A double-blind, placebo-controlled, randomized trial of PXT3003 for the treatment of Charcot-Marie-Tooth type 1A.

CMT1A Charcot–Marie–Tooth Neuromuscular disorder Overall Neuropathy Limitations Scale PMP22 PXT3003 Randomized controlled trial

Journal

Orphanet journal of rare diseases
ISSN: 1750-1172
Titre abrégé: Orphanet J Rare Dis
Pays: England
ID NLM: 101266602

Informations de publication

Date de publication:
16 10 2021
Historique:
received: 28 04 2021
accepted: 19 09 2021
entrez: 17 10 2021
pubmed: 18 10 2021
medline: 3 11 2021
Statut: epublish

Résumé

Charcot-Marie-Tooth disease type 1A (CMT1A) is a rare, orphan, hereditary neuromuscular disorder with no cure and for which only symptomatic treatment is currently available. A previous phase 2 trial has shown preliminary evidence of efficacy for PXT3003 in treating CMT1A. This phase 3, international, randomized, double-blind, placebo-controlled study further investigated the efficacy and safety of high- or low-dose PXT3003 (baclofen/naltrexone/D-sorbitol [mg]: 6/0.70/210 or 3/0.35/105) in treating subjects with mild to moderate CMT1A. In this study, 323 subjects with mild-to-moderate CMT1A were randomly assigned in a 1:1:1 ratio to receive 5 mL of high- or low-dose PXT3003, or placebo, orally twice daily for up to 15 months. Efficacy was assessed using the change in Overall Neuropathy Limitations Scale total score from baseline to months 12 and 15 (primary endpoint). Secondary endpoints included the 10-m walk test and other assessments. The high-dose group was discontinued early due to unexpected crystal formation in the high-dose formulation, which resulted in an unanticipated high discontinuation rate, overall and especially in the high-dose group. The statistical analysis plan was adapted to account for the large amount of missing data before database lock, and a modified full analysis set was used in the main analyses. Two sensitivity analyses were performed to check the interpretation based on the use of the modified full analysis set. High-dose PXT3003 demonstrated significant improvement in the Overall Neuropathy Limitations Scale total score vs placebo (mean difference: - 0.37 points; 97.5% CI [- 0.68 to - 0.06]; p = 0.008), and consistent treatment effects were shown in the sensitivity analyses. Both PXT3003 doses were safe and well-tolerated. The high-dose group demonstrated a statistically significant improvement in the primary endpoint and a good safety profile. Overall, high-dose PXT3003 is a promising treatment option for patients with Charcot-Marie-Tooth disease type 1A.

Sections du résumé

BACKGROUND
Charcot-Marie-Tooth disease type 1A (CMT1A) is a rare, orphan, hereditary neuromuscular disorder with no cure and for which only symptomatic treatment is currently available. A previous phase 2 trial has shown preliminary evidence of efficacy for PXT3003 in treating CMT1A. This phase 3, international, randomized, double-blind, placebo-controlled study further investigated the efficacy and safety of high- or low-dose PXT3003 (baclofen/naltrexone/D-sorbitol [mg]: 6/0.70/210 or 3/0.35/105) in treating subjects with mild to moderate CMT1A.
METHODS
In this study, 323 subjects with mild-to-moderate CMT1A were randomly assigned in a 1:1:1 ratio to receive 5 mL of high- or low-dose PXT3003, or placebo, orally twice daily for up to 15 months. Efficacy was assessed using the change in Overall Neuropathy Limitations Scale total score from baseline to months 12 and 15 (primary endpoint). Secondary endpoints included the 10-m walk test and other assessments. The high-dose group was discontinued early due to unexpected crystal formation in the high-dose formulation, which resulted in an unanticipated high discontinuation rate, overall and especially in the high-dose group. The statistical analysis plan was adapted to account for the large amount of missing data before database lock, and a modified full analysis set was used in the main analyses. Two sensitivity analyses were performed to check the interpretation based on the use of the modified full analysis set.
RESULTS
High-dose PXT3003 demonstrated significant improvement in the Overall Neuropathy Limitations Scale total score vs placebo (mean difference: - 0.37 points; 97.5% CI [- 0.68 to - 0.06]; p = 0.008), and consistent treatment effects were shown in the sensitivity analyses. Both PXT3003 doses were safe and well-tolerated.
CONCLUSION
The high-dose group demonstrated a statistically significant improvement in the primary endpoint and a good safety profile. Overall, high-dose PXT3003 is a promising treatment option for patients with Charcot-Marie-Tooth disease type 1A.

