Values and preferences for future end-of-life care among the indigenous Sámi.
DöBra cards
Sámi
advance care planning
end of life
ethnic groups
go wish cards
go-wish cards
indigenous
Journal
Scandinavian journal of caring sciences
ISSN: 1471-6712
Titre abrégé: Scand J Caring Sci
Pays: Sweden
ID NLM: 8804206
Informations de publication
Date de publication:
Jun 2022
Jun 2022
Historique:
revised:
17
09
2021
received:
27
04
2021
accepted:
07
11
2021
pubmed:
30
11
2021
medline:
18
5
2022
entrez:
29
11
2021
Statut:
ppublish
Résumé
Research with Indigenous peoples internationally indicates the importance of socio-cultural contexts for end-of-life (EoL) preferences. However, knowledge about values and preferences for future EoL care among the Indigenous Sámi is limited. We investigated if and how a Swedish adaptation of the English-language GoWish cards, DöBra cards, supports reflection and discussion of values and preferences for future EoL care among the Sámi. This qualitative study is based on interviews with 31 self-defined Sámi adults who used DöBra cards at four events targeting the Sámi population, between August 2019 and February 2020. Using directed content analysis, we examined aspects of interviews addressing Sámi-specific and Sámi-relevant motivations for choices. Data about individuals' card rankings were collated and compiled on group level to examine variation in card choices. All 37 pre-formulated card statements were ranked as a top 10 priority by at least one person. The cards most frequently ranked in the top 10 were a wild card used to formulate an individual preference and thus not representing the same statement, and the pre-formulated card 'to have those I am close to around me'. Reactions to interviews varied, with some participants commenting on the taboo-laden nature of discussing EoL issues, although many commented positively about EoL conversations in general, and the benefit of using the DöBra cards in particular. We categorised reasoning about Sámi-specific and Sámi-relevant values and preferences under the themes: Attributes of contemporary Sámi culture, Spirituality, Setting for death, Maintaining identity, Preferences related to death, Dying and EoL care and After death. The DöBra cards were found to be easy-to-use, understandable and a flexible tool for initiating and supporting conversations about EoL values and preferences. The open formulations of cards, with wild cards, enable discussions about individual values and preferences, with potential to reflect life as a Sámi in Sweden.
Types de publication
Journal Article
Langues
eng
Pagination
504-514Subventions
Organisme : Forskningsrådet om Hälsa, Arbetsliv och Välfärd
ID : # 2014-4071
Organisme : Umeå University Department of nursing
Organisme : The Centre for Rural Medicine
Organisme : Doctoral School for Health Care Sciences at Karolinska Institutet
Organisme : Vårdal Foundation
Organisme : Göteborg Center for Person-Centered Care
Organisme : Strategic Research Area Health Care Sciences at Karolinska Institutet and Umeå University
Organisme : The Dementia Foundation
Organisme : Ulrika Cronés Foundation
Organisme : Sahlgrensringen Foundation
Informations de copyright
© 2021 The Authors. Scandinavian Journal of Caring Sciences published by John Wiley & Sons Ltd on behalf of Nordic College of Caring Science.
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