Facilitators and barriers to return to work and meet financial needs in parents of children with cancer.
financial burden
parents
pediatric oncology
psychosocial
return to work
support care
Journal
Pediatric blood & cancer
ISSN: 1545-5017
Titre abrégé: Pediatr Blood Cancer
Pays: United States
ID NLM: 101186624
Informations de publication
Date de publication:
10 2021
10 2021
Historique:
revised:
06
07
2021
received:
08
05
2021
accepted:
08
07
2021
pubmed:
29
7
2021
medline:
24
2
2022
entrez:
28
7
2021
Statut:
ppublish
Résumé
The aim of this study was to explore what facilitators and barriers parents of children with cancer identify for their ability to return to work and meet financial needs. Nine focus groups (21 mothers; 11 fathers) were performed across Sweden in 2015 and 2019. A deductive content analysis approach was used. A preconstructed matrix consisting of 12 codes based on previous literature was used to organize the data. The codes were grouped into subcategories, which were abstracted to four generic categories. Facilitators for a return to work were covered in the category "Flexibility and understanding from employers and social services," and barriers in the category "Pressure to return without consideration of the consequences." Facilitators to meeting financial needs were covered in the category "Available public, private, and employer support," and barriers in the category "Lack of organized and efficient support from employers and social services." The identified barriers suggest that there is room for improvement in the provision of psychosocial support, which relates to a perceived lack of organized support regarding practical, financial, and occupational matters. The results show a need for a coordinated support system that includes major stakeholders, such as the health care, welfare agencies, and employers. Moreover, employers should consider how to implement more workplace flexibility and involvement of occupational health services. Importantly, to be able to return to work and achieve a sustainable financial situation, it is necessary for all stakeholders to recognize the long-term impact of parenting a child with cancer.
Sections du résumé
BACKGROUND
The aim of this study was to explore what facilitators and barriers parents of children with cancer identify for their ability to return to work and meet financial needs.
PROCEDURE
Nine focus groups (21 mothers; 11 fathers) were performed across Sweden in 2015 and 2019. A deductive content analysis approach was used. A preconstructed matrix consisting of 12 codes based on previous literature was used to organize the data. The codes were grouped into subcategories, which were abstracted to four generic categories.
RESULTS
Facilitators for a return to work were covered in the category "Flexibility and understanding from employers and social services," and barriers in the category "Pressure to return without consideration of the consequences." Facilitators to meeting financial needs were covered in the category "Available public, private, and employer support," and barriers in the category "Lack of organized and efficient support from employers and social services."
CONCLUSIONS
The identified barriers suggest that there is room for improvement in the provision of psychosocial support, which relates to a perceived lack of organized support regarding practical, financial, and occupational matters. The results show a need for a coordinated support system that includes major stakeholders, such as the health care, welfare agencies, and employers. Moreover, employers should consider how to implement more workplace flexibility and involvement of occupational health services. Importantly, to be able to return to work and achieve a sustainable financial situation, it is necessary for all stakeholders to recognize the long-term impact of parenting a child with cancer.
Types de publication
Journal Article
Research Support, Non-U.S. Gov't
Langues
eng
Sous-ensembles de citation
IM
Pagination
e29245Informations de copyright
© 2021 The Authors. Pediatric Blood & Cancer published by Wiley Periodicals LLC.
Références
Wiener L, Kazak AE, Noll RB, Patenaude AF, Kupst MJ. Standards for the psychosocial care of children with cancer and their families: an introduction to the special issue. Pediatr Blood Cancer. 2015;62(Suppl 5):S419-S424.
Pelletier W, Bona K. Assessment of financial burden as a standard of care in pediatric oncology. Pediatr Blood Cancer. 2015;62(Suppl 5):S619-S631.
Roser K, Erdmann F, Michel G, Winther JF, Mader L. The impact of childhood cancer on parents' socio-economic situation - a systematic review. Psychooncology. 2019;28(6):1207-1226.