Identifiants

pubmed: 34656144
doi: 10.1186/s13023-021-02040-8
pii: 10.1186/s13023-021-02040-8
pmc: PMC8520617
doi:

Substances chimiques

Sorbitol 506T60A25R
Naltrexone 5S6W795CQM
Baclofen H789N3FKE8

Types de publication

Journal Article Randomized Controlled Trial Research Support, Non-U.S. Gov't

Langues

eng

Sous-ensembles de citation

IM

Pagination

433

Informations de copyright

© 2021. The Author(s).

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Auteurs

Shahram Attarian (S)

Reference Center for Neuromuscular Disorders and ALS, CHU La Timone, Marseille, France. Shahram.ATTARIAN@ap-hm.fr.

Peter Young (P)

Department of Neurology, Medical Park Bad Feilnbach, Bad Feilnbach, Germany.

Thomas H Brannagan (TH)

Columbia University Medical Center, The Neurological Institute, New York, USA.

David Adams (D)

French Reference Center for Rare Peripheral Neuropathies, Service de Neurologie Adulte, APHP, CHU Bicêtre, Le Kremlin Bicêtre, France.

Philip Van Damme (P)

Department of Neurology, University Hospitals Leuven, KU, Leuven, Belgium.
Center for Brain & Disease Research, VIB, Leuven, Belgium.

Florian P Thomas (FP)

Department of Neurology, Hackensack University Medical Center, Hackensack, USA.
Department of Neurology, Saint Louis University School of Medicine, St. Louis, USA.

Carlos Casanovas (C)

Neuromuscular Unit, Neurology Department, Bellvitge University Hospital, Barcelona, Spain.
Neurometabolic Diseases Group, Bellvitge Research Institute (IDIBELL) and CIBERER, Barcelona, Spain.

Céline Tard (C)

U1171, Centre de référence des maladies neuromusculaires Nord Est Ile de France, Hôpital Salengro CHU de Lille, Lille, France.

Maggie C Walter (MC)

Department of Neurology, Friedrich-Baur-Institute, Ludwig-Maximilians-University of Munich, Munich, Germany.

Yann Péréon (Y)

Centre de Référence Maladies Neuromusculaires AOC, Filnemus, Euro-NMD, CHU Nantes, Hôtel-Dieu, Nantes, France.

David Walk (D)

Clinical Neuroscience Research Unit, University of Minnesota, Minneapolis, USA.

Amro Stino (A)

University of Michigan Health System, Ann Arbor, MI, USA.

Marianne de Visser (M)

Department of Neurology, Amsterdam University Medical Centres, University of Amsterdam, Amsterdam Neuroscience, Amsterdam, The Netherlands.

Camiel Verhamme (C)

Department of Neurology, Amsterdam University Medical Centres, University of Amsterdam, Amsterdam Neuroscience, Amsterdam, The Netherlands.

Anthony Amato (A)

Department of Neurology, Brigham and Women's Hospital, Boston, USA.

Gregory Carter (G)

St. Luke's Rehabilitation Institute, Physical Medicine and Rehabilitation, Spokane, USA.

Laurent Magy (L)

CHU Dupuytren, Limoges, France.

Jeffrey M Statland (JM)

University of Kansas Medical Center, Kansas City, USA.

Kevin Felice (K)

Department of Neuromuscular Medicine, Hospital for Special Care, New Britain, USA.

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