New insights into the socio-economic aspects of multiple sclerosis in a cohort of Polish patients.
Multiple sclerosis
Poland
diagnosis
inequalities
rural
socio-economic
urban
Journal
Annals of agricultural and environmental medicine : AAEM
ISSN: 1898-2263
Titre abrégé: Ann Agric Environ Med
Pays: Poland
ID NLM: 9500166
Informations de publication
Date de publication:
18 Mar 2021
18 Mar 2021
Historique:
entrez:
29
3
2021
pubmed:
30
3
2021
medline:
5
5
2021
Statut:
ppublish
Résumé
The diagnosis of multiple sclerosis (MS) affects the socio-economic aspects of patients' lives and poses new challenges. The objectives of the study were: 1) to determine selected socio-economic aspects of MS in Poland in relation to the disease type and patients' place of residence, and 2) to evaluate the profile of patients via the MS Society (MSS) and the occupational consequences of informing an employer about the diagnosis. A retrospective, observational study was undertaken to assess a cohort of 375 Polish MS patients. Socio-economic data was collected based on the patients' responses to questions on a questionnaire. Clinical data was obtained from available medical records. Patients with relapsing-remitting MS had a significantly longer time of occupational activity, higher economic status, higher level of education, better relationships with life partner, less likely to benefit from disability benefits, and members of MSS, than patients with progressive types of the disease. The patients living in rural areas had a significantly shorter time of occupational activity, more often experienced a decrease in income, received disability pension, and were less educated than urban residents. Patients who informed their employer about an MS diagnosis significantly more often received support from the company, were professionally active for longer, and less likely to experience a decrease in income. Membership of the MSS were dominated by patients with progressive variants of the disease and advanced disability. The disease variant and, to a lesser extent, the place of residence, affected the socio-economic aspects of MS. It might be advantageous for the patient to disclose information about MS diagnosis to the employer.
Identifiants
pubmed: 33775074
pii: 117962
doi: 10.26444/aaem/117962
pii:
doi:
Types de publication
Journal Article
Observational Study
Langues
eng
Sous-ensembles de citation
IM