Multilevel analyses of related public health indicators: The European Surveillance of Congenital Anomalies (EUROCAT) Public Health Indicators.


Journal

Paediatric and perinatal epidemiology
ISSN: 1365-3016
Titre abrégé: Paediatr Perinat Epidemiol
Pays: England
ID NLM: 8709766

Informations de publication

Date de publication:
03 2020
Historique:
received: 02 08 2019
revised: 13 01 2020
accepted: 21 01 2020
entrez: 27 2 2020
pubmed: 27 2 2020
medline: 20 2 2021
Statut: ppublish

Résumé

Public health organisations use public health indicators to guide health policy. Joint analysis of multiple public health indicators can provide a more comprehensive understanding of what they are intended to evaluate. To analyse variaitons in the prevalence of congenital anomaly-related perinatal mortality attributable to termination of pregnancy for foetal anomaly (TOPFA) and prenatal diagnosis of congenital anomaly prevalence. We included 55 363 cases of congenital anomalies notified to 18 EUROCAT registers in 10 countries during 2008-12. Incidence rate ratios (IRR) representing the risk of congenital anomaly-related perinatal mortality according to TOPFA and prenatal diagnosis prevalence were estimated using multilevel Poisson regression with country as a random effect. Between-country variation in congenital anomaly-related perinatal mortality was measured using random effects and compared between the null and adjusted models to estimate the percentage of variation in congenital anomaly-related perinatal mortality accounted for by TOPFA and prenatal diagnosis. The risk of congenital anomaly-related perinatal mortality decreased as TOPFA and prenatal diagnosis prevalence increased (IRR 0.79, 95% confidence interval [CI] 0.72, 0.86; and IRR 0.88, 95% CI 0.79, 0.97). Modelling TOPFA and prenatal diagnosis together, the association between congenital anomaly-related perinatal mortality and TOPFA prevalence became stronger (RR 0.70, 95% CI 0.61, 0.81). The prevalence of TOPFA and prenatal diagnosis accounted for 75.5% and 37.7% of the between-country variation in perinatal mortality, respectively. We demonstrated an approach for analysing inter-linked public health indicators. In this example, as TOPFA and prenatal diagnosis of congenital anomaly prevalence decreased, the risk of congenital anomaly-related perinatal mortality increased. Much of the between-country variation in congenital anomaly-related perinatal mortality was accounted for by TOPFA, with a smaller proportion accounted for by prenatal diagnosis.

Sections du résumé

BACKGROUND
Public health organisations use public health indicators to guide health policy. Joint analysis of multiple public health indicators can provide a more comprehensive understanding of what they are intended to evaluate.
OBJECTIVE
To analyse variaitons in the prevalence of congenital anomaly-related perinatal mortality attributable to termination of pregnancy for foetal anomaly (TOPFA) and prenatal diagnosis of congenital anomaly prevalence.
METHODS
We included 55 363 cases of congenital anomalies notified to 18 EUROCAT registers in 10 countries during 2008-12. Incidence rate ratios (IRR) representing the risk of congenital anomaly-related perinatal mortality according to TOPFA and prenatal diagnosis prevalence were estimated using multilevel Poisson regression with country as a random effect. Between-country variation in congenital anomaly-related perinatal mortality was measured using random effects and compared between the null and adjusted models to estimate the percentage of variation in congenital anomaly-related perinatal mortality accounted for by TOPFA and prenatal diagnosis.
RESULTS
The risk of congenital anomaly-related perinatal mortality decreased as TOPFA and prenatal diagnosis prevalence increased (IRR 0.79, 95% confidence interval [CI] 0.72, 0.86; and IRR 0.88, 95% CI 0.79, 0.97). Modelling TOPFA and prenatal diagnosis together, the association between congenital anomaly-related perinatal mortality and TOPFA prevalence became stronger (RR 0.70, 95% CI 0.61, 0.81). The prevalence of TOPFA and prenatal diagnosis accounted for 75.5% and 37.7% of the between-country variation in perinatal mortality, respectively.
CONCLUSION
We demonstrated an approach for analysing inter-linked public health indicators. In this example, as TOPFA and prenatal diagnosis of congenital anomaly prevalence decreased, the risk of congenital anomaly-related perinatal mortality increased. Much of the between-country variation in congenital anomaly-related perinatal mortality was accounted for by TOPFA, with a smaller proportion accounted for by prenatal diagnosis.

Identifiants

pubmed: 32101337
doi: 10.1111/ppe.12655
pmc: PMC7064886
doi:

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

122-129

Subventions

Organisme : Wellcome Trust
Pays : United Kingdom

Informations de copyright

© 2020 The Authors. Paediatric and Perinatal Epidemiology published by John Wiley & Sons Ltd.

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Auteurs

Kate E Best (KE)

Institute of Health & Society, Newcastle University, Newcastle upon Tyne, UK.

Judith Rankin (J)

Institute of Health & Society, Newcastle University, Newcastle upon Tyne, UK.

Helen Dolk (H)

Centre for Maternal, Fetal and Infant Research, Institute of Nursing and Health Research, Ulster University, Ulster, UK.

Maria Loane (M)

Centre for Maternal, Fetal and Infant Research, Institute of Nursing and Health Research, Ulster University, Ulster, UK.

Martin Haeusler (M)

Medical University of Graz, Graz, Austria.

Vera Nelen (V)

Provinciaal Instituut voor Hygiëne, Antwerp, Belgium.

Christine Verellen-Dumoulin (C)

Eurocat Hainaut -Namur, Centre for Human Genetics, Institut de Pathologie et de Génétique, IPG, Charleroi, Belgium.

Ester Garne (E)

Paediatric Department, Hospital Lillebaelt, Kolding, Denmark.

Gerardine Sayers (G)

Health Intelligence, Health Service Executive, Dublin, Ireland.

Carmel Mullaney (C)

Public Health Department, HSE Southeast area, Lacken, Kilkenny, Ireland.

Mary T O'Mahony (MT)

Department of Public Health, Health Service Executive South, Cork, Ireland.

Miriam Gatt (M)

Department of Health Information and Research, Guardamangia, Malta.

Hermien De Walle (H)

Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.

Kari Klungsoyr (K)

Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway.

Olatz Mokoroa Carolla (OM)

Public Health Division of Gipuzkoa, BioDonostia Research Institute, San Sebastian, Spain.

Clara Cavero-Carbonell (C)

Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research of the Valencian Region, Valencia, Spain.

Jennifer J Kurinczuk (JJ)

National Perinatal Epidemiology Unit, Nuffield Department of Population Health, University of Oxford, Oxford, UK.

Elizabeth S Draper (ES)

Department Health Sciences, University of Leicester, Leicester, UK.

David Tucker (D)

Congenital Anomaly Register and Information Service for Wales, Public Health Wales, Swansea, UK.

Diana Wellesley (D)

Faculty of Medicine, University of Southampton and Wessex Clinical Genetics Service, Southampton, UK.

Nataliia Zymak-Zakutnia (N)

OMNI-Net Ukraine and Khmelnytsky Children Hospital, Khmelnytsky, Ukraine.

Nathalie Lelong (N)

INSERM U1153 (Obstetrical, Perinatal and Pediatric Epidemiology Research Team, Center for Biostatistics and Epidemiology), Maternité Port Royal, Paris, France.

Babak Khoshnood (B)

INSERM U1153 (Obstetrical, Perinatal and Pediatric Epidemiology Research Team, Center for Biostatistics and Epidemiology), Maternité Port Royal, Paris, France.

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