Toward Reducing Health Information Inequities in the Caribbean: Our Experience Building a Participatory Health Informatics Project.
Caribbean Region
Cultural Characteristics
Cultural Competency
Health Education
/ organization & administration
Healthcare Disparities
/ statistics & numerical data
Humans
Information Dissemination
Native Hawaiian or Other Pacific Islander
/ statistics & numerical data
Public Health Informatics
/ organization & administration
Socioeconomic Factors
Caribbean
Community-Engaged Health Informatics
Data Sharing
Precision Medicine
Journal
Ethnicity & disease
ISSN: 1945-0826
Titre abrégé: Ethn Dis
Pays: United States
ID NLM: 9109034
Informations de publication
Date de publication:
2020
2020
Historique:
entrez:
10
4
2020
pubmed:
10
4
2020
medline:
2
2
2021
Statut:
epublish
Résumé
Precision medicine seeks to leverage technology to improve the health for all individuals. Successful health information systems rely fundamentally on the integration and sharing of data from a range of disparate sources. In many settings, basic infrastructure inequities exist that limit the usefulness of health information systems. We discuss the work of the Yale Transdisciplinary Collaborative Center for Health Disparities focused on Precision Medicine, which aims to improve the health of people in the Caribbean and Caribbean diaspora by leveraging precision medicine approaches. We describe a participatory informatics approach to sharing data as a potential mechanism to reducing inequities in the existing data infrastructure.
Identifiants
pubmed: 32269461
doi: 10.18865/ed.30.S1.193
pii: ed.30.S1.193
pmc: PMC7138447
doi:
Types de publication
Journal Article
Research Support, N.I.H., Extramural
Langues
eng
Sous-ensembles de citation
IM
Pagination
193-202Subventions
Organisme : NIMHD NIH HHS
ID : U54 MD010711
Pays : United States
Informations de copyright
Copyright © 2020, Ethnicity & Disease, Inc.
Déclaration de conflit d'intérêts
Competing Interests: None declared.
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