A new family with epiphyseal chondrodysplasia type Miura.


Journal

American journal of medical genetics. Part A
ISSN: 1552-4833
Titre abrégé: Am J Med Genet A
Pays: United States
ID NLM: 101235741

Informations de publication

Date de publication:
01 2021
Historique:
received: 11 07 2020
revised: 08 09 2020
accepted: 19 09 2020
pubmed: 20 10 2020
medline: 30 6 2021
entrez: 19 10 2020
Statut: ppublish

Résumé

Epiphyseal chondrodysplasia, Miura type (ECDM) is a skeletal dysplasia with tall stature and distinctive skeletal features caused by heterozygous NPR2 pathogenic variants. Only four families have been reported. We present a family with five affected individuals (mother, three sons, and daughter). The mother's phenotype was relatively mild: borderline tall stature and elongated halluces operated during childhood. The children were remarkably more severely affected with tall stature, scoliosis, and elongated toes and fingers leading to suspicion of Marfan syndrome. Progressive valgus deformities (at the hips, knees, and ankles) were the main complaints and necessitated orthopedic investigations and surgery. Radiographs showed coxa valga, scoliosis, multiple pseudoepiphyses of the fingers and toes with uneven elongation of the digits and ankle valgus. The two older brothers underwent osteotomies and guided growth for axial deformities and arthrodesis for elongated halluces. Genetic testing confirmed the clinical diagnosis of ECDM: all affected individuals had a heterozygous c.2647G>A (p.Val883Met) NPR2 variant in a highly conserved region in the carboxyl-terminal guanylyl cyclase domain. This two-generation family elucidates the clinical and radiological variability of the disease. These rare cases are important to gain further understanding of the fundamental processes of growth regulation.

Identifiants

pubmed: 33073519
doi: 10.1002/ajmg.a.61923
doi:

Substances chimiques

Receptors, Atrial Natriuretic Factor EC 4.6.1.2
atrial natriuretic factor receptor B EC 4.6.1.2

Types de publication

Journal Article Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

112-118

Informations de copyright

© 2020 Wiley Periodicals LLC.

Références

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Auteurs

Vladimir Kenis (V)

H. Turner National Medical Research Center for Children's Orthopedics and Trauma Surgery, Saint-Petersburg, Russia.

Eugeniy Melchenko (E)

H. Turner National Medical Research Center for Children's Orthopedics and Trauma Surgery, Saint-Petersburg, Russia.

Ilya Mazunin (I)

Center of Life Sciences, Skolkovo Institute of Science and Technology, Skolkovo, Russia.
Fomin Women's Health Clinic, Moscow, Russia.

Minna Pekkinen (M)

Children's Hospital, Pediatric Research Center, University of Helsinki and Helsinki University Hospital, Helsinki, Finland.
Folkhälsan Institute of Genetics, Helsinki, Finland.
Faculty of Medicine, Research Program for Clinical and Molecular Metabolism, University of Helsinki, Helsinki, Finland.

Outi Mäkitie (O)

Children's Hospital, Pediatric Research Center, University of Helsinki and Helsinki University Hospital, Helsinki, Finland.
Folkhälsan Institute of Genetics, Helsinki, Finland.
Faculty of Medicine, Research Program for Clinical and Molecular Metabolism, University of Helsinki, Helsinki, Finland.
Center for Molecular Medicine, Karolinska Institutet, and Clinical Genetics, Karolinska University Hospital, Stockholm, Sweden.

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