoughts were always focused on human relationships. End-of-life medicine should improve the quality of time that each patient could spend with significant others to improve end-of-life care.

Identifiants

pubmed: 31848995
doi: 10.1007/s11739-019-02254-6
pii: 10.1007/s11739-019-02254-6
doi:

Types de publication

Journal Article

Langues

eng

Sous-ensembles de citation

IM

Pagination

975-980

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Auteurs

Marika Lo Monaco (M)

Department of Internal Medicine, National Relevance and High Specialization Hospital Trust ARNAS Civico, Di Cristina, Benfratelli, 90127, Palermo, Italy.
I.E.ME.S.T., 90139, Palermo, Italy.
School of Biomedicine and Neuroscience BiND, University of Palermo, 90127, Palermo, Italy.

Raffaella Mallaci Bocchio (R)

Department of Internal Medicine, National Relevance and High Specialization Hospital Trust ARNAS Civico, Di Cristina, Benfratelli, 90127, Palermo, Italy.
I.E.ME.S.T., 90139, Palermo, Italy.

Giuseppe Natoli (G)

Department of Internal Medicine, National Relevance and High Specialization Hospital Trust ARNAS Civico, Di Cristina, Benfratelli, 90127, Palermo, Italy.
I.E.ME.S.T., 90139, Palermo, Italy.

Salvatore Scibetta (S)

Department of Internal Medicine, National Relevance and High Specialization Hospital Trust ARNAS Civico, Di Cristina, Benfratelli, 90127, Palermo, Italy.

Teresa Bongiorno (T)

Department of Internal Medicine, National Relevance and High Specialization Hospital Trust ARNAS Civico, Di Cristina, Benfratelli, 90127, Palermo, Italy.

Christiano Argano (C)

Department of Internal Medicine, National Relevance and High Specialization Hospital Trust ARNAS Civico, Di Cristina, Benfratelli, 90127, Palermo, Italy.

Salvatore Corrao (S)

Materno Infantile, Medicina Interna E Specialistica Di Eccellenza "G. D'Alessandro", PROMISE, Dipartimento Di Promozione Della Salute, University of Palermo, 90133, Palermo, Italy. s.corrao@tiscali.it.
Department of Internal Medicine, National Relevance and High Specialization Hospital Trust ARNAS Civico, Di Cristina, Benfratelli, 90127, Palermo, Italy. s.corrao@tiscali.it.
I.E.ME.S.T., 90139, Palermo, Italy. s.corrao@tiscali.it.
School of Biomedicine and Neuroscience BiND, University of Palermo, 90127, Palermo, Italy. s.corrao@tiscali.it.
Centre of Research for Effectiveness and Appropriateness in Medicine (CREAM), University of Palermo, Palermo, Italy. s.corrao@tiscali.it.
Biomedical Department of Internal Medicine and Subspecialities [DiBiMIS], University of Palermo, Palermo, Italy. s.corrao@tiscali.it.

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