New insights into the socio-economic aspects of multiple sclerosis in a cohort of Polish patients.


Journal

Annals of agricultural and environmental medicine : AAEM
ISSN: 1898-2263
Titre abrégé: Ann Agric Environ Med
Pays: Poland
ID NLM: 9500166

Informations de publication

Date de publication:
18 Mar 2021
Historique:
entrez: 29 3 2021
pubmed: 30 3 2021
medline: 5 5 2021
Statut: ppublish

Résumé

The diagnosis of multiple sclerosis (MS) affects the socio-economic aspects of patients' lives and poses new challenges. The objectives of the study were: 1) to determine selected socio-economic aspects of MS in Poland in relation to the disease type and patients' place of residence, and 2) to evaluate the profile of patients via the MS Society (MSS) and the occupational consequences of informing an employer about the diagnosis. A retrospective, observational study was undertaken to assess a cohort of 375 Polish MS patients. Socio-economic data was collected based on the patients' responses to questions on a questionnaire. Clinical data was obtained from available medical records. Patients with relapsing-remitting MS had a significantly longer time of occupational activity, higher economic status, higher level of education, better relationships with life partner, less likely to benefit from disability benefits, and members of MSS, than patients with progressive types of the disease. The patients living in rural areas had a significantly shorter time of occupational activity, more often experienced a decrease in income, received disability pension, and were less educated than urban residents. Patients who informed their employer about an MS diagnosis significantly more often received support from the company, were professionally active for longer, and less likely to experience a decrease in income. Membership of the MSS were dominated by patients with progressive variants of the disease and advanced disability. The disease variant and, to a lesser extent, the place of residence, affected the socio-economic aspects of MS. It might be advantageous for the patient to disclose information about MS diagnosis to the employer.

Identifiants

pubmed: 33775074
pii: 117962
doi: 10.26444/aaem/117962
pii:
doi:

Types de publication

Journal Article Observational Study

Langues

eng

Sous-ensembles de citation

IM

Pagination

99-106

Auteurs

Łukasz Rzepiński (Ł)

Department of Neurology, 10th Military Research Hospital and Polyclinic, Bydgoszcz, Poland.

Monika Zawadka-Kunikowska (M)

Department of Hygiene, Epidemiology and Ergonomy, Nicolaus Copernicus University, Torun, Poland.

Jan Kucharczuk (J)

Department of Ophthalmology, 10th Military Research Hospital and Polyclinic, Bydgoszcz, Poland.

Julia Newton (J)

Institute of Cellular Medicine, Newcastle University, United Kingdom.

Paweł Zalewski (P)

Department of Hygiene, Epidemiology and Ergonomy, Nicolaus Copernicus University, Torun, Poland.

Articles similaires

[Redispensing of expensive oral anticancer medicines: a practical application].

Lisanne N van Merendonk, Kübra Akgöl, Bastiaan Nuijen
1.00
Humans Antineoplastic Agents Administration, Oral Drug Costs Counterfeit Drugs

Smoking Cessation and Incident Cardiovascular Disease.

Jun Hwan Cho, Seung Yong Shin, Hoseob Kim et al.
1.00
Humans Male Smoking Cessation Cardiovascular Diseases Female
Humans United States Aged Cross-Sectional Studies Medicare Part C
1.00
Humans Yoga Low Back Pain Female Male

Classifications MeSH