[How can the transition of adolescents from a children's to an adult CF center be improved? Analysis of adolescents' and parents' needs during the post-transfer period].
Comment améliorer la transition au sein des CRCM : analyse des besoins des patients et de leurs parents lors de l’arrivée en service adulte.
Besoins
Cystic fibrosis
Jeunes adultes
Mucoviscidose
Needs
Parents
Transition
Young adults
Journal
Revue des maladies respiratoires
ISSN: 1776-2588
Titre abrégé: Rev Mal Respir
Pays: France
ID NLM: 8408032
Informations de publication
Date de publication:
Feb 2022
Feb 2022
Historique:
received:
21
03
2020
accepted:
22
12
2021
pubmed:
16
2
2022
medline:
16
3
2022
entrez:
15
2
2022
Statut:
ppublish
Résumé
In 2018, 55.4% of the 7180 French cystic fibrosis (CF) patients were adults. Our study was aimed at identifying young adult patients' needs and those of their parents when the young adults arrived in an adult CF center. Semi-structured interviews, conducted between July 2018 and December 2019and involving all the concerned teenagers and their parents, took place at least 6 months after their transfer. The interview guide dwelt on the aspects having had an impact on their experience of the transition. The interviews were recorded, transcribed and analyzed exhaustively. The results were classified by categorizing the contents according to respondent profile. Thirty-eight young adult patients and 16 parents were interviewed. As regards the young adults, analysis of their needs underlined the importance of their continuing to develop their skills in adaptation, communication and self-care. As regards their parents, they needed support in view of defining their role in their children's new care pathway. During and also following the transfer, therapeutic education for the parents as well as the young adults requires reinforcement.
Identifiants
pubmed: 35165013
pii: S0761-8425(22)00027-4
doi: 10.1016/j.rmr.2022.01.006
pii:
doi:
Types de publication
Journal Article
Langues
fre
Sous-ensembles de citation
IM
Pagination
132-139Informations de copyright
Copyright © 2022 SPLF. Published by Elsevier Masson SAS. All rights reserved.