Santacroce SJ, Tan KR, Killela MK. A systematic scoping review of the recent literature (approximately 2011-2017) about the costs of illness to parents of children diagnosed with cancer. Eur J Oncol Nurs. 2018;35:22-32.
Hovén E, von Essen L, Norberg AL. A longitudinal assessment of work situation, sick leave, and household income of mothers and fathers of children with cancer in Sweden. Acta Oncol. 2013;52(6):1076-1085.
Hjelmstedt S, Lindahl Norberg A, Montgomery S, Hovén E. Sick leave among parents of children with cancer - a national cohort study. Acta Oncol. 2017;56(5):692-697.
Lindahl Norberg A, Montgomery SM, Bottai M, Heyman M, Hovén EI. Short-term and long-term effects of childhood cancer on income from employment and employment status: a national cohort study in Sweden. Cancer. 2017;123(7):1238-1248.
Hiyoshi A, Montgomery S, Bottai M, Hovén EI. Trajectories of income and social benefits for mothers and fathers of children with cancer: a national cohort study in Sweden. Cancer. 2018;124(7):1492-1500.
Kukkola L, Hovén E, Cernvall M, von Essen L, Gronqvist H. Perceptions of support among Swedish parents of children after end of successful cancer treatment: a prospective, longitudinal study. Acta Oncol. 2017;56(12):1705-1711.
Poder U, von Essen L. Perceptions of support among Swedish parents of children on cancer treatment: a prospective, longitudinal study. Eur J Cancer Care (Engl). 2009;18(4):350-357.
Ljungman L, Boger M, Ander M, et al. Impressions that last: particularly negative and positive experiences reported by parents five years after the end of a child's successful cancer treatment or death. PLoS One. 2016;11(6):e0157076.
Brown TJ, Clark C. Employed parents of children with disabilities and work family life balance: a literature review. Child Youth Care Forum. 2017;46(6):857-876.
Kish AM, Haslam DM, Newcombe PA. Child chronic illness and parent work-family conflict: investigating the experiences of working parents. J Child Fam Stud. 2020;29(5):1312-1325.
Wakefield CE, McLoone JK, Evans NT, Ellis SJ, Cohn RJ. It's more than dollars and cents: the impact of childhood cancer on parents' occupational and financial health. J Psychosoc Oncol. 2014;32(5):602-621.
Greidanus MA, de Boer A, De Rijk AE, et al. Perceived employer-related barriers and facilitators for work participation of cancer survivors: a systematic review of employers' and survivors' perspectives. Psychooncology. 2018;27(3):725-733.
Morgan DL. Focus Groups as Qualitative Research. Qualitative Research Methods Series. 2nd ed. Thousand Oaks, California: SAGE Publications; 1997.
Malterud K, Siersma VD, Guassora AD. Sample size in qualitativei studies: guided by information power. Qual Health Res. 2016;26(13):1753-1760.
Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107-115.
Christen S, Mader L, Baenziger J, et al. “I wish someone had once asked me how I'm doing”: disadvantages and support needs faced by parents of long-term childhood cancer survivors. Pediatr Blood Cancer. 2019;66(8):e27767.
Kelada L, Wakefield CE, Vetsch J, et al. Financial toxicity of childhood cancer and changes to parents' employment after treatment completion. Pediatr Blood Cancer. 2020;67(7):e28345.
Peikert ML, Inhestern L, Krauth KA, et al. Returning to daily life: a qualitative interview study on parents of childhood cancer survivors in Germany. BMJ Open. 2020;10(3):e033730.
Wakefield CE, Fardell JE, Doolan EL, et al. Participation in psychosocial oncology and quality-of-life research: a systematic review. Lancet Oncol. 2017;18(3):e153-e165.
Kish AM, Newcombe PA, Haslam DM. Working and caring for a child with chronic illness: a review of current literature. Child Care Health Dev. 2018;44(3):343-354.
Wiener L, Kupst MJ, Pelletier W, Kazak AE, Thompson AL. Tools to guide the identification and implementation of care consistent with the psychosocial standards of care. Pediatr Blood Cancer. 2020;67(9):e28586.