Sexual issues in people with haemophilia: Awareness and strategies for overcoming communication barriers.
adult learning
communication techniques around sexual health in haemophilia
haemophilia and sexual health
professional practice
sexual health in haemophilia
sexuality and disability
Journal
Haemophilia : the official journal of the World Federation of Hemophilia
ISSN: 1365-2516
Titre abrégé: Haemophilia
Pays: England
ID NLM: 9442916
Informations de publication
Date de publication:
Jan 2022
Jan 2022
Historique:
revised:
12
02
2021
received:
16
07
2020
accepted:
18
10
2021
pubmed:
17
11
2021
medline:
14
1
2022
entrez:
16
11
2021
Statut:
ppublish
Résumé
The Haemophilia Experiences, Results and Opportunities (HERO) Study identified sexual health as an important psychosocial issue affecting people with haemophilia (PWH) worldwide. However, sexual health is inadequately addressed at haemophilia treatment centres (HTCs), because PWH and healthcare professionals (HCPs) experience barriers to broaching the subject. There is a clear need for HCP training to support communication in this area and improve comprehensive care. The Sexual Health: Strategies for Effective Communication pilot programme was trialled in Canada to assess HCP readiness and ability to discuss sexual health issues with PWH and test communication tools to facilitate these conversations. The pilot programme consisted of two 3-h sessions attended by seven HCPs from Calgary's Alberta Children's and Foothills Hospitals. The sessions included lectures and case scenarios and explained the check-in-affirm-clarify-answer and head-heart-body tools designed by the Centre for Sexuality to aid communication. The pilot was evaluated through discussions and an online questionnaire. The pilot was well received by all HCP participants. Questionnaire data showed improvements in participants' knowledge, skills and comfort level in conducting sexual health discussions. Greatest improvements were noted in knowledge (100% 'good' or 'excellent' after the pilot, compared with 29% beforehand). Importantly, 86% felt that the material presented would be applicable in clinical practice. The Canadian pilot demonstrated the effectiveness of the proposed educational programme. The underlying principles could be adapted to similar programmes for other HTCs to facilitate sexual health discussions.
Identifiants
pubmed: 34784071
doi: 10.1111/hae.14447
pmc: PMC9299037
doi:
Types de publication
Journal Article
Langues
eng
Sous-ensembles de citation
IM
Pagination
36-41Subventions
Organisme : Novo Nordisk
Informations de copyright
© 2021 The Authors. Haemophilia published by John Wiley & Sons Ltd.
Références
Haemophilia. 2012 May;18(3):e138-9
pubmed: 22221992
Haemophilia. 2013 Jul;19(4):503-10
pubmed: 23551887
Haemophilia. 2017 Jul;23(4):e389-e391
pubmed: 28574623
Haemophilia. 2014 Mar;20(2):219-25
pubmed: 24252098
Patient Relat Outcome Meas. 2019 Aug 14;10:243-255
pubmed: 31616195
Sex Med Rev. 2017 Jul;5(3):349-364
pubmed: 28596070
Haemophilia. 2009 Jan;15(1):55-62
pubmed: 19149847
Haemophilia. 2011 Nov;17(6):875-83
pubmed: 21371200
Haemophilia. 2014 Jan;20(1):44-51
pubmed: 23902228
Haemophilia. 2018 Nov;24 Suppl 7:5-26
pubmed: 30457692
Haemophilia. 2002 May;8(3):353-9
pubmed: 12010433
Haemophilia. 2022 Jan;28(1):36-41
pubmed: 34784071
JBI Database System Rev Implement Rep. 2015 Jan;13(1):76-87
pubmed: 26447009
J Community Hosp Intern Med Perspect. 2011 Oct 17;1(3):
pubmed: 23882333
Med Educ. 2011 Aug;45(8):835-42
pubmed: 21752080
Int J Impot Res. 2000 Aug;12(4):197-204
pubmed: 11079360